Amanda,
It doesn't matter if it is standard testing or looking for "specifics" testing.
You will know exactly what you will be
dealing with and how to treat it. You are in a perfect position right now
for someone that has a physical problem -
you are getting top-of-the-line help. If there is more than TM - and there
may well not be - they are not going to
usher you out the door. They are there to help you. Remember, the
testing doesn't change your body, it tells the
experts what is the best way to handle the body from that point on. You have
their expertise and our prayers.
Good luck, Janice
----- Original Message -----
From: Todd Tarno
To: [email protected] ; Amanda Diskey
Sent: Wednesday, July 22, 2009 1:56 PM
Subject: Re: [TMIC] Fw: hopkins visit
Is this all standard testing or do I freak out now?
Please don't freak out, until you get the results back and even then,
there are people on this list that do live with more than just TM. They will
let you know things that have worked for them. When you find out anything,
please let us know, so we may help you with that.
Any of the PT is always good. Once you get a PT, they will start your
exercising at your level at that time & your exercising will change as your
level gets better.
BIG Hugs,
Todd in CC,TX
--- On Wed, 7/22/09, Amanda Diskey <[email protected]> wrote:
From: Amanda Diskey <[email protected]>
Subject: [TMIC] Fw: hopkins visit
To: [email protected]
Date: Wednesday, July 22, 2009, 6:06 AM
----- Forwarded Message ----
From: Amanda Diskey <[email protected]>
To: [email protected]
Sent: Wednesday, July 22, 2009 6:04:48 AM
Subject: hopkins visit
Hey everyone! I just got back from Hopkins a couple
of days ago, and I have a couple of questions. First, I have 2 places on my
spine C5-T2 and T9-T10 so he is testing me for NMO, ADEM and some others too I
think, like lupus. What the hell is that? I looked it up and still didn't
understand. Is this all standard testing or do I freak out now? How long will
it take them to find out once I get the blood drawn? It has been almost a year
now since my attack (August 11th). Has anyone else seen Dr. Vankatesan? That is
who I seen, and I really wanted to meet Dr. Kerr, but the only person I got to
meet was the lady that scanned my eyes! Anyway, he wants me to go to Shepherds
and ride the FES Bike, has anyone done this and gotten good results? I looked
on Shepherds website and they have a clinical trial with different robotic and
manual locomotor training?, over ground gait training?, intense resistance and
plyometric training?, and development sequencing?, and estim are being used to
help with recovery, strengthening, spasm relief and you have to be at least one
year post injury. I believe it is called the Beyond Therapy Program. What do
you all think about these kinds of exercise programs? Has anyone tried anything
like this? I am willing to try anything! Thanks for listening! Hope everyone is
doing well and having a wonderful week:)
Amanda
