You need a new neurologist. The Baclofen has to get to the spinal cord to be effective. The pump exhausts directly into the fluid surrounding the cord; the pill puts the same concentration into all the tissues of the body, so the burden on the liver is a lot higher.
My daily dose of Baclofen is about 3/4 mg, forty times less than a 30 mg pill. I used to be concerned about infection. The refill is done under very sterile conditions. As of thee end of 2009 I had had about 35 refills and stopped keeping track. Alton ----- Original Message ----- From: Gerry Surette <[email protected]> To: [email protected] Sent: Tue, 15 Nov 2011 16:42:52 -0000 (UTC) Subject: [TMIC] RE: tmic-digest Digest V2011 #378 re baclofen pump; i too inquired about the pump . my neuro recommended not to have it for two reasons 1) very susceptible to infection and 2) can damage the liver. instead am taking 30 mg in pill form Date: Tue, 15 Nov 2011 08:24:12 -0800 From: [email protected] Subject: tmic-digest Digest V2011 #378 To: [email protected] --Forwarded Message Attachment-- tmic-digest Digest Volume 2011 : Issue 378 Today's Topics: [TMIC] Baclofen Question [ "Emily" <[email protected]> ] Re: [TMIC] Baclofen Question [ "Janice Nichols" <jannic@centurytel ] Re: [TMIC] Baclofen Question [ Susan Kleinz <[email protected]> ] Re: [TMIC] Baclofen Question [ "Janice Nichols" <jannic@centurytel ] OT - Re: [TMIC] re marieke dufresne [ Bernie <[email protected]> ] Re: OT - Re: [TMIC] re marieke dufre [ "Barbara H." <[email protected]> ] Re: [TMIC] Baclofen Question [ [email protected] ] --Forwarded Message Attachment-- Date: Sat, 12 Nov 2011 13:27:33 -0500 From: [email protected] To: [email protected] Subject: [TMIC] Baclofen Question Do any of you have the Baclofen pump? If so, does it help? How does it work? The neurologist is talking about my husband using this method of taking Baclofen because the spasticity in his legs is preventing him from being able to stand and is interfering with his physical therapy. Your input is appreciated. Emily Meyers --Forwarded Message Attachment-- Date: Sat, 12 Nov 2011 17:09:40 -0600 From: [email protected] To: [email protected]; [email protected] Subject: Re: [TMIC] Baclofen Question I do not use the pump, but sure rely on Baclofen to calm the spasms in my legs. You will get more input.Janice From:EmilySent: Saturday, November 12, 2011 12:27 PMTo:'tmic'Subject: [TMIC] Baclofen Question Do any of you have the Baclofen pump? If so, does it help? How does it work? The neurologist is talking about my husband using this method of taking Baclofen because the spasticity in his legs is preventing him from being able to stand and is interfering with his physical therapy. Your input is appreciated. Emily Meyers --Forwarded Message Attachment-- Date: Sat, 12 Nov 2011 16:21:00 -0700 From: [email protected] To: [email protected] CC: [email protected]; [email protected] Subject: Re: [TMIC] Baclofen Question I have not used the baclofen pump, but a good friend of mine,who is paralyzed from the waist down from a car accident, used one and it was without problems.Seemed to work instantly when her legs would jump. I take 3-4 baclofen every day to keep my legs in control. best of luck. Susan On Nov 12, 2011, at 4:09 PM, Janice Nichols wrote: I do not use the pump, but sure rely on Baclofen to calm the spasms in my legs. You will get more input.Janice From: EmilySent: Saturday, November 12, 2011 12:27 PMTo: 'tmic'Subject: [TMIC] Baclofen Question Do any of you have the Baclofen pump? If so, does it help? How does it work? The neurologist is talking about my husband using this method of taking Baclofen because the spasticity in his legs is preventing him from being able to stand and is interfering with his physical therapy. Your input is appreciated. Emily Meyers --Forwarded Message Attachment-- Date: Sat, 12 Nov 2011 17:23:53 -0600 From: [email protected] To: [email protected] CC: [email protected]; [email protected] Subject: Re: [TMIC] Baclofen Question Susan, what times of the day/evening do you take your Baclofen?Janice From:Susan KleinzSent: Saturday, November 12, 2011 5:21 PMTo:Janice NicholsCc:[email protected] ; 'tmic'Subject: Re: [TMIC] Baclofen Question I have not used the baclofen pump, but a good friend of mine, who is paralyzed from the waist down from a car accident, used one and it was without problems.Seemed to work instantly when her legs would jump. I take 3-4 baclofen every day to keep my legs in control. best of luck. Susan On Nov 12, 2011, at 4:09 PM, Janice Nichols wrote: I do not use the pump, but sure rely on Baclofen to calm the spasms in my legs. You will get more input.Janice From: EmilySent: Saturday, November 12, 2011 12:27 PMTo: 'tmic'Subject: [TMIC] Baclofen Question Do any of you have the Baclofen pump? If so, does it help? How does it work? The neurologist is talking about my husband using this method of taking Baclofen because the spasticity in his legs is preventing him from being able to stand and is interfering with his physical therapy. Your input is appreciated. Emily Meyers --Forwarded Message Attachment-- Date: Sun, 13 Nov 2011 00:23:48 -0600 From: [email protected] To: [email protected] Subject: OT - Re: [TMIC] re marieke dufresne Who is this person Marieke DuFresne? Bernie --Forwarded Message Attachment-- Date: Sun, 13 Nov 2011 07:07:07 -0500 From: [email protected] To: [email protected]; [email protected] CC: [email protected] Subject: Re: OT - Re: [TMIC] re marieke dufresne She's been on TMIC for years. The latest e-mail address I have for her is [email protected]) Barbara H. On Sun, Nov 13, 2011 at 1:23 AM, Bernie <[email protected]> wrote: Who is this person Marieke DuFresne? Bernie On Sat, Nov 12, 2011 at 9:08 AM, wim from holland <[email protected]> wrote: [email protected] this email adress was in my computer, don't now if it is the latest. From: [email protected] To: [email protected] Date: Thu, 10 Nov 2011 16:40:42 -0500 Subject: [TMIC] re marieke dufresne does anyone have her email please? --Forwarded Message Attachment-- Date: Sun, 13 Nov 2011 20:28:55 +0000 From: [email protected] To: [email protected] CC: [email protected] Subject: Re: [TMIC] Baclofen Question I've had a pump for 11 years. I'm on my second. It works very well; when the reservoir is low my legs start yanking during the day. I also take 16 mg of tizanidine PRN at bedtime if I'm twitching, maybe twice a week. Do a Google search for "intrathecal pump". A;ton ----- Original Message ----- From: Emily <[email protected]> To: 'tmic' <[email protected]> Sent: Sat, 12 Nov 2011 18:27:33 -0000 (UTC) Subject: [TMIC] Baclofen Question Do any of you have the Baclofen pump? If so, does it help? How does it work? The neurologist is talking about my husband using this method of taking Baclofen because the spasticity in his legs is preventing him from being able to stand and is interfering with his physical therapy. Your input is appreciated. Emily Meyers
