Hi Amanda, welcome to the list. It really helps when you are probably scared
and wondering how did this happen. Where did the TM hit you and how old are
you? I was hit last memorial day 2007 in the c-4 & 5 region. I couldn't use
my hands, gross motor skills were affected and so were my legs. I am doing
much better today other than fatique and muscle weekness and some other unusual
symtoms I did not have before TM.....Hang in there and don't get discouraged.
What are they saying they think caused you TM? Rita, in Cleveland Ohio
On 9/12/2008 12:01 AM, Amanda Diskey <[EMAIL PROTECTED]> wrote:
>hey everyone, i hope all is going well. i am soooo sick of this hospital.
>i might get to go see dr. kerr. did anyone else lose their arms and
>hands? i am getting all the muscles in my arms back, however not
>my hands. i am hoping vthey come back soon.
>
>--- On Wed, 9/10/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]>
>wrote:
>
>From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
>Subject: tmic-digest Digest V2008 #332
>To: [EMAIL PROTECTED]
>Date: Wednesday, September 10, 2008, 12:50 PM
>
>
>tmic-digest Digest Volume 2008 : Issue 332
>
>Today's Topics:
> [TMIC] Re: tmic-digest Digest V2008 [ [EMAIL PROTECTED] ]
> Re: [TMIC] new friend [ Jan Hargrove
><[EMAIL PROTECTED] ]
> Re: [TMIC] jude [ Jenna <[EMAIL PROTECTED]>
>]
> RE: [TMIC] new friend [ wim from holland
><wim_from_holland@ ]
> Re: [TMIC] Testing 123 [ [EMAIL PROTECTED] ]
> Re: [TMIC] new friend [ "Diane"
><[EMAIL PROTECTED]> ]
> Re: [TMIC] jude [ "L T CHERPESKI"
><[EMAIL PROTECTED]> ]
> Re: [TMIC] gel cushion [ Alton Ryder
><[EMAIL PROTECTED]> ]
> Display Notification: [TMIC] Re: tmi [ Rita Asbury <[EMAIL PROTECTED]>
>]
>
>
>#yiv425566364 p { margin:0px;color:#660000;} #yiv425566364 .fall-left
>{ font:normal 75% Verdana, Arial, Helvetica,
>sans-serif;letter-spacing:1px;color:#660000;}
>The site is [email protected] .At least it as the last the time
>I checked.Rick
>
>-------------- Original message from [EMAIL PROTECTED]:
>--------------
>
>
>Thanks Jim,
>
>Heather in Calgary
>
>----- Original Message -----
>From: Jim Lubin
>To: [email protected]
>Sent: Sunday, September 07, 2008 10:13 AM
>Subject: [TMIC] Paralympics Athletes living with Transverse Myelitis
>
>Beijing Paralympics Athletes living with Transverse Myelitis
>
>United States
>Sarah Castle (Wheelchair Basketball)
>http://www.olympicspirit.us/paralympics/39341_46582.htm
> <http://www.olympicspirit.us/paralympics/39341_46582.htm>http://paralympics.teamusa.org/athlete/athlete/1929
> <http://paralympics.teamusa.org/athlete/athlete/1929>Anjali Forber-Pratt
>(Wheelchair Track)
>http://paralympics.teamusa.org/athlete/athlete/2209
> <http://paralympics.teamusa.org/athlete/athlete/2209>http://anjaliforberpratt.com/content/about
> <http://anjaliforberpratt.com/content/about>Amanda McGrory (Wheelchair
>Track & Basketball)
>http://paralympics.teamusa.org/athlete/athlete/2217
> <http://paralympics.teamusa.org/athlete/athlete/2217>Kerri Morgan
>(Wheelchair Track)
>http://paralympics.teamusa.org/athlete/athlete/2218
> <http://paralympics.teamusa.org/athlete/athlete/2218>Steven Toyoji
>(Wheelchair Track & Basketball)
>http://paralympics.teamusa.org/athlete/athlete/2205
>
> <http://paralympics.teamusa.org/athlete/athlete/2205>Great Britain
>Gordon Reid (Wheelchair Tennis)
>
>Australia
>Greg Ball (Cycling)
>http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=61d23790-dd7f-4d77-ad8a-ad2b10874a39
> <http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=61d23790-dd7f-4d77-ad8a-ad2b10874a39>Madison
>
>de Rozario (Wheelchair Track)
>http://www.madid.com.au/bio.htm
> <http://www.madid.com.au/bio.htm>http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=725a9395-ceb6-4061-82e6-91f6ea88c337
>
>
> <http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=725a9395-ceb6-4061-82e6-91f6ea88c337>Watch
>
>online
>http://www.universalsports.com//SportSelect.dbml?DB_OEM_ID=23000&KEY=&SPID=13327&SPSID=107765
>
><http://www.universalsports.com//SportSelect.dbml?DB_OEM_ID=23000&KEY=&SPID=13327&SPSID=107765>
>
>http://www.cbc.ca/sports/paralympics/ <http://www.cbc.ca/sports/paralympics/>
>
>http://news.bbc.co.uk/sport2/hi/other_sports/disability_sport/default.stm
>
>
> <http://news.bbc.co.uk/sport2/hi/other_sports/disability_sport/default.stm>
>----
>Jim Lubin
>[EMAIL PROTECTED]
>http://makoa.org/jim <http://makoa.org/jim>
>disAbility Resources: http://www.makoa.org
>
>
>
> <http://www.makoa.org/>
>
>
>Welcome, Amanda!
>
>Sorry you have to meet us this way, but you've come to the right
>place.........
>Wecome to the family!!
>
>Hugs, janh
>
>--- On Tue, 9/9/08, Amanda Diskey <[EMAIL PROTECTED]> wrote:
>
>From: Amanda Diskey <[EMAIL PROTECTED]>
>Subject: [TMIC] new friend
>To: [email protected]
>Date: Tuesday, September 9, 2008, 3:40 PM
>
>
>
>my name is amanda and i am newly diagnosed with tm. i am still in
>the hospital in rehab. hope this gets through to the list. i could
>use sum friends.
>
>
>
>
>Hi Bob, I am sorry you have been in the hospital, I hope you are
>feeling better now.
>
>Jude is doing ok, is the update I got today. I will check with Pam
>again tomorrow and she if she can give me more info. Or maybe Ella
>or Patti know more.
>
> Jenna
>
>
>
>
>----- Original Message ----
>From: bob <[EMAIL PROTECTED]>
>To: tmic <[email protected]>
>Sent: Tuesday, September 9, 2008 12:57:00 PM
>Subject: [TMIC] jude
>
>
>how is jude doing ???? i just spent 12 days in the hospital and just
>came home last evening..can i please have an update on jude?????thank
>you
>
>#yiv307429273 .hmmessage P { margin:0px;padding:0px;} #yiv307429273
>{ FONT-SIZE:10pt;FONT-FAMILY:Tahoma;} Also welcome from Holland.
>Your friends are world wide as you see..
>
>Wim
>
>
>
>Date: Tue, 9 Sep 2008 13:40:13 -0700
>From: [EMAIL PROTECTED]
>To: [email protected]
>Subject: [TMIC] new friend
>
>
>
>my name is amanda and i am newly diagnosed with tm. i am still in
>the hospital in rehab. hope this gets through to the list. i could
>use sum friends.
>
>
>Het beste van Windows, nu ook online. Deel jouw wereld met Windows
>Live. Download nu. <http://get.live.com/nl-nl/wl/all>
>it's okay in Ohio
>
>
>
>Psssst...Have you heard the news? There's a new fashion blog, plus
>the latest fall trends and hair styles at StyleList.com.
>
>Hi Amanda. Hope you bounce back soon. Please keep us posted.
>Diane in Canada
>
>----- Original Message -----
>From: Amanda Diskey
>To: [email protected]
>Sent: Tuesday, September 09, 2008 4:40 PM
>Subject: [TMIC] new friend
>
>
>my name is amanda and i am newly diagnosed with tm. i am still in
>the hospital in rehab. hope this gets through to the list. i could
>use sum friends.
>
>
>
>
>
>Bob - 12 days in the hospital! How are you doing - are you ok????
>Please give us an update.
>
>Thank you
>Linda
>
>----- Original Message -----
>From: bob
>To: tmic
>Sent: Tuesday, September 09, 2008 10:57 AM
>Subject: [TMIC] jude
>
>
>how is jude doing ???? i just spent 12 days in the hospital and just
>came home last evening..can i please have an update on jude?????thank
>you
>
>I'm not that heavy, but after a decade in a wheelchair, I have insufficient
>muscles to pad the ischial protuberances - to sit on a firm chair
>is intolerable after just a few minutes. Yet, I sit all day, every
>day.
>
>
>The key is a cushion. Included below is a note I wrote last February.
>
>
>Alton, a geezer of 73 who has lost muscle mass with age
>
>
>
>
>
>
>From: Alton Ryder <[EMAIL PROTECTED] <mailto:[EMAIL PROTECTED]>>
>Date: February 27, 2008 8:30:35 AM EST
>To: TMIC List <[email protected] <mailto:[email protected]>>
>Subject: Re: [TMIC] gel cushion
>
>
>I have used gel cushions from Jay for a decade. The primary use
>is in my wheelchairs, but I have used them in restaurants. Being
>in a chair leads to atrophy of the butt muscles, and these muscles
>pad the ischial protuberances.
>
>
>The first came with the manual chair in the summer of '92, model,
>J2. This had the gel in less than a dozen large, shaped compartments. After
>three years the gel had hardened; the cushion discarded, the cover,
>still in good shape, retained.
>
>
>The second, a JAY Gel, is under me now. I have two chairs, the old,
>manual chair for traveling, the power chair for use at home, highway
>travel, cemetery work, cross-lawn travel, and bull-dozing furniture
>and the toilet bowl. The cushion that came with the chair is junk,
>a stiff cushion on a rigid steel plate, a butt killer - the supplier
>was saving pennies at my expense. So I use the new Jay on top of
>it. That isn't quite sufficient, so I frequently put a third cushion on
>top of the other two.
>
>
>When I travel, the Jay Gel is the only cushion on the fabric sling
>of the folding chair. Ahh, pure comfort, like a hand in an old glove. I
>can sit all day in that chair and often do.
>
>
>All three cushions are rather heavy, and the covers have a loop handle
>in the front. The handle is used to move the cushion and to serve
>as an anchor for my night bag. Couldn't do without the handle.
>
>
>I shall solve the comfort problem, either with a new base cushion
>or with a home-made sling. Medicare reimburses me for cushions.
>
>
>Alton
>
>
>This is a confirmation that the message has been displayed to the
>user. Note:
>This is NOT a guarantee that the message has been read or understood.
>
