HI ELVIRA, I AM PAM. I AM SO SORRY YOUR SON HAS TM. ITS BAD ENOUGH FOR A
ADULT BUT A CHILD ITS SO SAD.
THERE ARE MANY THINGS YOU CAN DO. I WOULD CONTACT COLES MOM HE HAS MADE
GREAT PROGRESS AND IS OUR WELL MY ROLE MODEL FOR A CHILD HAS WENT THRU.
HE NEEDS PHYSICAL THERAPY, WATER THERAPY AND A GOOD NEUROLOGIST.
OSTEOPOROSIS IS WHAT YOU NEED TO WORRY ABOUT. THEY HAVE DRUGS FOR THAT TO
BUILD UP HIS BONES.THE PT WILL HELP IMMENSELY ALSO. I HAVE HAD TM FOR 15 YEARS
BUT I AM A ADULT AND WAS PARALYZED A FEW TIMES BUT I AM WALKING.SO NEVER GIVE
UP THERE IS HOPE AND THIS GROUP IS GREAT.HE HAS TO GET THE PROPER CARE SO HE
CAN BUILD THOSE LEGS UP AND AVOID ATROPHY.
I JUST REMEMBERED HER NAME COLES MOMS NAME IS WENDY. I DO NOT KNOW HER
E-MAIL OFF HAND. YOU SHOULD ALSO GO TO THE FORUM.
YOU SHOULD GO TO THE TMIC SITE AND ASK FOR COLES MOMS WENDYS ADDY, I KNOW
SHE CAN ANSWER SO MANY OF YOUR QUESTIONS AND TELL YOU ABOUT COLE.
GOD BLESS TIAD PAM
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