Sandy,
As usual, you've done a grand job of explaining about what youall've
experienced these last few years! you speak as you help and love Terry....I'm
certain that not
all of us have a caretaker like you, or my Frank!! thank goodness we have
each other on the list!
janh
I don't have TM, my husband does, (8 years now). Therefore, I will try to
speak from the standpoint of understanding. However, I don't FEEL his pain,
but I SYMPATHIZE with his pain. I sympathize with; his daily issues, his
paralysis, his complaints, his clonus, his feeling of inadequacies, his
feelings of frustration and pain over sexual dysfunction and bladder
dysfunction, his loss of his past life and of OUR past lives. I LISTEN to him.
I AM THERE FOR HIM. I encourage him, I apologize for his pain and anything
that will make him understand that I UNDERSTAND to a degree. But, I don't think
anyone can FULLY understand unless they have TM. He knows I understand more
about TM than many. But, as they say, "unless you can walk the walk"...... I,
more than likely, will never walk that walk.
I love him, I am committed to him and I will continue to do my best to
understand TM thru his eyes. He is very detail oriented about it - so that in
itself, helps me understand better.
Anyone with a disease such as TM, needs someone to listen to them with
compassion in their heart. I will always do my best to be that person.
Sandy Parker
Has anyone ever figured out how to make non TM'rs understand what we go
thru 24/7.
If so plase sare the secret!
Has anyone ever figured out how to make non TM'rs understand what we go
thru 24/7.
If so plase sare the secret!
Rob
[TMIC] Thanks to the list.
Rob,
That's the best thing about this list.Everyone knows how it feels to have
tm;it's not something that a "regular" person understands.
Cheryl in Easthampton,Mass.
I would just like to thank all of the people on the list who responded to me
in the past few weeks. It helped me thru a difficult time!
I have been married for 38+ years and my wife has no idea what I go through
on a daily basis, nor do my children, my relatives and my friends. Only the
people on the list truly understand what it is like to get sick and never get
better! Only the people on the list relate to terms such as banding, pins &
needles, freezing/burning etc. Only the people who have TM can truly relate to
TM and how (in my case) in just a few hours my life changed for the worse.
I am sorry I and all of you have TM but I am extremely grateful for
the people on the list who always find the time to help! THANK YOU ALL!
Rob in New Jersey
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