Jeron,
Listen to Rob, he is right that there is absolutely NO blame that can be put on
ourselves for TM or recurrences of it. Just do as the doc's say and remember
that you got better the first time and you will improve again the second time.
Just remember you have all of us here wanting you to get better,
which you will with time and, assuming, therapy. Remember, we have all had
our times of being really scared and wondering what the future will bring, but
you need to ask your family for strong support and help to get you through
this. With your strength and faith, your TM family will help you get
through this as well as your biological family. Please
keep us informed of your progress on good days and your mindset on bad days.
Hopefully we can help.
Janice
From: Robert Pall
Sent: Wednesday, March 24, 2010 2:43 PM
To: j ra ; Transverse Myelytis
Subject: RE: [TMIC] Hospital
Jeron:
I know you are terrified and I don't blame you....but please remember you
are not alone. When did you have your first onset? What tests did the Dr. give
you in determining his diagnosis? How old are you? And finally how are they
presently treating you (are they giving you steroids?). Keep your head
up....things will get better!
All the best!
Rob in New Jersey
--------------------------------------------------------------------------------
From: j ra [mailto:[email protected]]
Sent: Wednesday, March 24, 2010 3:10 PM
To: Transverse Myelytis
Subject: RE: [TMIC] Hospital
Good day my friends,
Got some bad news today. I returned to the hospital a couple of days ago
because I was feeling some pain and with TM, precaution is imperative.
My neurologist just confirmed recurrent TM. I was doing so good, I was doing
everything right, why me?
I hate this, I have to start all over again. I am scared. I don't know what to
do. My wife is terrified and my family is traumatised and it is all my
fault......
help me please...
Jeron
--------------------------------------------------------------------------------
Date: Tue, 23 Mar 2010 11:32:11 -0700
From: [email protected]
Subject: RE: [TMIC] Hospital
To: [email protected]
Hey Jeron,
Sorry to hear that you're in the hospital.
Herniated discs is got to be very painful on top of TM.
The drop foot will get better with exercises and the
pin & needle will get better with drugs. lol
Please keep us updated on your stay hospital.
We are thinking of you,
Todd in Corpus Christi, TX
--- On Tue, 3/23/10, j ra <[email protected]> wrote:
From: j ra <[email protected]>
Subject: RE: [TMIC] Children
To: [email protected], [email protected], "Transverse Myelytis"
<[email protected]>
Date: Tuesday, March 23, 2010, 3:14 AM
Hey all,
Firstly, I'm in the hospital again for more treatments (severe back
pain due to herniated discs and dragging right leg, pins and needles etc). I
asked Prof. Ivan about the connection and he disagrees based on many things he
started to explain that I may have been too drugged up to understand. So, I
asked him for medical journals on said topic and he reckons he has got some. I
will get back to you on this.
Also, stem cell research is still probably the only help for TMers with
chronic pain and disabilities directly attributed to TM and MS.
my 2 cents at 4 am at Clinica Sao Vincente Gavea, Rio de Janeiro, Brasil
Jeron
------------------------------------------------------------------------
From: [email protected]
To: [email protected]; [email protected]
Subject: Re: [TMIC] Children
Date: Mon, 22 Mar 2010 22:30:22 -0500
Jeepers! You do have a lot of autoimmune illnesses in your family.
Kind of scary. I really don't understand insurance companies.
They would be
really happy if they only had to insure very healthy people that have
no accidents of any kind. What a crock.
Janice
From: Pieter and Heather
Sent: Sunday, March 21, 2010 12:57 PM
To: Janice Nichols ; [email protected]
Subject: Re: [TMIC] Children
Janice,
I'm not sure about TM being passed on.
However, there are a lot of autoimmune illnesses in my immediate family.
I'm eldest of 3 girls (I'm going on 65).
My father had rheumtoild arthritis.
My sister 3 yrs younger has MS (was diagnosed in 1991 but figures she
had it much longer)
My sister 7 yrs younger was diagnosed with Ulcerative Colitis at age 19
and had large bowel and rectum removed then.
My daughter has none of the above. However, this past year she signed
up for extra medical insurance coverage and was denied MS coverage should she
get it in the future. She had to include on her application any illnesses in
her immediate family, mother, father, sibling. She had to declare that I have
TM. So that tells me that insurance companies anyway figure there could be a
connection.
Heather in Calgary
----- Original Message -----
From: Janice Nichols
To: [email protected]
Sent: Sunday, March 21, 2010 6:29 AM
Subject: [TMIC] Children
Good Morning. It is the first day of SPRING!!!!!
I have a question for you "smarter than me" TM'ers.
In the future, do we have any information on chances for our children
ending up with TM also?
Janice
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