Jack and I had gone somewhere where there was a crowd and this one guy
walked up to me and said, "How can someone so healthy be in a wheelchair?"
and I just gave a pat little answer but it does bring up what you said,
Trudy, doesn't it?  You could go on and on about not being able to 'feel'
yet you have horrendous pain and spasms, and how you feel like your body is
full of wet sand or how the rain and cold hurts you so bad and on and on....
 Very hard to explain, isn't it?    Jeanne
 
-------Original Message-------
 
From: Janice
Date: 4/29/2009 7:56:42 PM
To: Trudy OGILVIE;  [email protected];  [email protected]
Subject: Re: [TMIC] copy of my response
 
Barbara,
I hope you are taking to heart what trudy is saying.     My stock answer
when people tell me how good I look is "you should
see my insides".        Take care, Janice
----- Original Message ----- 
From: Trudy OGILVIE 
To: [email protected] ; [email protected] 
Sent: Wednesday, April 29, 2009 12:34 PM
Subject: RE: [TMIC] copy of my response


Barbara, 
You have always been there for everyone on this TMIC list... with  hugs and
all. I had no idea you were in so much pain. Sleep is crucial to even trying
to have a "good day". It's rainy and miserable here and my legs are giving
me some real problems. I did take a vicodin since I will be here in the
house all day cleaning etc. (my clothes washer has been broken for a week 
:) I also have learned to give myself some "recuperation" time when I've
over done it. Someone a very, very long time ago posted the "spoon" theory.
I thought I had saved it. But it was a great way to explain how fatigue,
pain etc...  effect your day. You've only got so many spoons.... Taking a
shower, blow drying your hair, just getting "out" the door uses up a spoon
or three!... I don't remember it all but it was a great way of explaining
your "day" to friends.... cause of course we all look "so good" how could we
be in that much pain or fatigue or anxiety????
Take care and hugs to you!
Trudy









Worrying does not empty tomorrow of its troubles; It empties today of its
strengths.





To: [email protected]
Date: Wed, 29 Apr 2009 00:03:45 -0400
From: [email protected]
Subject: [TMIC] copy of my response

I forgot to include the TMIC when I answered these nice messages of advice
so I am forwarding to the group.  Thanks again ladies and Rob.

Hugs, Barbara A

-----Original Message-----
From: [email protected]
To: [email protected]; [email protected]; [email protected]
Sent: Tue, 28 Apr 2009 8:56 pm
Subject: Re: [TMIC] RE: tmic-digest Digest V2009 #361


Hello Ladies,

I already have another TV, actually, we have 5 TV's in the house and I have
my own laptop, with WIFI.  I didn't ever think of taking it outside though,
that's something interesting to try and see if it'll work.  That's one of
the reasons that I've been in the bedroom so much though, lol!!!  It's been
too easy to do.

It's ok if I spend most of the day when I need to recuperate after a day of
overdoing it, but I just don't want it to be too big in my life, and that is
what had occured.  I am working on that not happening too often now, and so
far, so good.

Thanks for all the support!  I appreciate it!!!

Hugs, Barbara A






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