I too have a very caring boss. And I am in the same position: Worse days - bed - maybe not in fetal position, but curled up somewhat. Bad days - off to work, hoping I don't make a huge mistake that buggers the whole company.
I have noticed though, that my ability to drive long distances ( more than one hour ) is becoming potentially deadly. Twice on a trip to a city 2.5 hours away I "woke" up across the center line, with oncoming traffic. Boy did I thank my God. Now I only drive around town, and maybe within a 50 mile radius. So my hat is off to you, John, for being able to drive that rig, on meds. The whole thing of ability and strength, numbness yet pain, walking but using up energy to force that leg to take a step - it just doesn't make any sense. Janet From: john snodgrass [mailto:[email protected]] Sent: August 2, 2010 1:59 PM To: transverse myelitis Subject: RE: [TMIC] pause from the cause i tell people that i have my bad days and my worse days. worse days are usually in a fetal position. bad days ,I'm driving a tractor and hoping to God I don't hurt anyone. it doesn't look very promising when your stumbling around to get to the truck, my boss has been very caring. I can't afford to be on disability but someday I may not have that choice. It just doesn't make sense to have strength yet with all this disabling pain. The meds allow me to function but they don't take away the pain. glad I have a place to vent where others know exactly what your talking about. --- On Mon, 8/2/10, Robert Pall <[email protected]> wrote: From: Robert Pall <[email protected]> Subject: RE: [TMIC] pause from the cause To: "john snodgrass" <[email protected]>, "transverse myelitis" <[email protected]> Date: Monday, August 2, 2010, 4:49 PM Next month it will be 13 years for me....and for every minute of every day while I am awake I am conscious of my discomforts...you just sort of become familiarr with it and really notice it most when there is even a slight change better or worse. Rob in New Jersey _____ From: john snodgrass [mailto:[email protected]] Sent: Monday, August 02, 2010 4:45 PM To: transverse myelitis Subject: [TMIC] pause from the cause Does anyone ever have moments that they don't feel anything? Moments of "no pain" but then you move and shazam! there it is again?
