Okay, guys, I think that we are all getting a little different answers to our
questions when talking to the doc's. I wonder if some of the answers aren't
just
"spur of the moment" replies, because they aren't sure and want to give an
answer. Remember how "rare" TM is.
Maybe Dr. Frank should get in on this. I would trust his answers.
Janice
From: john snodgrass
Sent: Wednesday, November 10, 2010 4:02 AM
To: transverse myelitis
Subject: Re: [TMIC] hello out there
i have asked my Dr a couple of times why i have the symptoms with no
lesions and he said it was because of the nerves damaged from the TM
--- On Tue, 11/9/10, Dalton Garis <[email protected]> wrote:
From: Dalton Garis <[email protected]>
Subject: Re: [TMIC] hello out there
To: "L T CHERPESKI" <[email protected]>, [email protected], "Carol E"
<[email protected]>
Date: Tuesday, November 9, 2010, 11:19 PM
So, I have all the symptoms;
But no lesions. OK, I’m stumped, except that the brainstem lesions are
still there.
Dalton
------------------------------------------------------------------------
From: L T CHERPESKI <[email protected]>
Date: Tue, 9 Nov 2010 21:16:00 -0700
To: Dalton Garis <[email protected]>, <[email protected]>, Carol
E <[email protected]>
Subject: Re: [TMIC] hello out there
Resent-From: <[email protected]>
Resent-Date: Tue, 9 Nov 2010 20:17:15 -0800
This is what I have been told also. My lesions can still be seen but
they are inactive (C4,5,6). I was told they are like a scar. However, I've
seen posts where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness -
it's just that some days are better than others. It's going on 9 years for me.
Hope you get to feeling better!
Linda in Eagle, ID
----- Original Message -----
From: Carol E <mailto:[email protected]>
To: [email protected] ; [email protected]
Sent: Tuesday, November 09, 2010 9:04 PM
Subject: RE: [TMIC] hello out there
Hi Dalton and all,
I was 1st diagnosed with TM June 2005. I had lesions from T7-T10.
Every time I have new MRI's, I am always told that I have no new lesions, but
they can still see the old ones which are inactive. So I would say the
lesions do not go away, they are there like a scar.
Carol in Addison, IL
----------------------------------------------------------------------
Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out there
From: [email protected]
To: [email protected]; [email protected]; [email protected]
Hey, Janice!
We missed you. And I missed you. Glad to have you back with us.
I have a question for everyone. A recent set of MRIs showed that my
spine in the thoracic was clear with no lesions or swellings. It has been one
year since the diagnosis for TM.
Do these lesions clear up later on, or did somebody make a mistake
somewhere? Because my everyday symptoms are still weakness and pain from
fingers to just above the elbow, and from toes to above the knees with banding
and burning in the torso and back. And if I exercise at all, the next day I
am in for day-long spasms that leave me housebound and often unable to get
around without assistance of my dear part-time maid and helper.
Could someone get back to me on this?
Thanks a lot.
Dalton
----------------------------------------------------------------------
From: Janice Nichols <[email protected]
<http://[email protected]> >
Date: Tue, 9 Nov 2010 19:28:29 -0600
To: Dalton Garis <[email protected] <http://[email protected]>
>, Barbara Alma <[email protected] <http://[email protected]> >,
<[email protected] <http://[email protected]> >
Subject: Re: [TMIC] hello out there
I do too, Dalton. You have a different set of problems that I
have not heard in other TM'ers. Sure wish you would get you act together
- scares me!!!
Seriously, I hope that is the last day you will have like that.
Janice
From: Dalton Garis <mailto:[email protected]>
Sent: Sunday, November 07, 2010 10:23 AM
To: Barbara Alma <mailto:[email protected]> ; [email protected]
<http://[email protected]>
Subject: Re: [TMIC] hello out there
Actually;
I had a day-long attack of spasms yesterday which left me unable to
control either my hands and arms, legs, torso or speech. Every time I tried
to talk I would cramp up. And Elvis was definitely being channeled in my body.
Thank heavens I had the assistance of a very nice and strong maid who visits
me once a week. It was her day to visit and she stayed with me and helped me
to the bathroom and into and out of chairs. It was hard to sit down because I
couldn’t make my body bend and I’d just slide off. But we got it under
control. She had to help me drink and eat. I would grab the coffee cup
handle and then could not make my hand let go.
In the mean time I was so grateful for her assistance and that the
Lord was taking care of me that I was also as high as a kite and proposing
marriage to chairs and such.
Today was the beginning of the work week here (Abu Dhabi) and I did
alright. But the lecture kept going off on these tangents making it hard for
my class to take useful notes. It was because my mental state was still
flying around the cosmos.
What is going on here? OK, I have TM in my upper spine; but what is
this mental derangement stuff? I sure wish the drs could find out what is
wrong with me.
Dalton
----------------------------------------------------------------------
From: Barbara Alma <[email protected] <http://[email protected]> >
Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT)
To: <[email protected] <http://[email protected]> >
Subject: [TMIC] hello out there
Resent-From: <[email protected] <http://[email protected]> >
Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700
Well, I guess since nobody has written in that all must be going
well for everyone. It's very good to hear this. I do think that it is a good
idea to keep this list going though in case there are any newbies who may need
us and don't think there is anyone here to listen to them.
If a couple of days pass without any messages, let's send in a
message or two.
Hugs, Barbara A in Auburn CA
