Cody,
I am currently using the spinal stimulator. My pain management doctor put it
in. I have had it for about a year. I have TM and
have had it since Jan. 13, 2007. I am walking with a cane for short
distances and wheelchair for longer distances. I have had
TM from the shoulder blades to my toes. I have also had nerve pain in my
calves, upper back thighs, and back. Also have
severe arthritis in lower back that complicates everything. The spinal
stimulator has helped me a great deal. I can walk without
the stimulator, but the stimulator makes me feel stronger and does cover much
of the pain.
I had the one week trial run with the stimulator on the outside of my back,
then we put it inside. I don't know if our situations
are similar enough to help you, but I am glad I have taken the plunge and had
the stimulator inserted. I also take 3 Baclofens
at 20 mg. each - 2 at dinner and 1 at 8:00pm. Am also on 1800 mg of Neurontin.
Let me know if I can help in any way.
Janice from Missouri
----- Original Message -----
From: Cody
To: TMIC
Sent: Friday, June 05, 2009 9:58 PM
Subject: [TMIC] Spinal Stimulator
I am currently taking 150mg 3XD of Lyrica for pain and 20Mg 2XD of Baclofen
for spasms. The Baclofen is controlling the spasms but I still have alot of
pain even with the Lyrica. I also take Hydrocodone for really bad days. Even
with all of that my pain level is still bad.
My neurologist sent me to a pain management doctor and I went for my
first appointment today. The new doctor and I are considering trying a spinal
stmulator to control my pain. The plan is for a one week trial run before doing
anything permanent. This doctor has performed many of these applications but no
patient with TM. Therfore, he is going to do some research and check with his
colleagues before we do the trial installation. He asked me to do the same with
other people with TM. I told him about our TMIC List.
I am paralized from T-3/4 down with no movement or feeling below that
level. I would appreciate hearing from anyone with a similiar paralysis level
that has tried or is currently using a stimilator to control their pain. Any
one else's comments/recommendations are welcome as well. If this don't work I
am considering a morphine pump. Your comments are both welcomed and
appreciated...........Cody in Austin
