I too fall asleep on the stool at nite. The drugs work well for what they are used for, but you have to be careful. I would either be awake because of my legs or drugged and sleeping. I prefer sleeping. So far, I wake up as I am leaning. No fallling off yet. Janice ----- Original Message ----- From: [email protected] To: [email protected] ; [email protected] Sent: Friday, May 01, 2009 1:22 AM Subject: [TMIC] Zanaflex
Tried the Zanaflex and didn't work well for me. It relaxed me too much, and when I finally got to the bathroom, I generally fell asleep on the commode. I do that a lot when I take something to help me sleep in addition to my regular meds, so the Zanaflex relaxed me way too much. I would fall asleep while I was walking to the bathroom, I can't tell you how, but I did. One night I found myself standing in front of the stove. I didn't turn anything on, but it wasn't good. Another night I was standing in the middle of the family room, when I know I was on my way to the bathroom before going to bed, but just never made it. So, I stopped taking it. I could tell enough stories about me moving around the house and falling asleep standing up, it's amazing. These meds are crazy! I hope I gave everyone a good laugh!!! Most people think it strange falling asleep on the toilet. My husband Pete yells from bed to me, "Barbara, are you awake", and then I get startled, and I say, "oh yes, I am just getting up now", or "darn, I fell asleep again". Sometimes he just comes into the bathroom when he hears me snoring and opens the door and says, "would you come back to bed and sleep". That's generally when I didn't respond to him, lol. I then look at my watch and sometimes notice an hour or more has passed since I got out of bed. It's not so bad unless I fall off, that has happened several times, but I think my percentages are really good for not falling off. More information than asked for, right? I know we all have great TM Memories. We could write books about our experiences. Hugs, Barbara A -----Original Message----- From: Pieter and Heather <[email protected]> To: [email protected]; [email protected]; [email protected] Sent: Thu, 30 Apr 2009 10:49 pm Subject: Re: [TMIC] wow, you work too hard Trudy Barbara, Has your doctor ever suggested or have you ever tried Zanaflex? It is also a muscle relaxant. I take 40 mg of Baclofen in 4 divided doses throughout the day and one of the doses is at bedtime. However, I also take a 4mg tablet of Zanaflex right before bed. I find that I do not have to get up to the bathroom every 2 hours during the night. Now I am able to go 4 or and sometimes 5 hours at a time during the night. That happened when I started the Zanaflex. Makes a big difference when we get a pretty good night sleep. I know that some other people on the list take more Zanaflex than that but for me it works. Heather in Calgary ----- Original Message ----- From: [email protected] To: [email protected] ; [email protected] Sent: Thursday, April 30, 2009 3:00 PM Subject: [TMIC] wow, you work too hard Trudy Hi Trudy, You work too hard, I could not clean all day, whether I wanted to or not. If not for a automatic washer/dryer, the wash would not get done. And, if it goes for floors, I can do a small amount but not a lot. It kills my back, and I'm in bed for days. So, it's someone else's job. I do clean the spots on the kitchen floor iwth paper towels though from time to time, since hubby or daughter in-law aren't really responsive on the job, lol. It doesn't seem to be as important to them that it is and looks clean as it is to me. My speed is dusting and cleaning kitchen/bathrooms and laundry. I can do most things that are off the floor and I cannot do too much in a day and still manage to cook dinner. I don't cook dinner everyday, but try to do it most days. Pete (hubby) usually handles breakfast most days and it's a nice trade off as he loves breakfast. That's one of the good parts of his retirement. He also makes my coffee in the morning and then again at night. And, he is sure a handy guy to have around I know that I don't think that I could have gotten through this whole TM thing without him, he's been so good at accepting the changes that it has made in our lives. I say accepting, and I am not sure it is the right word, as it is a hard thing to say. We do have to accept it, don't have to like it as none of us do, but we just roll with it. It just is what it is. Can't change it, and cannot deny it anymore, although I tried that for about! ! 18 months. Now, it's been almost 10 years. I use 40 mg Baclofen at night for spasms, and generally it works pretty well, although there are those nights when it doesn't seem to work. Maybe it is and if I hadn't taken it, they would be a whole lot worse, but they definately keep me from sleeping. That is usually on a day that I've done too much. I've had 2 DVT's in my left leg, and sometimes I think that the problems and pain in that leg are worse than the complications that TM has caused in my life. Although, I didn't get the DVT's until I was in the hospital paralyzed from TM. Darned leg! But I have slept 3 nights straight and am a happy camper today. Yippee! I hope you all can take something positive from me and do something positive for yourself to get on the right track if you've slipped off as well. Hugs to all, Barbara A ---------------------------------------------------------------------------- Can't afford a new spring wardrobe? Go shopping in your closet instead! ------------------------------------------------------------------------------ Can't afford a new spring wardrobe? Go shopping in your closet instead!
