Hi ya Grace,
I know what you mean. Maybe you could say Yes and let them see for
themselves how hard it really is for you to get around. LOL
That is what I did to show my friends what it was like. I found out who
where my REAL friends and who was NOT.
I do understand that not everyone can do this.
Hope EVERYONE has more energy today,
Todd in CC, TX - Who is feeling much better today.
"Grace M." <[EMAIL PROTECTED]> wrote:
Hiya Kevin,
Boy, I sure can relate to the family thing, and friends slowly disappearing.
My oldest child, (33 yrs old) a son, has never seen me during my flat on my
back, paralyzed and blind episodes, but has only seen me afterwards. He seems
to think that as long as I can stand up, and speak, and get around a bit, that
all is well. My ex husband has tried to talk to him to get him more or less
prepared for the worst, but it falls on deaf ears. Jay (My ex) think that the
kids are just in denial about the whole thing---not my oldest daughter, but my
oldest and youngest. (17)
The friends thing is a bit different for me. I have too many well meaning
friends that want to drag me here and there, want to see me get out more, and
do more---but Kevin, I can't. You know how the fatigue can be, and for me
using Rituxan infusions now, it's even more so---so, whenever I decline an
invitation (And that's fairly often.) they start buzzing about me being
*depressed*. Kevin, I'm not depressed----just incredibly tired the majority
of the time. Seems like I'm dam*ed if i do, and dam*ed if I don't.
Grace
