thank you for the information!
Wow wow wow!
I hope to be able to do that too!
it would be wondrful to wiggle toes!
The Pedal Machine is called SUNNY, bought it through Amazon and got
free freight.
I can wiggle my toes now and even pull my leg, left only, back about
6 inches and then extend it again.
good luck
On Wed, Jan 26, 2011 at 3:49 PM, Akua
<<mailto:[email protected]>[email protected]> wrote:
WOW! wow wow!
So so similar.
Thank you ever so very much for sharing these insights!!!
It is so affirming to hear my symptoms described--- yes humming and thrumming!
GReat solutions!
What is the name of your pedal machine?
My PT came today and brought a walker. She wanted me to try to
stand. I am near tears of joy to recount this --- there's no way I
could do this, but it just meant SO MUCH to be seen as a person who
could be assisted and improved vs. being denied, derided or
dismissed.
I pulled it close and talked about how the farme need to fit around
me, vs be in fonr of me.
You can't stand on jello, she mused.
So we talked about isometrics--- she asked me to push my extended
leg ( that she held)
down against her hand. I tried and saw nothing... but she said she felt
flutterings.
So i did these several times on each leg --she felt flutterings.
BUT I FELT THE PULSE MOVE FROM MY THIGH TO THE BACK OF MY CALF.
I offer up prayers and praise.
She is going to give me another series of exercises that i can do in
bed to reawaken these connections.
She talked about a stimulation machine that makes the muscles contract.
Again these are things that were never done for me in the five years
of TM paralysis.
Thanks again, for chiming in!
That we heal and that all be well,
Akua
So familiar--my wife does my pt because I cannot afford $1600/day
for a live in PT facility that was prescribed for me. I know all
about the buzzing--I call it humming in my feet and the stronger
thrumming in my legs. But my wife found a solution for feet
jumping off the wheel chair. I use a regular chair in the house
and she uses a velcro back brace (the kind with no shoulder straps)
and wraps it around the legs of the wheel chair and my legs. Works!
I also have a "Jazzy" electric wheel chair that we bought second
hand from Craigs List for a $1000 that I use for outdoor activities
like my grandsons ball games and trips to Cost Co. Here's the neat
part. She screwed a pair of sandals onto foot rest of the Jazzy and
straps my feet in so they can't jump out.
We also bought a pedal machine and she put sandals on that as well
because my feet wouldn't stay on it. $100 for the pedal machine 25
for the slippers. It moves my legs for me and I am now doing 30
minutes at top speed twice a day. It will keep your legs from
shrinking.
I also contacted Redman about a standup electric wheel chair and
found it cost $28,000. I passed.
Jim
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