Tracey,
I was shocked to read that your 11 year old daughter had TM. Bless her
heart, she has come a long way and I know that
that is only done with hard work. I am sure it was a family affair in
getting her to where she is. Bless you all.
Janice
----- Original Message -----
From: Jill Z
To: [email protected] ; [email protected] ; [email protected] ; Tracey
L. Black
Sent: Wednesday, June 17, 2009 6:05 PM
Subject: RE: [TMIC] Transverse Myelitis Network
Well said Tracy!
Jill
--- On Wed, 6/17/09, Tracey L. Black <[email protected]> wrote:
From: Tracey L. Black <[email protected]>
Subject: RE: [TMIC] Transverse Myelitis Network
To: [email protected], [email protected], [email protected]
Date: Wednesday, June 17, 2009, 1:14 PM
As a caretaker/mother of a daughter who has had TM for 4 years now;
this saddens me to read this. I am also a member of the one Yahoo TM site b/c
for me it seems like it involves more children than adults and I can identify
more with their issues. Since my daughter was inflicted at the age of 11 and is
now 15 ½, I get lots of answers from the other site but also stay on this one
b/c I want to know what the future may hold for my daughter as an adult. I know
that we ALL have been saddened by the passing of Pam but this should not be a
time to bicker and a time for people to quit the site b/c they feel as though
they are traitors for checking out another site. There have been numerous times
that I have tried to unsubscribe and for some reason, it never works. Maybe I
am supposed to stay on this site for another reason. I know I don’t write very
much and maybe this email will just be taken with a grain of salt. Fortunately,
my daughter seems to have a much lighter case of TM than a lot of others on
this site. With that in mind, I still continue to read everyone’s emails b/c
they make me feel so much more blessed that my daughter didn’t get inflicted as
badly as others although she does deal with one or two of the symptoms. I can’t
imagine what most of you feel on a daily basis with the pain, fatigue, banding,
sweats, cold feelings etc. My daughter hasn’t had any pain, other than at
onset, and that was more of the tingling than anything. She is the typical 15
year old and walks, with assistance through high school every day (except for
now b/c school is over) and she still hangs out with her friends, she helps me
around the house and she even babysits the 4 year old and 1 year old boys next
door. She was confined to her wheelchair at one time but thanks to Dr. Kerr for
helping us get into the Kennedy Krieger Institute for Spinal Cord Injuries, she
has been walking for about 2 years. Time has flown by over the last 4 years
that it is hard to remember life before TM. I hope that everyone continues to
stay on this site b/c it is full of great information and great people that are
willing to answer any question that is ever asked. No one judges anyone for
asking questions.
As Pam would say !!!!!!!!!!!!!!!!!!TIAD!!!!!!!!!!!!!!!!!!!!!!!
Tracey L. Black
Certified Insurance Service Representative
Hockley & O'Donnell Insurance Agency
Phone- 717-334-6741, x 29
Fax-717-334-3414
My hours: 9:00 a.m. - 5:00 p.m.
Thank you for providing information to us. Please be aware that no
coverage is bound and no change to your insurance program is confirmed until
verified by a licensed agent during regular business hours. If you do not hear
from us within 1 business day, please re-contact us in case your information
has not been retained
From: [email protected] [mailto:[email protected]]
Sent: Wednesday, June 17, 2009 1:03 PM
To: [email protected]; [email protected]
Subject: Re: [TMIC] Transverse Myelitis Network
Jude,
First of all, I never said I PREFER the paraplegic/quadriplegic site.
I said I IDENTIFY more. I feel as though I offended you by saying this. There
are issues and concerns of being a quad they are not addressed in the TM site
and I would imagine it's because most people on this site are not
quadriplegics. I go where I can find the information that helps me. If I did
not want to be on this site, I could simply delete it from my contacts. There
is nothing holding me back. I have asked questions on here regarding autonomic
dysflexia, only to have no one respond. Because I later found out that it's a
medical condition for quadriplegics, so I went to the paraplegic/quadriplegic
site to get the answers I needed. I'm sure Jim uses these sites, HE CREATED
THEM! Where is his hostility?? He knew that there would be a need for
additional information, and that's all it is, is additional information.
I have been a member of this site, since I came home from the
hospital in 2006, but I am always looking for any and all information that
could be of help to me (as I'm sure all of us would be). There are people that
use this site that are also members on the Yahoo Transverse Myelitis site.
Should they just pick one or the other.
I have met many people through this site, one who has become my best
friend who has TM. I would not trade that for anything, but your e-mail makes
me feel as though I am unwelcomed or a traitor of sorts. This brings me to
tears. As I have poured my heart out on this site (reluctant to make my
personal problems public), but felt comfortable enough to share with others who
are, also suffering with relationship problems, pain and depression. That won't
happen again.
-----Original Message-----
From: [email protected]
To: [email protected]
Sent: Wed, Jun 17, 2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis Network
Then what is holding you back? Why don't you simply quit this
site and use the other one that you say you prefer? What's the big deal?
Jude
In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight
Time, [email protected] writes:
I am also a member of the paraplegic/quadriplegic website
that Jim has started. Although I have TM, which left me a quadriplegic, I
identify more with the members of the paraplegic quadriplegic site then with
the members of the TM site.
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis
--------------------------------------------------------------
An Excellent Credit Score is 750. See Yours in Just 2 Easy
Steps!
----------------------------------------------------------------------
Download the AOL Classifieds Toolbar for local deals at your
fingertips.
----------------------------------------------------------------------
Dell Days of Deals! June 15-24 - A New Deal Everyday!
