Tracy, I take gabapentin for nerve pain and baclofen for spasms in the legs. The spasms are worse at nite and it does make your leg/legs feel hot. The baclofen will definitely help her a lot. What medications is she taking? My doctor did not have me on baclofen until I described what I was feeling and not able to sleep. Baclofen is a blessing. Sometimes it takes a while to come up with the right amount to control the spasms.
Emily and Tracy – on the baclofen, I am now taking 2 or 3 pills (10 mg each) around 8:30pm. I used to take more. I don’t take them during the day. Tracy – is your mom able to walk unassisted? If not, what does she use? Would she get on the website and talk to us herself? And, do you go with her to her doctor’s appointments? That would help you and you could ask questions that your mom may have problems with. I would love to be at your house helping both of you – we all know so well what you are going through. Janice From: [email protected] Sent: Tuesday, March 29, 2011 8:49 PM To: [email protected] ; 'transverse myelitis' Subject: Re: [TMIC] OT ? I take up to 100 mg a day and the only side effects I have is hungry all the time Sent from my Verizon Wireless BlackBerry -------------------------------------------------------------------------------- From: "Emily" <[email protected]> Date: Tue, 29 Mar 2011 21:47:03 -0400 To: 'transverse myelitis'<[email protected]> ReplyTo: <[email protected]> Subject: RE: [TMIC] OT ? Regarding Baclofin…..the physical therapist suggested that my husband ask his doctor for Baclofin due to the spasms in his legs. The spasms are effecting his progress in physical therapy. Can you give me the skinny on what are the side effects? He recommends 10 mg 3X per day. Emily Meyers -------------------------------------------------------------------------------- From: [email protected] [mailto:[email protected]] Sent: Tuesday, March 29, 2011 9:02 PM To: john snodgrass; transverse myelitis Subject: Re: [TMIC] OT ? I am on baclofin. myself...whole nether story but her doctor has not even suggested that. Sent from my Verizon Wireless BlackBerry -------------------------------------------------------------------------------- From: john snodgrass <[email protected]> Date: Tue, 29 Mar 2011 17:51:51 -0700 (PDT) To: transverse myelitis<[email protected]> Subject: Re: [TMIC] OT ? I'm not sure weather it was the maximum dose of baclofin or the maximum dose of gabapentin that slowed the burning down but since i have maxed out both of them I have noticed that my feet and legs don't burn as bad as often. also maxing out the gabapentin has really helped with the spasms in my legs. not done away with them but sure has helped. --- On Tue, 3/29/11, [email protected] <[email protected]> wrote: From: [email protected] <[email protected]> Subject: Re: [TMIC] OT ? To: "Janice Nichols" <[email protected]>, "wim from holland" <[email protected]>, "TMIC" <[email protected]> Date: Tuesday, March 29, 2011, 8:37 PM Yes I am very very involved. I am the oldest and she is my heart.. She just was diagnosed eight months ago. It came on so fast which I understand is how it happens. She is 61. She has this burning in her feet that is horrible she says it feels like they are burning and she can not get them cool enough. She trys to ice them down but that is not working anymore. Sent from my Verizon Wireless BlackBerry ------------------------------------------------------------------------ From: "Janice Nichols" <[email protected]> Date: Tue, 29 Mar 2011 19:22:34 -0500 To: <[email protected]>; wim from holland<[email protected]>; TMIC<[email protected]> Subject: Re: [TMIC] OT ? Tracy, can you tell me a little about her? How old is she, how long has she had TM, what part of her did it hit, has there been any improvement? I was 60 when TM hit me and my daughter and husband were invaluable. What is your situation, can you spend time with her? How is her attitude? Sorry for all the questions, but it will help us to help you. Janice, in Missouri From: [email protected] Sent: Tuesday, March 29, 2011 7:09 PM To: Janice Nichols ; wim from holland ; TMIC Subject: Re: [TMIC] OT ? I'm new to this, but have been getting all of the emails for awhile...my mom has TM and it was a very fast thing that I am trying to get a grasp on and understand Any advice would be greatly appreciated....Tracy bell Sent from my Verizon Wireless BlackBerry ------------------------------------------------------------------------ From: "Janice Nichols" <[email protected]> Date: Tue, 29 Mar 2011 18:59:46 -0500 To: wim from holland<[email protected]>; TMIC<[email protected]> Subject: Re: [TMIC] OT ? Things have been pretty quiet on the website. One of these days a subject will come up that will start a ruckus. Also, apparently some of our members spend more time on Facebook too. Hope you are doing well. Janice From: wim from holland Sent: Tuesday, March 29, 2011 5:17 PM To: TMIC Subject: [TMIC] OT ? Did not get any mail the last week. Everybody gardening, or sitting lazy in the sun hole day? Wim
