I guess I really don't need Zanaflex - I fall asleep instantly and stay asleep
until I have to go to the bathroom (sometimes too
late), sometimes not. I have been given a 3' by 3' quilted pad that
absolutely keeps my sheet dry. I was told it was very
expensive to buy and works great. I think my bladder is improving some.
Hope so. janice
----- Original Message -----
From: Pieter and Heather
To: Janice ; [email protected] ; [email protected] ; [email protected]
Sent: Friday, May 01, 2009 10:12 PM
Subject: Re: [TMIC] wow, you work too hard Trudy
Janice,
No, it doesn't. I do find that the Zanaflex though has helped to relax me
and I get a better sleep. Apparently for me it relaxes the bladder and I get
to sleep. At least that is how I understand it. I actually don't mind getting
up once or twice in the night. It is the only time I move when sleeping. I go
to sleep on my one side. I never move. Then my body somehow wakes me.
Sometimes with muscle spasms in my legs. I then get up, go to the bathroom,
get back to bed and lay on the opposite side. After another 3 or 4 and once in
a while 5 hours I get up again. Since I have been taking the Zanaflex I feel
I get a longer sleep.
I was told though that the Zanaflex (at 4 mg for me) effect only last for
about 2 hours. HOwever, that is enough time for me to fall asleep and I get to
relax then.
Heather
----- Original Message -----
From: Janice
To: Pieter and Heather ; [email protected] ; [email protected] ;
[email protected]
Sent: Friday, May 01, 2009 6:35 PM
Subject: Re: [TMIC] wow, you work too hard Trudy
Heather,
Does Baclofen make you have to go the bathroom a lot? Janice
----- Original Message -----
From: Pieter and Heather
To: [email protected] ; [email protected] ; [email protected]
Sent: Friday, May 01, 2009 12:49 AM
Subject: Re: [TMIC] wow, you work too hard Trudy
Barbara,
Has your doctor ever suggested or have you ever tried Zanaflex? It is
also a muscle relaxant. I take 40 mg of Baclofen in 4 divided doses throughout
the day and one of the doses is at bedtime. However, I also take a 4mg tablet
of Zanaflex right before bed. I find that I do not have to get up to the
bathroom every 2 hours during the night. Now I am able to go 4 or and sometimes
5 hours at a time during the night. That happened when I started the
Zanaflex. Makes a big difference when we get a pretty good night sleep. I
know that some other people on the list take more Zanaflex than that but for me
it works.
Heather in Calgary
----- Original Message -----
From: [email protected]
To: [email protected] ; [email protected]
Sent: Thursday, April 30, 2009 3:00 PM
Subject: [TMIC] wow, you work too hard Trudy
Hi Trudy,
You work too hard, I could not clean all day, whether I wanted to or
not. If not for a automatic washer/dryer, the wash would not get done. And,
if it goes for floors, I can do a small amount but not a lot. It kills my
back, and I'm in bed for days. So, it's someone else's job. I do clean the
spots on the kitchen floor iwth paper towels though from time to time, since
hubby or daughter in-law aren't really responsive on the job, lol. It doesn't
seem to be as important to them that it is and looks clean as it is to me.
My speed is dusting and cleaning kitchen/bathrooms and laundry. I can
do most things that are off the floor and I cannot do too much in a day and
still manage to cook dinner. I don't cook dinner everyday, but try to do it
most days. Pete (hubby) usually handles breakfast most days and it's a nice
trade off as he loves breakfast. That's one of the good parts of his
retirement. He also makes my coffee in the morning and then again at night.
And, he is sure a handy guy to have around I know that I don't think that I
could have gotten through this whole TM thing without him, he's been so good at
accepting the changes that it has made in our lives. I say accepting, and I am
not sure it is the right word, as it is a hard thing to say. We do have to
accept it, don't have to like it as none of us do, but we just roll with it.
It just is what it is. Can't change it, and cannot deny it anymore, although I
tried that for about! 18 months. Now, it's been almost 10 years.
I use 40 mg Baclofen at night for spasms, and generally it works pretty
well, although there are those nights when it doesn't seem to work. Maybe it
is and if I hadn't taken it, they would be a whole lot worse, but they
definately keep me from sleeping. That is usually on a day that I've done too
much. I've had 2 DVT's in my left leg, and sometimes I think that the problems
and pain in that leg are worse than the complications that TM has caused in my
life. Although, I didn't get the DVT's until I was in the hospital paralyzed
from TM. Darned leg!
But I have slept 3 nights straight and am a happy camper today.
Yippee! I hope you all can take something positive from me and do something
positive for yourself to get on the right track if you've slipped off as well.
Hugs to all, Barbara A
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