I, too, have the temp issues. I don't know if that's TM or MS, as MS has temp
control problems too. With MS it is usually heat issues.
When I get cold it takes forever to warm up again! At night I have a have a
hard time getting the right blankets. If my legs get too hot they will ache and
it causes bladder spasms. That's what happened to me last night. The wood
stove was too hot before bed and I was miserable all night with pain and
bladder spasms. Does that happen to anyone else?
I'm sorry, Jude, to hear how bad it is for you.
hugs
Sharon
AOL Email
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Jude,
Temperature control is the only thing that my doc said would not return!.......
that said, I have found that silk underwear is the best thing to help.....Silk
is nice to your skin and light weight, so you need fewer heavy blankets!!
I get my silks from Winter Silks, which has a 20% off sale right now. The
web site is: www.wintersilks.com
Hope this helps!
Hugs,
janh in OK
--- On Sat, 11/29/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
Hi All,
Is anyone else out there suffering from that bone-chilling cold that settles
deeply into your bones and nothing you do helps to warm you up?
I began to get cold earlier in the evening and have had Dave put mega blankets
on me until they are so heavy I can barely lift them. I now have a queen sized
silk blanket doubled on top of all of my other covers on my small hospital bed.
This kind of cold came with the Transverse Myelitis and I don't believe it will
ever go away. At least there is no kind of medication to warm me up that I
know of. Does anyone out there have a clue?
I know that some of you have also felt this chilling cold. What do you do to
combat it? It is ridiculous the lengths I go to in order to be able to sleep,
but am so uncomfortable that I can't.
At least I am tired enough to give it a go...
Jude
Life should be easier. So should your homepage. Try the NEW AOL.com.
Grace,
Please know that ALL of us are sending vibes to help you make it over
this hump. With all of us pushing, you know that this too shall pass!
You're in our prayers.
Hugs,
janh in OK
Sorry for being out of touch, but have relapsed. It is my vision this time.
We did an emergency chemo and three days of IV SoluMedrol and I'll be repeating
chemo on Devcember 8th. My vision has not improved much, and I am very
disheartened.
I just had an MRI of the cord, brainstem and brain, about three months ago and
everything was stable---so, this really hit me out of the blue.
Why couldn't it have been simple MS? Why this? We have recently had several
deaths among our Devic's Advocacy members and have several more that are in
terrible shape. My heart just can't cope with it anymore. I HATE this.
Grace
I don't have the temp. control issue but I wonder if taking capsaicin capsules
might help those who do warm up from the inside I understand you need to build
up your dosage if you try it.
Mindy the Artist
On Nov 29, 2008, at 11:05 AM, Jan Hargrove wrote:
Jude, Temperature control is the only thing that my doc said would not
return!....... that said, I have found that silk underwear is the best thing to
help.....Silk is nice to your skin and light weight, so you need fewer heavy
blankets!! I get my silks from Winter Silks, which has a 20% off sale right
now. The web site is: www.wintersilks.com Hope this helps! Hugs, janh
in OK
--- On Sat, 11/29/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
Hi All, Is anyone else out there suffering from that bone-chilling
cold that settles deeply into your bones and nothing you do helps to warm you
up? I began to get cold earlier in the evening and have had Dave put mega
blankets on me until they are so heavy I can barely lift them. I now have a
queen sized silk blanket doubled on top of all of my other covers on my small
hospital bed. This kind of cold came with the Transverse Myelitis and I don't
believe it will ever go away. At least there is no kind of medication to warm
me up that I know of. Does anyone out there have a clue? I know that some of
you have also felt this chilling cold. What do you do to combat it? It is
ridiculous the lengths I go to in order to be able to sleep, but am so
uncomfortable that I can't. At least I am tired enough to give it a go...
Jude
Life should be easier. So should your homepage. Try the NEW AOL.com.
