Have y'all tried silk long johns.......??? Very smooth to the skin. And they make great sleepware.
BobbyJim in Elvisland ----- Original Message ----- From: john snodgrass To: transverse myelitis Sent: Monday, January 02, 2012 11:08 AM Subject: Re: [TMIC] RE Pins and Needles most of the time i cant stand to have anything at all on my legs good to see that some get relief ------------------------------------------------------------------------------ From: Dalton Garis <[email protected]> To: pat cooley <[email protected]>; [email protected] Cc: Gillian Clark <[email protected]>; TM list <[email protected]> Sent: Sunday, January 1, 2012 11:13 AM Subject: Re: [TMIC] RE Pins and Needles The best way to keep warm without getting that pins and needles feeling for me; Is to just wear my flannel pajamas under my pants. They are loose, soft and smooth, and don't trigger those fiery attacks that send me into seizures. Dalton From: pat cooley <[email protected]> Date: Sun, 1 Jan 2012 09:45:47 -0600 To: <[email protected]> Cc: Gillian Clark <[email protected]>, TM list <[email protected]> Subject: Re: [TMIC] RE Pins and Needles Resent-From: <[email protected]> Resent-Date: Sun, 1 Jan 2012 07:49:01 -0800 Patti I have found that the cold is much worse for me. I have found that if I wear soft long underwear under my jeans it doesn't bother me and helps to keep me warmer. I too always have the pins & needles plus the burning/freezing all the time, but it is so much worse in the evening.. I believe that I have learned to live with it since I am able to fall asleep and stay asleep all night except to go potty at least once maybe twice. I have also been told by doctors that the pins & needles in the feet is called neuropathy, which is the same nerve pain that people with diabetes suffer from. I have a good friend with diabetes and has suffered with it for years. Patti in Wisconsin On Sat, Dec 31, 2011 at 9:22 PM, <[email protected]> wrote: Gilly You are right to remide us about cothes, shoes and sock contributing to our TM pain. I think I've posted for eight straight winters that wearing blue jeans in cold weather puts me right to bed due the the intense pain the cold material causes. New TMers beware! It isn't just the heat that causes additional painful sensations. The cold weather causes its own set of problems. Patti - Michigan On Sat, Dec 31, 2011 at 3:05 AM, Gillian Clark wrote: John, the sad fact is that nothing really takes it away, I have so far racked up a bit over 10 years of it. I must say though that I do believe it has decreased somewhat. Either that or I'm just used to it. I don't do meds as all they did was make me completely spaced out or zombie like and the pain was still there. Strangely enough, just the everyday little old aspro or Panadol help. Maybe because they concentrate on any other unrelated pain that then lessons the tm residuals. I have no idea why, I just know that's what happens for me. There are other external causes. The shoes you wear, your socks (always wear them inside out), the clothes you wear, particularly the type of material. I found that by paying attention to these things, I can lesson (not by a whole lot) these annoying freeze/burn feelings. Gilly ----- Original Message ----- From: john snodgrass To: James Berg; [email protected] Cc: tmic Sent: Saturday, December 31, 2011 7:47 AM Subject: Re: [TMIC] RE Pins and Needles was talking with the neurologist yesterday about the buzzing,vibrating feeling that sometimes go all the way into my chest but stays mainly in my legs and feet,,,,when its not buzzing it is burning. he called it something but i failed to write it down. I tried MJ but for me,,,it made it intensify! nothing i have taken to date has had any positive effect on that symptom. creams,muscle rubs,neuronton,baclofen, Xanax ,valium,Lyrica alcohol,MJ. scratch that off my to do list. ___________________________________ From: James Berg <[email protected]> To: [email protected] Cc: tmic <[email protected]> Sent: Friday, December 30, 2011 4:05 PM Subject: Re: [TMIC] RE Pins and Needles Gerry and Pati--you can control the cost by buying your meds a River Pharmacy--out of India--they are honest and the drug is quality Jim On Wed, Dec 28, 2011 at 6:01 PM, < [email protected]> wrote: Gerry, Many of us faced the same thing. Movement and feeling also brought the feeling of pins and needles. I've taken Lyrica for about three years - it helps a lot. I don't know about side effects except the cost can empty your wallet. I would have stuck with gabapentin, but it was unpredictable. Lyrica starts working witin 15 minutes. Gabapenten took an hour or two to work. The best pan reliever is laughter and the posts I read tonight relieved my pain for a while. The antidepressant, Cymbalta, might help with the pins and needles. Of course, it's another drug with a lot of side effects. Pati - Michigan
