Hang in there, Janice!  We're with you.  Write me (or us) as the need
arises.

 

By the way, I just took possession of a fat rollerball pen, so now I can
write something like normal.  This purchase was actuated by having to write
a note for the neurologist, who was out that day.  I looked at the note-the
scribbles trying to be words, leaning this way and that-and just tore it up,
and said I'd call him.  I now have a fat pencil and fat pen for writing
which gives me more control.  (Do this letter-good, now this one-good . . .
.)

 

And I have had to write notes a lot lately because of getting one spasm
after another for days, which makes it impossible to speak; and when speech
is attempted it just brings on more convulsions.  But they've relented and
it's been almost 24 hours without a seizure-24 and counting!

 

See ya

 

Dalton

 

 

  _____  

From: Janice Nichols [mailto:[email protected]] 
Sent: Thursday, August 05, 2010 11:24 PM
To: [email protected]
Cc: [email protected]
Subject: Re: [TMIC] pause from the cause

 

This is the pits!     Sure glad I have a lot of TM'ers to share it with.

Janice

 

 

From: [email protected] 

Sent: Thursday, August 05, 2010 6:17 AM

To: Janice <mailto:[email protected]>  Nichols 

Cc: [email protected] 

Subject: Re: [TMIC] pause from the cause

 


   Over the years,I've had times when things got a little better for a
while,then got worse and stayed that way.

   For years I walked in the house without any devices,then went to a
cane,and now a walker. I'm sure if I lost weight I'd be able to do better.

   My right leg is the "strong" one,and that isn't saying much these days.
:) 

     Cheryl

--- On Wed, 8/4/10, Janice Nichols <[email protected]> wrote:


From: Janice Nichols <[email protected]>
Subject: Re: [TMIC] pause from the cause
To: [email protected]
Date: Wednesday, August 4, 2010, 11:11 PM

A month or so ago I had a span when I was pretty strong.    I went to HyVee
and walked the cart like you did.   I was so proud.     Now I am in a
recession and not

strong enough to do it again.    My right leg has decided to weaken.    We
are not sure why - could be a ham string, but after a session of PT it was
much better, then

all of a sudden, it went weak.     Anything like that happen to you  -  or
any TM'ers?

Janice

 

From: [email protected]
<http://us.mc581.mail.yahoo.com/mc/[email protected]>  

Sent: Wednesday, August 04, 2010 8:07 PM

To: Janice Nichols
<http://us.mc581.mail.yahoo.com/mc/[email protected]>  

Subject: Re: [TMIC] pause from the cause

 


   I use a walker all the time,even walking in my house. I never know when
my legs will fail me.At the store I put the walker in the cart.Today I just
had 4 things to get,so I used the regular cart and kept it close to my body.

     Cheryl

--- On Wed, 8/4/10, Janice Nichols <[email protected]
<http://us.mc581.mail.yahoo.com/mc/[email protected]> >
wrote:


From: Janice Nichols <[email protected]
<http://us.mc581.mail.yahoo.com/mc/[email protected]> >
Subject: Re: [TMIC] pause from the cause
To: [email protected]
Date: Wednesday, August 4, 2010, 7:14 PM

Good girl!!      Do you do that with a cane or walker or wheelchair?

Janice

 

From: [email protected]
<http://us.mc581.mail.yahoo.com/mc/[email protected]>  

Sent: Wednesday, August 04, 2010 6:35 AM

To: Janice Nichols
<http://us.mc581.mail.yahoo.com/mc/[email protected]>  

Subject: Re: [TMIC] pause from the cause

 



Hi Janice,

    I usually have my daughter Lynn do my grocery shopping since the store
is so spread out.But I needed several items in Walmart and I wanted to get
out of the house for a while. 

   I just came back from the local grocery store;got all I needed at one
end,was out in less than 10 min.

     Cheryl in hot,humid Easthampton,MA.

--- On Tue, 8/3/10, Janice Nichols <[email protected]> wrote:


From: Janice Nichols <[email protected]>
Subject: Re: [TMIC] pause from the cause
To: [email protected], "john snodgrass" <[email protected]>
Cc: [email protected]
Date: Tuesday, August 3, 2010, 11:22 PM

Cheryl,

I am sure that those who saw you fall, or just afterward, thought that you
had a lot of guts to get out and shop.      I hope this doesn't keep you
from going

again.    You go girl!!!!!

Janice

 

From: [email protected]
<http://us.mc581.mail.yahoo.com/mc/[email protected]>  

Sent: Monday, August 02, 2010 5:12 PM

To: john snodgrass
<http://us.mc581.mail.yahoo.com/mc/[email protected]>  

Cc: [email protected]
<http://us.mc581.mail.yahoo.com/mc/[email protected]>  

Subject: Re: [TMIC] pause from the cause

 


Hi John,

   I wish I could say I had no pain for even a few seconds. But,from the
moment I open my eyes until I go to sleep the burning
pain,numbness,tingling,and "banding" are my constant companions.

   Today is a really bad day. Yesterday I went to Walmart with my daughter
Lynn.While walking down an aisle,the cart got ahead of me somehow,and the
next thing I knew I was flat on the floor. It almost felt like there was a
slant to the floor.

I let go of the cart so it wouldn't fall over with me.So there I was ,lying
face down.Only one person stopped to help.She held her cart,Lynn held mine
and I tried to push up on my "good" leg,but couldn't do it. Lynn went and
got an employee who brought an automated cart,and I was able to get up by
leaning on the seat and pushing up.

   Today I am bruised on my legs and forearms,and achy all over.But,I am so
thankful I didn't break any bones.Lynn says she never saw anyone fall "in
one piece" without bending knees.Scared her;she thought I was having a
stroke or heart attack.

     Cheryl in Easthampton,MA.

--- On Mon, 8/2/10, john snodgrass <[email protected]> wrote:


From: john snodgrass <[email protected]>
Subject: [TMIC] pause from the cause
To: "transverse myelitis" <[email protected]>
Date: Monday, August 2, 2010, 4:45 PM


Does anyone ever have moments that they don't feel anything?

Moments of "no pain"  but then you move and shazam! there it is again? 









 

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