Linda,
I'm 5 1/2 yrs now and still cannot look up at the stars without holding onto
something or someone. Crazy isn't it? But hey, that's TM for you.
Heather in Calgary
----- Original Message -----
From: L T CHERPESKI
To: Trudy OGILVIE ; [email protected] ; [email protected] ; Janice ;
Pieter and Heather
Sent: Friday, May 01, 2009 10:20 PM
Subject: Re: [TMIC] RE: wow, you work too hard Trudy
Heather,
I haven't given up yet, but I still can't look up at the stars without
almost tipping over. Maybe it will happen one of these nights when I least
expect it. That would be wonderful.
hugs,
Linda (Eagle, ID)
----- Original Message -----
From: Pieter and Heather
To: L T CHERPESKI ; Trudy OGILVIE ; [email protected] ;
[email protected] ; Janice
Sent: Friday, May 01, 2009 9:58 PM
Subject: Re: [TMIC] RE: wow, you work too hard Trudy
Linda,
I know what you mean about shutting your eyes in the shower. It was well
after the 2 yr mark that one day I got out of the shower and it hit me. I had
shut my eyes to wash my hair and I didn't have to touch the wall. From time to
time I still just touch the shower wall or glass door with my elbow but not
like I did for the first few years. (I'm at 5 1/2 yrs now).
So yes I guess little things improve from time to time.
Heather in Calgary
----- Original Message -----
From: L T CHERPESKI
To: Trudy OGILVIE ; [email protected] ; [email protected] ; Janice
Sent: Friday, May 01, 2009 9:33 PM
Subject: Re: [TMIC] RE: wow, you work too hard Trudy
Janice, you're so funny. The more questions, the better. Then we all
learn something. About the cathing,
I have had TM for 7 years now and have had to cath from the beginning.
I couldn't "feel" that I had to go so I needed to put myself on a "pee
schedule" Then my doctor sent me to a urologist who worked with people with
neurological issues. She was great - after some testing (just a tad bit
embarrassing) she diagnosed me with neurogenic bladder. In my case, I could
not empty my bladder completely. However, I had a very strange thing happen
about 2 months ago. I had just finished another round of Rituxan infusions and
one day realized that I hadn't cathed! Miracle of all miracles. I still cath
before bed just to make sure I don't need to get up in the night. I really have
stopped thinking there is a "time limit" on this TM stuff. I've seen small
improvements in the last few years that really surprised me. Like washing my
hair in the shower and being able to close my eyes without one hand on the
glass door. Sometimes I still need to hang on or I will lose my balance, but I
could NEVER close my eyes before. Some of these things may seem small, but
when you could not do it for years, it's actually huge. I hope you and all the
rest of us will continue to improve for many years to come.
Oh, just one more thing - Janice, nothing is too embarrassing to talk
about here! We've either been there ourselves or know someone who has. So go
for it!
hugs,
Linda (Eagle, ID)
----- Original Message -----
From: Janice
To: Trudy OGILVIE ; [email protected] ; [email protected]
Sent: Friday, May 01, 2009 6:49 PM
Subject: Re: [TMIC] RE: wow, you work too hard Trudy
This is Janice,
As usual, I have another question. How many of you have to cath?
Do you know if that is from having a
catheter in too long when in the hospital, or is it a result of
paralyzation onset taking a long time to come back? Do you still feel
improvement - cathing less, fewer wet pants/pads, more control? Do you wake
up in the nite to an
already wet bed - you don't yet feel when you are peeing until it is
too late? I have not gotten control yet
after almost 2 1/2 years. I am improving, but not there yet. Wonder
if it will ever heal. Just wondered if those
of you that have had TM longer have seen any improvement after the
"2-year mark". Thanks for any responses I
get. I realize this is personal. Janice
----- Original Message -----
From: Trudy OGILVIE
To: [email protected] ; [email protected]
Sent: Friday, May 01, 2009 3:27 PM
Subject: [TMIC] RE: wow, you work too hard Trudy
Hi Barbara,
Congrats on having 3 good nights of sleep! I'll bet you feel like a
whole new person.. I really don't work so hard, I do pace myself and if it
doesn't get done it doesn't get done. I do have someone come in every other
week to help me so I'm fortunate for that. My washing machine broke and I am
now trying to catch up on that disaster. My husband (Mac) is fantastic to me.
It's odd in that seven yrs. ago when this hit we were having some
difficulties.... that all changed when TM came along. Crazy I know..... so is
this damn TM .. only those of you on this list can understand words like
"banding", numbness,
fire and ice..... change your shoes ..... watch out... change your
clothes ..... watch out...... But I am back and committed to doing my
exercises. I do feel much better and a real sense of accomplishment. Again, so
glad you're sleeping, it makes a huge difference.
Take care - Blessings!
Trudy
Springfield, Va (the sun just peeked out - it's supposed to go away
for the weekend.
Worrying does not empty tomorrow of its troubles;
It empties today of its strengths.
----------------------------------------------------------------------
To: [email protected]; [email protected]
Subject: wow, you work too hard Trudy
Date: Thu, 30 Apr 2009 17:00:22 -0400
From: [email protected]
Hi Trudy,
You work too hard, I could not clean all day, whether I wanted to or
not. If not for a automatic washer/dryer, the wash would not get done. And,
if it goes for floors, I can do a small amount but not a lot. It kills my
back, and I'm in bed for days. So, it's someone else's job. I do clean the
spots on the kitchen floor iwth paper towels though from time to time, since
hubby or daughter in-law aren't really responsive on the job, lol. It doesn't
seem to be as important to them that it is and looks clean as it is to me.
My speed is dusting and cleaning kitchen/bathrooms and laundry. I
can do most things that are off the floor and I cannot do too much in a day and
still manage to cook dinner. I don't cook dinner everyday, but try to do it
most days. Pete (hubby) usually handles breakfast most days and it's a nice
trade off as he loves breakfast. That's one of the good parts of his
retirement. He also makes my coffee in the morning and then again at night.
And, he is sure a handy guy to have around I know that I don't think that I
could have gotten through this whole TM thing without him, he's been so good at
accepting the changes that it has made in our lives. I say accepting, and I am
not sure it is the right word, as it is a hard thing to say. We do have to
accept it, don't have to like it as none of us do, but we just roll with it.
It just is what it is. Can't change it, and cannot deny it anymore, although I
tried that for about 18 months. Now, it's been almost 10 years.
I use 40 mg Baclofen at night for spasms, and generally it works
pretty well, although there are those nights when it doesn't seem to work.
Maybe it is and if I hadn't taken it, they would be a whole lot worse, but they
definately keep me from sleeping. That is usually on a day that I've done too
much. I've had 2 DVT's in my left leg, and sometimes I think that the problems
and pain in that leg are worse than the complications that TM has caused in my
life. Although, I didn't get the DVT's until I was in the hospital paralyzed
from TM. Darned leg!
But I have slept 3 nights straight and am a happy camper today.
Yippee! I hope you all can take something positive from me and do something
positive for yourself to get on the right track if you've slipped off as well.
Hugs to all, Barbara A
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