----- Forwarded Message ----
From: Amanda Diskey <[email protected]>
To: [email protected]
Sent: Wednesday, July 22, 2009 6:04:48 AM
Subject: hopkins visit


 
  
Hey everyone! I just got back from Hopkins a couple of days ago, and I have a 
couple of questions. First, I have 2 places on my spine C5-T2 and T9-T10 so he 
is testing me for NMO, ADEM and some others too I think, like lupus. What the 
hell is that? I looked it up and still didn't understand.  Is this all standard 
testing or do I freak out now? How long will it take them to find out once I 
get the blood drawn? It has been almost a year now since my attack (August 
11th). Has anyone else seen Dr. Vankatesan? That is who I seen, and I really 
wanted to meet Dr. Kerr, but the only person I got to meet was the lady that 
scanned my eyes! Anyway, he wants me to go to Shepherds and ride the FES Bike, 
has anyone done this and gotten good results? I looked on Shepherds website and 
they have a clinical trial with different robotic and manual locomotor 
training?, over ground gait training?, intense resistance and plyometric 
training?, and development
 sequencing?, and estim are being used to help with recovery, strengthening, 
spasm relief and you have to be at least one year post injury. I believe it is 
called the Beyond Therapy Program. What do you all think about these kinds of 
exercise programs? Has anyone tried anything like this? I am willing to try 
anything! Thanks for listening! Hope everyone is doing well and having a 
wonderful week:)
 
Amanda      



      

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