John, as long as your doc knows what you are taking and he agrees with it, 
don’t feel guilty with what meds you take.     I really think things will get 
better as time goes on.
Janice

From: john snodgrass 
Sent: Saturday, January 29, 2011 2:34 PM
To: transverse myelitis 
Subject: Re: [TMIC] not testing not resting

      one of the most aggravating things to me is when you feel like things are 
easing up to the point that you feel your meds in your head so then you start 
backing off of it a little then you are under attack just as soon as you 
do,,all you can think is,,perhaps next time.

      --- On Sat, 1/29/11, Janice Nichols <[email protected]> wrote:


        From: Janice Nichols <[email protected]>
        Subject: Re: [TMIC] not testing not resting
        To: "Dalton Garis" <[email protected]>, "john snodgrass" 
<[email protected]>, "transverse myelitis" <[email protected]>
        Date: Saturday, January 29, 2011, 10:31 AM


        Dalton, John,
        I really feel for both of you.    I don’t get hit like that very often. 
   Hope it subsides as time goes by – bet it will.
        Janice

        From: Dalton Garis 
        Sent: Friday, January 28, 2011 10:10 PM
        To: john snodgrass ; transverse myelitis 
        Subject: Re: [TMIC] not testing not resting

        I have to share with you my attempt at cutting back on my high intake 
of pregabalin.  I thought I was going great guns for about two days, then I 
awoke with my skin on fire and electrical shock torture in limbs, torso and 
neck.  I didn’t even know what was going on.  Then, I gobbled a couple of 
pregabalin and waited.  In a couple of hours the pains subsided.

        Hooked for life, I guess. No way to get off any of it.

        Dalton

        From: john snodgrass <[email protected]>
        Date: Wed, 26 Jan 2011 19:43:57 -0800 (PST)
        To: transverse myelitis <[email protected]>
        Subject: [TMIC] not testing not resting
        Resent-From: <[email protected]>
        Resent-Date: Wed, 26 Jan 2011 19:43:55 -0800


              this weather has taken a toll on me. im ready to just be frozen 
into a block of ice and forgotten....the pain is over riding all my meds,maxed 
out on baclofin,maxed out on neurontin, dr getting on my case over the no good 
narcotics,,nerve pills not worth a hoot...

              but the elders in this list,,which may not be older,just tmr's 
longer than me know this and they are still here so i must go on.

              Wim from holland,,nmo offense at all,,I am what is considered a 
"Red-neck" I really am.

              born that way.

              so dont take any offense to any of this,dont take it personlally.

              I love you man and i mean it so that means it would just get 
worse.


              just ask Bobby   ;)

              sometimes the foolishness takes the edge off 

              sometimes it dont.

              we all hurt,,serriously 

     

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