These stories are very hard to read, even harder to imagine. I wish blessings for all of you.
dalton From: <[email protected]> Date: Tue, 16 Aug 2011 22:36:23 -0400 (EDT) To: <[email protected]>, <[email protected]> Cc: <[email protected]>, <[email protected]>, <[email protected]> Subject: Re: [TMIC] Re: MOM Resent-From: <[email protected]> Resent-Date: Tue, 16 Aug 2011 19:38:07 -0700 I HAVE HAD 6 EPISODES OF RECURRENT TRANSVERSE MYELITIS. I'VE FIGURED OUT WHEN I GET THE NUMBNESS AND HEAVINESS IN MY LEGS TO GET PRENISONE QUICKLY. I AM ONE OF THE WALKING WOUNDED. JANE/SPLENDORA TX In a message dated 8/16/2011 7:15:25 P.M. Central Daylight Time, [email protected] writes: > There is such a thing as recurrent transverse myelitis: the Johns Hopkins > site describes it as "the presence of more than one episode meeting the > criteria for TM with intervening improvement and excluding the presence of > multiple sclerosis. More than half of these recurrent cases have an unknown > cause." > (http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/transve > rse_myelitis/about-tm/recurrent-tm.html). > > But that may not be what is going on here, either. I don't know if TM affects > CO2 level -- unless it's affecting her diaphragm and therefore her breathing. > Hopefully they'll be able to figure out what's wrong. > > BTW, Tracy, all you have to do to send a message to the group is to send it > to [email protected]. The tmic addresses with "request" in them are > automated addresses where people join or leave the group. > > Barbara H. > http://barbarah.wordpress.com <http://barbarah.wordpress.com/> > > > On Tue, Aug 16, 2011 at 7:40 PM, Laura Beaudin <[email protected]> > wrote: > >> Hi Tracy, >> TM is not a progressive condition beyond the initial acute attack. >> Afterward, either you recover, or you don't. Sounds like something else is >> attacking her...have they ruled out Guillain-Barree? Malignant MS? Tumors? >> So many things can cause this. >> Laura >> >> >> >> >> >> >> >> >> >> >> >> >> On Tue, Aug 16, 2011 at 1:52 PM, Todd Tarno <[email protected]> wrote: >> >>> >>> Hey Tracy, >>> TM is usually is a ONE time hit. >>> If it's TM again, there is a name for it, but >>> sorry I don't remember the name before TM. >>> When asking questions on the TM list, >>> TMIC <[email protected]> >>> Where did her TM hit on her spinal cord? >>> The higher it hits ( level C ), the more problems with breathing. >>> I don't know anything about the CO 2 being high. Sorry :( >>> Please share her systems with us, so that we >>> may be able to tell if it might be or not TM. >>> We all will be praying for her at this time, >>> Todd in Corpus Christi, TX >>> TM since April 1, 2002 @ T-4 to T-8 >>> >>> >>> --- On Tue, 8/16/11, Tracy Lea Bell <[email protected]> wrote: >>> >>>> >>>> From: Tracy Lea Bell <[email protected]> >>>> Subject: Re: [TMIC] Re: >>>> To: "Blaine Frye" <[email protected]> >>>> Cc: "[email protected]" <[email protected]>, >>>> "[email protected]" <[email protected]>, "[email protected]" >>>> <[email protected]> >>>> Date: Tuesday, August 16, 2011, 9:42 AM >>>> >>>> I have several things to ask and I hope anyone can help...my mom has been >>>> in the hospital for two weeks and now has been moved to ICU. Every day >>>> something new pops up. They have no idea what is wrong now her CO 2 is so >>>> high she can hardly breath... She has had TM for a year now and they keep >>>> saying it's not the TM and I just don't know how TM progresses...I don't >>>> know how to send this to the whole group >>>> >>>> Thank you Tracy >>>> >>>> >>>> >> >
