I am so happy for you I could cry - I think I am. It sounds as though your PT lady is an answer to all your prayers. After 5 years of no help, I know it will time for you to really see any significant improvement, but I know it will come. It will mean a LOT of hard work, but I know you are up to it. Keep up the hard work and try not to get discouraged. Please keep us informed so we can celebrate with you any improvements.
Patti - Wisconsin From: Akua [mailto:[email protected]] Sent: Wednesday, January 26, 2011 7:50 PM To: James Berg; [email protected] Subject: Re: [TMIC] Returns WOW! wow wow! So so similar. Thank you ever so very much for sharing these insights!!! It is so affirming to hear my symptoms described--- yes humming and thrumming! GReat solutions! What is the name of your pedal machine? My PT came today and brought a walker. She wanted me to try to stand. I am near tears of joy to recount this --- there's no way I could do this, but it just meant SO MUCH to be seen as a person who could be assisted and improved vs. being denied, derided or dismissed. I pulled it close and talked about how the farme need to fit around me, vs be in fonr of me. You can't stand on jello, she mused. So we talked about isometrics--- she asked me to push my extended leg ( that she held) down against her hand. I tried and saw nothing... but she said she felt flutterings. So i did these several times on each leg --she felt flutterings. BUT I FELT THE PULSE MOVE FROM MY THIGH TO THE BACK OF MY CALF. I offer up prayers and praise. She is going to give me another series of exercises that i can do in bed to reawaken these connections. She talked about a stimulation machine that makes the muscles contract. Again these are things that were never done for me in the five years of TM paralysis. Thanks again, for chiming in! That we heal and that all be well, Akua So familiar--my wife does my pt because I cannot afford $1600/day for a live in PT facility that was prescribed for me. I know all about the buzzing--I call it humming in my feet and the stronger thrumming in my legs. But my wife found a solution for feet jumping off the wheel chair. I use a regular chair in the house and she uses a velcro back brace (the kind with no shoulder straps) and wraps it around the legs of the wheel chair and my legs. Works! I also have a "Jazzy" electric wheel chair that we bought second hand from Craigs List for a $1000 that I use for outdoor activities like my grandsons ball games and trips to Cost Co. Here's the neat part. She screwed a pair of sandals onto foot rest of the Jazzy and straps my feet in so they can't jump out. We also bought a pedal machine and she put sandals on that as well because my feet wouldn't stay on it. $100 for the pedal machine 25 for the slippers. It moves my legs for me and I am now doing 30 minutes at top speed twice a day. It will keep your legs from shrinking. I also contacted Redman about a standup electric wheel chair and found it cost $28,000. I passed. Jim -- --
