Linda, where are you at in Texas? I am in Splendora Tx. You need to call your doctor and see if you may need a round of steriods to reverse the numbness and weakness. I have taken prenisone several times and it has helped. Jane Splendora Tx TM since April 26, 1998 - 12 years In a message dated 10/6/2010 5:08:14 P.M. Central Daylight Time, [email protected] writes:
It was 6 years for me in April. I do pretty well most of the time but when my symptoms get worse, it can be hard to be positive. I have had increased numbness & weakness in my hands that now sometimes goes into my arms & the body fatigue is back with a vengence, but I try to live with it. There is no use calling the nuerologist -he just says I am worse, orders another MRI & then calls saying the MRI is improving (???). I miss most being able to using my hands easily - I used to do all kinds of crafts - crossstitch, scraping booking , & sewing - it is almost impossible now. I had to retire from a wonderful job. I hate having to ask for help with things. So much for the pitty party - I try to remember NOT why God did this to me , but why he did this FOR me - there has to be a purpose. Linda E. - Texas ____________________________________ From: "[email protected]" <[email protected]> To: [email protected] Cc: [email protected] Sent: Wed, October 6, 2010 9:49:10 AM Subject: [TMIC] 6th anniversary Hi, It's been 15 yrs for me,and I still mourn for the losses. Not all the time,but it is especially sad for me around this time of year. Good old seasonal affective disorder;It gets dark earlier. Plus,this week has been rainy and gloomy,so that has me down. The hardest part for me is that unless you have tm,you don't "get it". The unrelenting tiredness,burning pain,numbness,tingling,tightness,etc. My sister once said she "couldn't stand to have the numbness all the time." I said there isn't a choice,it's reality,and you learn to accept it. I thank God for the TMIC;I'd be adrift in a sea of loneliness without all of you. Cheryl in rainy (again) Easthampton,MA --- On Wed, 10/6/10, [email protected] <[email protected]> wrote: From: [email protected] <[email protected]> Subject: [TMIC] 10-06-04, the 6th anniversary TM came into my life. To: "TMIC" <[email protected]> Date: Wednesday, October 6, 2010, 3:10 AM 10-06-04, today is the 6th anniversary TM (Transverse Myelits) came into my life. I live in Atlanta and was on a business trip to Dallas . I would have never thought that waking up; putting my feet on the ground one Wednesday morning would have changed my life so much. I would like to say is thank you to my husband Brian, my rock that keeps me grounded. I could not have made it thru this without him by my side and support. To God for bringing Brian into my life 24 years ago, and to friends and family and my extended TM family that have stuck by me regardless of what this spinal cord disease has thrown at me. There are days that it seems like it’s been forever and I can not remember walking, running, riding a bike, ect and days that it seems like I just woke up and realized life as I knew it would never be the same. I still have days I mourn for the loss of the life style I had but at the same time blessed at how much appreciation for life has been given me. I know I am blessed that this disease did leave me one good leg that I can use a walker for short distances around the house, but need a wheel chair for distance/public use. By reading so many TM stories on this site I do not feel as alone with the pain, frustration, and just plain old bad days as I read other stories and puts my issues back in perspective. Thanks again to my TM family for always being there and sometimes that extra kick in the rear when the pity party starts! So a journey in life began, but the adventure continues Love and bless you all Kim/Atlanta TM T-10
