Well said Tracy! Jill --- On Wed, 6/17/09, Tracey L. Black <[email protected]> wrote:
From: Tracey L. Black <[email protected]> Subject: RE: [TMIC] Transverse Myelitis Network To: [email protected], [email protected], [email protected] Date: Wednesday, June 17, 2009, 1:14 PM As a caretaker/mother of a daughter who has had TM for 4 years now; this saddens me to read this. I am also a member of the one Yahoo TM site b/c for me it seems like it involves more children than adults and I can identify more with their issues. Since my daughter was inflicted at the age of 11 and is now 15 ½, I get lots of answers from the other site but also stay on this one b/c I want to know what the future may hold for my daughter as an adult. I know that we ALL have been saddened by the passing of Pam but this should not be a time to bicker and a time for people to quit the site b/c they feel as though they are traitors for checking out another site. There have been numerous times that I have tried to unsubscribe and for some reason, it never works. Maybe I am supposed to stay on this site for another reason. I know I don’t write very much and maybe this email will just be taken with a grain of salt. Fortunately, my daughter seems to have a much lighter case of TM than a lot of others on this site. With that in mind, I still continue to read everyone’s emails b/c they make me feel so much more blessed that my daughter didn’t get inflicted as badly as others although she does deal with one or two of the symptoms. I can’t imagine what most of you feel on a daily basis with the pain, fatigue, banding, sweats, cold feelings etc. My daughter hasn’t had any pain, other than at onset, and that was more of the tingling than anything. She is the typical 15 year old and walks, with assistance through high school every day (except for now b/c school is over) and she still hangs out with her friends, she helps me around the house and she even babysits the 4 year old and 1 year old boys next door. She was confined to her wheelchair at one time but thanks to Dr. Kerr for helping us get into the Kennedy Krieger Institute for Spinal Cord Injuries, she has been walking for about 2 years. Time has flown by over the last 4 years that it is hard to remember life before TM. I hope that everyone continues to stay on this site b/c it is full of great information and great people that are willing to answer any question that is ever asked. No one judges anyone for asking questions. As Pam would say !!!!!!!!!!!!!!!!!!TIAD!!!!!!!!!!!!!!!!!!!!!!! Tracey L. Black Certified Insurance Service Representative Hockley & O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m. Thank you for providing information to us. Please be aware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained From: [email protected] [mailto:[email protected]] Sent: Wednesday, June 17, 2009 1:03 PM To: [email protected]; [email protected] Subject: Re: [TMIC] Transverse Myelitis Network Jude, First of all, I never said I PREFER the paraplegic/quadriplegic site. I said I IDENTIFY more. I feel as though I offended you by saying this. There are issues and concerns of being a quad they are not addressed in the TM site and I would imagine it's because most people on this site are not quadriplegics. I go where I can find the information that helps me. If I did not want to be on this site, I could simply delete it from my contacts. There is nothing holding me back. I have asked questions on here regarding autonomic dysflexia, only to have no one respond. Because I later found out that it's a medical condition for quadriplegics, so I went to the paraplegic/quadriplegic site to get the answers I needed. I'm sure Jim uses these sites, HE CREATED THEM! Where is his hostility?? He knew that there would be a need for additional information, and that's all it is, is additional information. I have been a member of this site, since I came home from the hospital in 2006, but I am always looking for any and all information that could be of help to me (as I'm sure all of us would be). There are people that use this site that are also members on the Yahoo Transverse Myelitis site. Should they just pick one or the other. I have met many people through this site, one who has become my best friend who has TM. I would not trade that for anything, but your e-mail makes me feel as though I am unwelcomed or a traitor of sorts. This brings me to tears. As I have poured my heart out on this site (reluctant to make my personal problems public), but felt comfortable enough to share with others who are, also suffering with relationship problems, pain and depression. That won't happen again. -----Original Message----- From: [email protected] To: [email protected] Sent: Wed, Jun 17, 2009 4:26 am Subject: Re: [TMIC] Transverse Myelitis Network Then what is holding you back? Why don't you simply quit this site and use the other one that you say you prefer? What's the big deal? Jude In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight Time, [email protected] writes: I am also a member of the paraplegic/quadriplegic website that Jim has started. Although I have TM, which left me a quadriplegic, I identify more with the members of the paraplegic quadriplegic site then with the members of the TM site. Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! 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