Hi!
I also was so glad to be able to feel a part of this unique group of wonderful
people. I was feeling so isolated with having a disease so rare. While we
are sorry
for the reason you found us, we will give you support in every way.
Many of us have the body temperature
problem. I get very hot and
sweaty from the shoulders up - the rest of me can feel cool to the touch. I
wear a clonidine patch on my arm to help regulate my body heat, but I don't
think it does
a lot for me, but I wear it anyway. I am from Missouri, so we are
neighbors. Just remember, as many of us have said
before to other new members,
there is nothing that has not been discussed among us. TM affects us in so
many ways - not just our walking. At least, if you want to discuss a
problem, whether
physical or emotional, there will always be someone that knows exactly what you
are talking about (probably most of us). No embarrassments here. We also
discuss medications we are taking, etc. I wish you were seeing your
neurologist sooner, but if your doctor is treating the symptoms, that is good.
We are your new friends and welcome you.
Janice, Missouri
From: Rev. Craig Crossman
Sent: Sunday, July 25, 2010 12:25 PM
To: [email protected]
Subject: [TMIC] TM Info request
Hello,
I was very glad to find this e-list. I am "new" to TM having been
diagnosed one year ago. We moved from PA to Kansas in April. This has been a
hot summer with 20+ days straight of temps in upper 90's to low 100's, and I
find I am having a greater number of symptoms than normal. Does anyone know if
TM patients are adversely affected by heat? My doctor is not very familiar with
TM and I won't see a neurosurgeon until September.
Thanks, and God bless.
Rev. Craig Crossman
First Baptist Church
615 W. Webster St.
Colby, KS 67701
W - (785)462-2867/ Cell - (785)443-5154
[email protected]
www.firstbaptistcolby.org
