I have days when I am fairly active and once every couple of weeks I end up
staying pretty quiet all day. Can't really put my finger on what the problem
is, but I am
also really, really tired. No necessarily sleepy, just really tired.
Also, John, I don't see how you work like you do and keep going. I know it
really has to be tough on you. When can you retire?
Janice
From: john snodgrass
Sent: Monday, August 02, 2010 3:58 PM
To: transverse myelitis
Subject: RE: [TMIC] pause from the cause
i tell people that i have my bad days and my worse days.
worse days are usually in a fetal position.
bad days ,I'm driving a tractor and hoping to God I don't hurt anyone.
it doesn't look very promising when your stumbling around to get to the
truck, my boss has been very caring.
I can't afford to be on disability but someday I may not have that choice.
It just doesn't make sense to have strength yet with all this disabling
pain.
The meds allow me to function but they don't take away the pain.
glad I have a place to vent where others know exactly what your talking
about.
--- On Mon, 8/2/10, Robert Pall <[email protected]> wrote:
From: Robert Pall <[email protected]>
Subject: RE: [TMIC] pause from the cause
To: "john snodgrass" <[email protected]>, "transverse myelitis"
<[email protected]>
Date: Monday, August 2, 2010, 4:49 PM
Next month it will be 13 years for me....and for every minute of every
day while I am awake I am conscious of my discomforts...you just sort of become
familiarr with it and really notice it most when there is even a slight change
better or worse.
Rob in New Jersey
------------------------------------------------------------------------
From: john snodgrass [mailto:[email protected]]
Sent: Monday, August 02, 2010 4:45 PM
To: transverse myelitis
Subject: [TMIC] pause from the cause
Does anyone ever have moments that they don't feel anything?
Moments of "no pain" but then you move and shazam! there it is
again?
