I HAVE HAD 6 EPISODES OF RECURRENT TRANSVERSE MYELITIS. I'VE FIGURED OUT WHEN I GET THE NUMBNESS AND HEAVINESS IN MY LEGS TO GET PRENISONE QUICKLY. I AM ONE OF THE WALKING WOUNDED. JANE/SPLENDORA TX In a message dated 8/16/2011 7:15:25 P.M. Central Daylight Time, [email protected] writes:
There is such a thing as recurrent transverse myelitis: the Johns Hopkins site describes it as "the presence of more than one episode meeting the criteria for TM with intervening improvement and excluding the presence of multiple sclerosis. More than half of these recurrent cases have an unknown cause." (_http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/transverse_myelitis/about-tm/recurrent-tm.html_ (http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/transverse_myelitis/about-tm/rec urrent-tm.html) ). But that may not be what is going on here, either. I don't know if TM affects CO2 level -- unless it's affecting her diaphragm and therefore her breathing. Hopefully they'll be able to figure out what's wrong. BTW, Tracy, all you have to do to send a message to the group is to send it to [email protected]_ (mailto:[email protected]) . The tmic addresses with "request" in them are automated addresses where people join or leave the group. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com/) On Tue, Aug 16, 2011 at 7:40 PM, Laura Beaudin <[email protected]_ (mailto:[email protected]) > wrote: Hi Tracy, TM is not a progressive condition beyond the initial acute attack. Afterward, either you recover, or you don't. Sounds like something else is attacking her...have they ruled out Guillain-Barree? Malignant MS? Tumors? So many things can cause this. Laura On Tue, Aug 16, 2011 at 1:52 PM, Todd Tarno <[email protected]_ (mailto:[email protected]) > wrote: Hey Tracy, TM is usually is a ONE time hit. If it's TM again, there is a name for it, but sorry I don't remember the name before TM. When asking questions on the TM list, TMIC <[email protected]_ (mailto:[email protected]) > Where did her TM hit on her spinal cord? The higher it hits ( level C ), the more problems with breathing. I don't know anything about the CO 2 being high. Sorry :( Please share her systems with us, so that we may be able to tell if it might be or not TM. We all will be praying for her at this time, Todd in Corpus Christi, TX TM since April 1, 2002 @ T-4 to T-8 --- On Tue, 8/16/11, Tracy Lea Bell <[email protected]_ (mailto:[email protected]) > wrote: From: Tracy Lea Bell <[email protected]_ (mailto:[email protected]) > Subject: Re: [TMIC] Re: To: "Blaine Frye" <[email protected]_ (mailto:[email protected]) > Cc: "[email protected]_ (mailto:[email protected]) " <[email protected]_ (mailto:[email protected]) >, "[email protected]_ (mailto:[email protected]) " <[email protected]_ (mailto:[email protected]) >, "[email protected]_ (mailto:[email protected]) " <[email protected]_ (mailto:[email protected]) > Date: Tuesday, August 16, 2011, 9:42 AM I have several things to ask and I hope anyone can help...my mom has been in the hospital for two weeks and now has been moved to ICU. Every day something new pops up. They have no idea what is wrong now her CO 2 is so high she can hardly breath... She has had TM for a year now and they keep saying it's not the TM and I just don't know how TM progresses...I don't know how to send this to the whole group Thank you Tracy
