Actually, Craig;
I know some here might object, but when persons ask, I just say MS, multiple sclerosis, because many of the symptoms are the same, although the progression is not. The reason is that when you say transverse myelitis, they go, "Oh, what's that?" and they sort of move away in case it's infectious. So, I say, "MS" and they say "Oh, right. Sorry to hear about it." Much better. Dalton _____ From: Jan Hargrove [mailto:[email protected]] Sent: Sunday, July 25, 2010 5:44 PM To: Rev. Craig Crossman; [email protected] Subject: Re: [TMIC] TM Info request Welcome Craig, Hope that first name basis is ok with you, cause we're family here. Sorry we had to meet this way, but you're lucky to have found this new family!! We, like no one else in your life, know what's going on with you......and that means a WHOLE bunch to all of us! No matter how you try to tell your loved ones or friends what's up, they can never fully understand, and might think you're making it up! Here, feel free to ask anything you might wonder about....... as snowflakes, no two of us are alike in symptoms etc, but someone will be able to relate to one question while another can answer something else. As for your question about temperature control, the only thing my nuero told me when he let me come home was that my temp control would never return. I was a complete at the t8 level (about the bra level) and in the summer I can only sweat from t8 up...I can't stay out in heat for long, heat stroke is a threat........then in cold weather, I'm always cold above that spot..........yet, my legs feel like fire at the bone level, while freezing on the outside......known here as the freeze/burning feeling. Enough of my babbling, just ask whatever is bothering you and someone will be able to help. P.S. I live in OK so I'm well aware of the heat you have in KS!! Also you must listen to your body and not overdo....we all try in the beginning to be who we were before, but that isn't feasible..........so rest as needed, that's your new reality. I'm not saying you'll not get some improvement.....at 14+ I still get some 'new' feeling. janh Stillwater, OK _____ From: Rev. Craig Crossman <[email protected]> To: [email protected] Sent: Sun, July 25, 2010 12:25:39 PM Subject: [TMIC] TM Info request Hello, I was very glad to find this e-list. I am "new" to TM having been diagnosed one year ago. We moved from PA to Kansas in April. This has been a hot summer with 20+ days straight of temps in upper 90's to low 100's, and I find I am having a greater number of symptoms than normal. Does anyone know if TM patients are adversely affected by heat? My doctor is not very familiar with TM and I won't see a neurosurgeon until September. Thanks, and God bless. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 [email protected] www.firstbaptistcolby.org <http://www.firstbaptistcolby.org/>
