Seems like there should be something you can do. Hope this is short lived. Janice
From: [email protected] Sent: Friday, August 06, 2010 8:52 PM To: Janice Nichols Cc: [email protected] Subject: Re: [TMIC] pause from the cause When i was in rehab they tried regular pain meds and they didn't help. Then had a trial of anti depressants they said helped nerve pain,but they caused burinary retention. So,no pain meds for me. It has been possible for me in the past to "block out" pain and banding by keeping busy reading watching tv,etc. But since the fall,I've been suffering. Cheryl --- On Fri, 8/6/10, Janice Nichols <[email protected]> wrote: From: Janice Nichols <[email protected]> Subject: Re: [TMIC] pause from the cause To: [email protected], "john snodgrass" <[email protected]> Cc: [email protected] Date: Friday, August 6, 2010, 8:59 PM Do you take pain meds? Do they help? I am not a pill pusher, but the doc's have given me vicatin for pain and it helps. I am relapsing right now - from being the strongest I have ever been to weak. Am still going to PT and they are trying their best, within my limits, to help me get the strength back. I am really fighting depression from going to my best to where I am now - no fun. But, I am still working to improve again. Janice From: [email protected] Sent: Friday, August 06, 2010 10:40 AM To: john snodgrass Cc: [email protected] Subject: Re: [TMIC] pause from the cause tm is a pain in more way than one. the burning pain and banding have been much worse since my fall,and i ache all over esp. my upper left arm.just glad no bones broke. cheryl --- On Thu, 8/5/10, john snodgrass <[email protected]> wrote: From: john snodgrass <[email protected]> Subject: Re: [TMIC] pause from the cause To: "[email protected]" <[email protected]> Cc: "transverse myelitis" <[email protected]> Date: Thursday, August 5, 2010, 7:04 PM after work i went to Kroger pharm to get some meds. i walked to the back of the store with my wife and wondered if i would make it back out. it truely is an aggravating feeling when you feel your legs begin to spas in a wierd kind of way when they have been oddly numb all day. pain in back and side,thigh tightening and pain like a charlie horse,knee stiffening,calf busting and foot swelling. nothing like it. --- On Thu, 8/5/10, [email protected] <[email protected]> wrote: From: [email protected] <[email protected]> Subject: Re: [TMIC] pause from the cause To: "Janice Nichols" <[email protected]> Cc: [email protected] Date: Thursday, August 5, 2010, 7:17 AM Over the years,I've had times when things got a little better for a while,then got worse and stayed that way. For years I walked in the house without any devices,then went to a cane,and now a walker. I'm sure if I lost weight I'd be able to do better. My right leg is the "strong" one,and that isn't saying much these days. :) Cheryl --- On Wed, 8/4/10, Janice Nichols <[email protected]> wrote: From: Janice Nichols <[email protected]> Subject: Re: [TMIC] pause from the cause To: [email protected] Date: Wednesday, August 4, 2010, 11:11 PM A month or so ago I had a span when I was pretty strong. I went to HyVee and walked the cart like you did. I was so proud. Now I am in a recession and not strong enough to do it again. My right leg has decided to weaken. We are not sure why - could be a ham string, but after a session of PT it was much better, then all of a sudden, it went weak. Anything like that happen to you - or any TM'ers? Janice From: [email protected] Sent: Wednesday, August 04, 2010 8:07 PM To: Janice Nichols Subject: Re: [TMIC] pause from the cause I use a walker all the time,even walking in my house. I never know when my legs will fail me.At the store I put the walker in the cart.Today I just had 4 things to get,so I used the regular cart and kept it close to my body. Cheryl --- On Wed, 8/4/10, Janice Nichols <[email protected]> wrote: From: Janice Nichols <[email protected]> Subject: Re: [TMIC] pause from the cause To: [email protected] Date: Wednesday, August 4, 2010, 7:14 PM Good girl!! Do you do that with a cane or walker or wheelchair? Janice From: [email protected] Sent: Wednesday, August 04, 2010 6:35 AM To: Janice Nichols Subject: Re: [TMIC] pause from the cause Hi Janice, I usually have my daughter Lynn do my grocery shopping since the store is so spread out.But I needed several items in Walmart and I wanted to get out of the house for a while. I just came back from the local grocery store;got all I needed at one end,was out in less than 10 min. Cheryl in hot,humid Easthampton,MA. --- On Tue, 8/3/10, Janice Nichols <[email protected]> wrote: From: Janice Nichols <[email protected]> Subject: Re: [TMIC] pause from the cause To: [email protected], "john snodgrass" <[email protected]> Cc: [email protected] Date: Tuesday, August 3, 2010, 11:22 PM Cheryl, I am sure that those who saw you fall, or just afterward, thought that you had a lot of guts to get out and shop. I hope this doesn't keep you from going again. You go girl!!!!! Janice From: [email protected] Sent: Monday, August 02, 2010 5:12 PM To: john snodgrass Cc: [email protected] Subject: Re: [TMIC] pause from the cause Hi John, I wish I could say I had no pain for even a few seconds. But,from the moment I open my eyes until I go to sleep the burning pain,numbness,tingling,and "banding" are my constant companions. Today is a really bad day. Yesterday I went to Walmart with my daughter Lynn.While walking down an aisle,the cart got ahead of me somehow,and the next thing I knew I was flat on the floor. It almost felt like there was a slant to the floor. I let go of the cart so it wouldn't fall over with me.So there I was ,lying face down.Only one person stopped to help.She held her cart,Lynn held mine and I tried to push up on my "good" leg,but couldn't do it. Lynn went and got an employee who brought an automated cart,and I was able to get up by leaning on the seat and pushing up. Today I am bruised on my legs and forearms,and achy all over.But,I am so thankful I didn't break any bones.Lynn says she never saw anyone fall "in one piece" without bending knees.Scared her;she thought I was having a stroke or heart attack. Cheryl in Easthampton,MA. --- On Mon, 8/2/10, john snodgrass <[email protected]> wrote: From: john snodgrass <[email protected]> Subject: [TMIC] pause from the cause To: "transverse myelitis" <[email protected]> Date: Monday, August 2, 2010, 4:45 PM Does anyone ever have moments that they don't feel anything? Moments of "no pain" but then you move and shazam! there it is again?
