Hiya Grace,
Some of my family members would love to see me in a nursing home so
they wouldn't be bothered by
me anymore. I think they'd be just as happy to see me in a pine box.
I have been in bed for weeks. My hands are hurting and numb and I can't
get a doctor to give me
anything for pain. I understand what you mean about your friends
thinking you're depressed,
although it wouldn't be unusual if you were depressed because of
everything else. I have a
few friends left who want me to go out with them, but they do understand
that I can't get out.
They are the exceptions.
Your children may be somewhat in denial. Maybe they will understand
more with maturity.
It su*ks to be dependent on others.
Kevin
Grace M. wrote:
/Hiya Kevin,/
/Boy, I sure can relate to the family thing, and friends slowly
disappearing. My oldest child, (33 yrs old) a son, has never seen me
during my flat on my back, paralyzed and blind episodes, but has only
seen me afterwards. He seems to think that as long as I can stand up,
and speak, and get around a bit, that all is well. My ex husband has
tried to talk to him to get him more or less prepared for the worst,
but it falls on deaf ears. Jay (My ex) think that the kids are just
in denial about the whole thing---not my oldest daughter, but my
oldest and youngest. (17) /
//
/The friends thing is a bit different for me. I have too many well
meaning friends that want to drag me here and there, want to see me
get out more, and do more---but Kevin, I can't. You know how the
fatigue can be, and for me using Rituxan infusions now, it's even more
so---so, whenever I decline an invitation (And that's fairly often.)
they start buzzing about me being *depressed*. Kevin, I'm not
depressed----just incredibly tired the majority of the time. Seems
like I'm dam*ed if i do, and dam*ed if I don't. /
//
/Grace /
