Jeron,
I run counter to the belief that things happen for a reason... not
totally true but the reason is that everyone and everything in this
world ages, breaks down and comes to an end. the God of my
understanding does not punish us with disease, pestilence and
tragedy! those things are just part of nature. The dinosaurs
didn't deserve the asteroid, the Haitians weren't punished for the
sins of their ancestor's and none of us deserved TM.
I believe in a loving God who sees the other perspective: how
suffering can transform our soul and even 50 years of suffering is
over in the blink of an eye to a God who knows we can spend eternity
with him.
Some children are born already diseased and suffering, why was I
lucky enough to enjoy 47 years without any misery to speak of. Life
isn't fair but it is rich with things to experience and I have come
to the conclusion that I want to continue experiencing the wonders
around me in spite of having to endure the 24/7 pain TM has imposed
on me.
Jeron, you are in my prayers
Mindy the artisan
On Mar 24, 2010, at 11:00 PM, Janice Nichols wrote:
Jeron,
Listen to Rob, he is right that there is absolutely NO blame that
can be put on ourselves for TM or recurrences of it. Just do as
the doc's say and remember
that you got better the first time and you will improve again the
second time. Just remember you have all of us here
wanting you to get better, which you will with time and, assuming,
therapy. Remember, we have all had our times of being really
scared and wondering what the future will bring, but you need to
ask your family for strong support and help to get you through
this. With your strength and faith, your TM family will help
you get through this as well as your biological family. Please
keep us informed of your progress on good days and your mindset on
bad days. Hopefully we can help.
Janice
From: Robert Pall
Sent: Wednesday, March 24, 2010 2:43 PM
To: j ra ; Transverse Myelytis
Subject: RE: [TMIC] Hospital
Jeron:
I know you are terrified and I don't blame you....but please
remember you are not alone. When did you have your first onset?
What tests did the Dr. give you in determining his diagnosis? How
old are you? And finally how are they presently treating you (are
they giving you steroids?). Keep your head up....things will get
better!
All the best!
Rob in New Jersey
From: j ra [mailto:[email protected]]
Sent: Wednesday, March 24, 2010 3:10 PM
To: Transverse Myelytis
Subject: RE: [TMIC] Hospital
Good day my friends,
Got some bad news today. I returned to the hospital a couple of
days ago because I was feeling some pain and with TM, precaution is
imperative.
My neurologist just confirmed recurrent TM. I was doing so good, I
was doing everything right, why me?
I hate this, I have to start all over again. I am scared. I don't
know what to do. My wife is terrified and my family is traumatised
and it is all my fault......
help me please...
Jeron
Date: Tue, 23 Mar 2010 11:32:11 -0700
From: [email protected]
Subject: RE: [TMIC] Hospital
To: [email protected]
Hey Jeron,
Sorry to hear that you're in the hospital.
Herniated discs is got to be very painful on top of TM.
The drop foot will get better with exercises and the
pin & needle will get better with drugs. lol
Please keep us updated on your stay hospital.
We are thinking of you,
Todd in Corpus Christi, TX
--- On Tue, 3/23/10, j ra <[email protected]> wrote:
From: j ra <[email protected]>
Subject: RE: [TMIC] Children
To: [email protected], [email protected], "Transverse
Myelytis" <[email protected]>
Date: Tuesday, March 23, 2010, 3:14 AM
Hey all,
Firstly, I'm in the hospital again for more treatments (severe
back pain due to herniated discs and dragging right leg, pins and
needles etc). I asked Prof. Ivan about the connection and he
disagrees based on many things he started to explain that I may
have been too drugged up to understand. So, I asked him for medical
journals on said topic and he reckons he has got some. I will get
back to you on this.
Also, stem cell research is still probably the only help for TMers
with chronic pain and disabilities directly attributed to TM and MS.
my 2 cents at 4 am at Clinica Sao Vincente Gavea, Rio de Janeiro,
Brasil
Jeron
From: [email protected]
To: [email protected]; [email protected]
Subject: Re: [TMIC] Children
Date: Mon, 22 Mar 2010 22:30:22 -0500
Jeepers! You do have a lot of autoimmune illnesses in your
family. Kind of scary. I really don't understand
insurance companies. They would be
really happy if they only had to insure very healthy people that
have no accidents of any kind. What a crock.
Janice
From: Pieter and Heather
Sent: Sunday, March 21, 2010 12:57 PM
To: Janice Nichols ; [email protected]
Subject: Re: [TMIC] Children
Janice,
I'm not sure about TM being passed on.
However, there are a lot of autoimmune illnesses in my immediate
family.
I'm eldest of 3 girls (I'm going on 65).
My father had rheumtoild arthritis.
My sister 3 yrs younger has MS (was diagnosed in 1991 but figures
she had it much longer)
My sister 7 yrs younger was diagnosed with Ulcerative Colitis at
age 19 and had large bowel and rectum removed then.
My daughter has none of the above. However, this past year she
signed up for extra medical insurance coverage and was denied MS
coverage should she get it in the future. She had to include on
her application any illnesses in her immediate family, mother,
father, sibling. She had to declare that I have TM. So that tells
me that insurance companies anyway figure there could be a connection.
Heather in Calgary
----- Original Message -----
From: Janice Nichols
To: [email protected]
Sent: Sunday, March 21, 2010 6:29 AM
Subject: [TMIC] Children
Good Morning. It is the first day of SPRING!!!!!
I have a question for you "smarter than me" TM'ers.
In the future, do we have any information on chances for our
children ending up with TM also?
Janice
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