I was struck at C4-C6 in 2003. My arm and hand were the first to give out
during the day that TM was working at paralyzing me. I regained use of both
hands, but not all of my fingers and didn't require help for my personal care.
I remember the excitement of being able to move the tip of my thumb in my
otherwise clenched fist, because I knew this meant there was hope in that tiny
bit of movement. We each have different levels of healing depending on many
variables. Work hard in therapy, then rest and sleep to help your body heal
and never give up hope for continued healing. You might be the person who gets
it all back.
Blessings to both Amanda and Prsicilla,
Patti - Michigan
---- [EMAIL PROTECTED] wrote:
>
> In 2001 I had an acute attack of transverse myelitis, paralyzing me from the
> chest down. I was in rehab hospital for eight weeks and I slowly recovered
> and finally I was able to walk. From the beginning, they told me that I would
> never use my hands because I was struck at c5 and c6.. I can't use either
> hand and I need help every day to bathe me, to cook for me, to clean my
> house, to write for me, and anything else that requires the use of your
> hands. I just thank God for the things I can do. I don't have much family
> that will help me, but I do have many good friends that take me places and
> care about me. I suggest that you get all the therapy that you can for your
> hands and arms. Good luck to you, and be sure to contact me if you have any
> questions.
>
>
>
> Have a wonderful day!
> Priscilla
>
>
> -----Original Message-----
> From: Amanda Diskey <[EMAIL PROTECTED]>
> To: [email protected]
> Sent: Fri, 12 Sep 2008 12:01 am
> Subject: [TMIC] Re: tmic-digest Digest V2008 #332
>
>
>
>
>
>
> hey everyone, i hope all is going well. i am soooo sick of this hospital. i
> might get to go see dr. kerr. did anyone else lose their arms and hands? i am
> getting all the muscles in my arms back, however not my hands. i am hoping
> vthey come back soon.
>
> --- On Wed, 9/10/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
>
> From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
> Subject: tmic-digest Digest V2008 #332
> To: [EMAIL PROTECTED]
> Date: Wednesday, September 10, 2008, 12:50 PM
>
>
> tmic-digest Digest Volume 2008 : Issue 332
>
> Today's Topics:
> [TMIC] Re: tmic-digest Digest V2008 [ [EMAIL PROTECTED] ]
> Re: [TMIC] new friend [ Jan Hargrove
> <[EMAIL PROTECTED] ]
> Re: [TMIC] jude [ Jenna <[EMAIL PROTECTED]> ]
> RE: [TMIC] new friend [ wim from holland
> <wim_from_holland@ ]
> Re: [TMIC] Testing 123 [ [EMAIL PROTECTED] ]
> Re: [TMIC] new friend [ "Diane"
> <[EMAIL PROTECTED]> ]
> Re: [TMIC] jude [ "L T CHERPESKI"
> <[EMAIL PROTECTED]> ]
> Re: [TMIC] gel cushion [ Alton Ryder
> <[EMAIL PROTECTED]> ]
> Display Notification: [TMIC] Re: tmi [ Rita Asbury <[EMAIL PROTECTED]>
> ]
>
>
>
>
>
> ?
>
>
>
> ?
>
>
>
> The site is [email protected] .At least it as the last? the? time I
> checked.Rick
> ?
>
> -------------- Original message from [EMAIL PROTECTED]: --------------
>
>
> Thanks Jim,
>
> ?
>
> Heather in Calgary
>
>
> ----- Original Message -----
>
> From: Jim Lubin
>
> To: [email protected]
>
> Sent: Sunday, September 07, 2008 10:13 AM
>
> Subject: [TMIC] Paralympics Athletes living with Transverse Myelitis
>
>
>
> Beijing Paralympics Athletes living with Transverse Myelitis
>
> United States
> Sarah Castle (Wheelchair Basketball)
> http://www.olympicspirit.us/paralympics/39341_46582.htm
> http://paralympics.teamusa.org/athlete/athlete/1929
> Anjali Forber-Pratt (Wheelchair Track)
> http://paralympics.teamusa.org/athlete/athlete/2209
> http://anjaliforberpratt.com/content/about
> Amanda McGrory (Wheelchair Track & Basketball)
> http://paralympics.teamusa.org/athlete/athlete/2217
> Kerri Morgan (Wheelchair Track)
> http://paralympics.teamusa.org/athlete/athlete/2218
> Steven Toyoji (Wheelchair Track & Basketball)
> http://paralympics.teamusa.org/athlete/athlete/2205
>
> Great Britain
> Gordon Reid (Wheelchair Tennis)
>
> Australia
> Greg Ball (Cycling)
> http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=61d23790-dd7f-4d77-ad8a-ad2b10874a39
> Madison de Rozario (Wheelchair Track)
> http://www.madid.com.au/bio.htm
> http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=725a9395-ceb6-4061-82e6-91f6ea88c337
>
>
> Watch online
> http://www.universalsports.com//SportSelect.dbml?DB_OEM_ID=23000&KEY=&SPID=13327&SPSID=107765
>
>
> http://www.cbc.ca/sports/paralympics/
>
> http://news.bbc.co.uk/sport2/hi/other_sports/disability_sport/default.stm
>
>
>
> ----
> Jim Lubin??????????????
> [EMAIL PROTECTED]
> http://makoa.org/jim
> disAbility Resources: http://www.makoa.org
>
>
>
>
>
>
>
>
> ?
>
>
>
>
>
>
>
>
>
>
> Welcome, Amanda!
>
> ?
>
> Sorry you have to meet us this way, but you've come to the right
> place.........
>
> Wecome to the family!!
>
> ?
>
> Hugs, janh
>
> --- On Tue, 9/9/08, Amanda Diskey <[EMAIL PROTECTED]> wrote:
>
>
> From: Amanda Diskey <[EMAIL PROTECTED]>
> Subject: [TMIC] new friend
> To: [email protected]
> Date: Tuesday, September 9, 2008, 3:40 PM
>
>
>
>
>
>
>
> my name is amanda and i am newly diagnosed with tm. i am still in the
> hospital in rehab. hope this gets through to the list. i could use sum
> friends.
>
> ?
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> Hi Bob, I am sorry you have been in the hospital, I hope you are feeling
> better now.
>
> Jude is doing ok, is the update I got today.? I will check with Pam again
> tomorrow and she if she can give me more info.? Or maybe Ella or Patti know
> more.
>
> ?
> Jenna
>
>
>
>
>
> ----- Original Message ----
> From: bob <[EMAIL PROTECTED]>
> To: tmic <[email protected]>
> Sent: Tuesday, September 9, 2008 12:57:00 PM
> Subject: [TMIC] jude
>
>
> how is jude doing ???? i just spent 12 days in the hospital and just came
> home last evening..can i please have an update on jude?????thank you
>
>
>
>
>
>
> Also welcome from Holland. Your friends are world wide as you see..
> ?
> Wim
>
>
>
> Date: Tue, 9 Sep 2008 13:40:13 -0700
> From: [EMAIL PROTECTED]
> To: [email protected]
> Subject: [TMIC] new friend
>
>
>
>
>
>
>
> my name is amanda and i am newly diagnosed with tm. i am still in the
> hospital in rehab. hope this gets through to the list. i could use sum
> friends.
>
> ?
>
>
>
>
>
>
> Het beste van Windows, nu ook online. Deel jouw wereld met Windows Live.
> Download nu.
>
> it's okay in Ohio
>
>
>
> Psssst...Have you heard the news? There's a new fashion blog, plus the latest
> fall trends and hair styles at StyleList.com.
>
>
>
> Hi Amanda.? Hope you bounce back soon.? Please keep us posted.
>
> Diane in Canada
>
>
> ----- Original Message -----
>
> From: Amanda Diskey
>
> To: [email protected]
>
> Sent: Tuesday, September 09, 2008 4:40 PM
>
> Subject: [TMIC] new friend
>
>
>
>
>
>
>
>
> my name is amanda and i am newly diagnosed with tm. i am still in the
> hospital in rehab. hope this gets through to the list. i could use sum
> friends.
>
> ?
>
>
>
>
>
>
>
>
>
>
> Bob - 12 days in the hospital!? How are you doing - are you ok????? Please
> give us an update.
>
> ?
>
> Thank you
>
> Linda
>
>
> ----- Original Message -----
>
> From: bob
>
> To: tmic
>
> Sent: Tuesday, September 09, 2008 10:57 AM
>
> Subject: [TMIC] jude
>
>
>
>
> how is jude doing ???? i just spent 12 days in the hospital and just came
> home last evening..can i please have an update on jude?????thank you
>
>
>
>
> I'm not that heavy, but after a decade in a wheelchair, I have insufficient
> muscles to pad the ischial protuberances - to sit on a firm chair is
> intolerable after just a few minutes. ? Yet, I sit all day, every day.
>
>
>
> The key is a cushion. ?Included below is a note I wrote last February.
>
>
>
>
> Alton, a geezer of 73 who has lost muscle mass with age
>
>
>
>
>
>
>
>
>
> From:?Alton Ryder <[EMAIL PROTECTED]>
>
> Date:?February 27, 2008 8:30:35 AM EST
>
> To:?TMIC List <[email protected]>
>
> Subject:?Re: [TMIC] gel cushion
>
>
>
>
> I have used gel cushions from Jay for a decade.??The primary use is in my
> wheelchairs, but I have used them in restaurants.??Being in a chair leads to
> atrophy of the butt muscles, and these muscles pad the ischial protuberances.
>
>
>
>
> The first came with the manual chair in the summer of '92, model, J2.??This
> had the gel in less than a dozen large, shaped compartments.??After three
> years the gel had hardened; the cushion discarded, the cover, still in good
> shape, retained.
>
>
>
>
> The second, a JAY Gel, is under me now. I have two chairs, the old, manual
> chair for?traveling, the power chair for use at home, highway travel,
> cemetery work, cross-lawn travel, and bull-dozing furniture and the toilet
> bowl.??The cushion that came with the chair is junk, a stiff cushion on a
> rigid steel plate, a butt killer - the supplier was saving pennies at my
> expense.??So I use the new Jay on top of it.??That isn't quite?sufficient, so
> I frequently put a third?cushion?on top of the other two.
>
>
>
>
> When I?travel, the Jay Gel is the only cushion on the fabric sling of the
> folding chair.??Ahh, pure comfort, like a hand in an old glove.??I can sit
> all day in that chair and often do.
>
>
>
>
> All three cushions are rather heavy, and the covers have a loop handle in the
> front.??The handle is used to move the cushion and to serve as an anchor for
> my night bag.??Couldn't do without the handle.
>
>
>
>
> I shall solve the comfort problem, either with a new base cushion or with a
> home-made sling.??Medicare reimburses me for cushions.
>
>
>
>
> Alton
>
>
>
>
>
>
>
> This is a confirmation that the message has been displayed to the user. Note:
> This is NOT a guarantee that the message has been read or understood.
>
>
>
>
>
>
>
