Excellent advice and I agree with your conclusions.
Janice

From: wim from holland 
Sent: Wednesday, March 30, 2011 6:47 PM
To: [email protected] ; TMIC 
Subject: RE: [TMIC] OT ?

Baclofen helps for spasm, when I first started and I heard more of the group 
talking about it, you can have trouble with short memory, but that slowly 
improves. Nothing of that you can find back in the discription closed in. What 
also a caused spasm is a full bowl, notice after relieving that it is better. 
Full bladder makes it also worse. Keep the legs warm (blacket) if you sit stil 
all the time and afford draft. Nice in spring to let the wind through your 
house, but for people who does not move a lot, the muscles get cold and spasm 
will follow then, specially when the warm up again. Thats the reason when spasm 
comes after a while in bed or with cold legs crowl up to the partner.
 
Wim
 

--------------------------------------------------------------------------------
From: [email protected]
To: [email protected]
Subject: RE: [TMIC] OT ?
Date: Tue, 29 Mar 2011 21:47:03 -0400


Regarding Baclofin…..the physical therapist suggested that my husband ask his 
doctor for Baclofin due to the spasms in his legs.  The spasms are effecting 
his progress in physical therapy.  Can you give me the skinny on what are the 
side effects?  He recommends 10 mg 3X per day.  



Emily Meyers




--------------------------------------------------------------------------------

From: [email protected] [mailto:[email protected]] 
Sent: Tuesday, March 29, 2011 9:02 PM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] OT ?



I am on baclofin. myself...whole nether story but her doctor has not even 
suggested that. 

Sent from my Verizon Wireless BlackBerry


--------------------------------------------------------------------------------

From: john snodgrass <[email protected]> 

Date: Tue, 29 Mar 2011 17:51:51 -0700 (PDT)

To: transverse myelitis<[email protected]>

Subject: Re: [TMIC] OT ?



      I'm not sure weather it was the maximum dose of baclofin or the maximum 
dose of gabapentin that slowed the burning down but since i have maxed out both 
of them I have noticed that my feet and legs don't burn as bad as often. also 
maxing out the gabapentin has really helped with the spasms in my legs.



      not done away with them but sure has helped.



      --- On Tue, 3/29/11, [email protected] <[email protected]> 
wrote:


        From: [email protected] <[email protected]>
        Subject: Re: [TMIC] OT ?
        To: "Janice Nichols" <[email protected]>, "wim from holland" 
<[email protected]>, "TMIC" <[email protected]>
        Date: Tuesday, March 29, 2011, 8:37 PM

        Yes I am very very involved. I am the oldest and she is my heart.. She 
just was diagnosed eight months ago. It came on so fast which I understand is 
how it happens. She is 61. She has this burning in her feet that is horrible 
she says it feels like they are burning and she can not get them cool enough. 
She trys to ice them down but that is not working anymore. 

        Sent from my Verizon Wireless BlackBerry


------------------------------------------------------------------------

        From: "Janice Nichols" <[email protected]> 

        Date: Tue, 29 Mar 2011 19:22:34 -0500

        To: <[email protected]>; wim from 
holland<[email protected]>; TMIC<[email protected]>

        Subject: Re: [TMIC] OT ?



        Tracy, can you tell me a little about her?    How old is she, how long 
has she had TM, what part of her did it hit, has there been any improvement?    
   I was 60 when TM hit me

        and my daughter and husband were invaluable.     What is your 
situation, can you spend time with her?     How is her attitude?      Sorry for 
all the questions, but it will help us to

        help you.

        Janice, in Missouri





        From: [email protected] 

        Sent: Tuesday, March 29, 2011 7:09 PM

        To: Janice Nichols ; wim from holland ; TMIC 

        Subject: Re: [TMIC] OT ?



        I'm new to this, but have been getting all of the emails for 
awhile...my mom has TM and it was a very fast thing that I am trying to get a 
grasp on and understand Any advice would be greatly appreciated....Tracy bell 

        Sent from my Verizon Wireless BlackBerry


------------------------------------------------------------------------

        From: "Janice Nichols" <[email protected]> 

        Date: Tue, 29 Mar 2011 18:59:46 -0500

        To: wim from holland<[email protected]>; 
TMIC<[email protected]>

        Subject: Re: [TMIC] OT ?



        Things have been pretty quiet on the website.    One of these days a 
subject will come up that will start a ruckus.      Also, apparently some

        of our members spend more time on Facebook too.        Hope you are 
doing well.

        Janice



        From: wim from holland 

        Sent: Tuesday, March 29, 2011 5:17 PM

        To: TMIC 

        Subject: [TMIC] OT ?



        Did not get any mail the last week. Everybody gardening, or sitting 
lazy in the sun hole day?
         
        Wim
     


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