Pam, I just can't do dresses at all anymore, anything that moves on me just doesn't do well :) Even with leggings, I still feel the movement. Same with shoes, socks, anything from the waist down. It used to be from the chest down, so there has been some improving.
T shirt material is also the best for me. love and light Gilly ----- Original Message ----- From: PAMELA S To: [email protected] Sent: Wednesday, January 04, 2012 5:51 AM Subject: RE: [TMIC] RE Pins and Needles Same for me. You nailed it on fabrics. I am like Akua on the stretch pants. If I have to wear a skirt, I use cotton tights, not hosery. I have found this more tolerable, then some type of boot with orthotic support to cover where the ankles wrinkle. This requires a longer cotton skirt, and they tend to be soft t shirt type material. I have found some legging at the Avenue Stores, which are also online that are helpful. I wear the 14-16 which is their smallest size. But, since they cater to those of us with a little size, they don't bind as bad on the tummy. I have also bought Jean leggings in a size larger that look like jeans on me. I don't tolerate heavy jeans at all. It's not just the binding it is the weight. I have good luck with dansko and santina shoes as long as there aren't any ridges/seams inside. Socks, I prefer diabetic neuropathic cotton socks, but I too turn socks inside out, so only the smooth size rubs. I do have problems with things going around my calves, because they have become huge compensating for the muscles that no longer work right. Pam ------------------------------------------------------------------------------ From: [email protected] To: [email protected] Subject: Re: [TMIC] RE Pins and Needles Date: Tue, 3 Jan 2012 13:59:09 +1030 I buy my shoes mostly online from Rivers. I've found they are the best for me, mule type of course and I have to make sure to check they have no fancy shmancy stitching around the innersole, that plays havoc. In winter for my "good" pants, I have Ponte pants from Damart, of course they might still be too thin for your climate. For the farm I have the trackies with no cuff around the bottom, they look ok for going out in too. In summer at home and with family and close friends, I wear leggings, like the gym or yoga pants made from interlock cotton. Good pants are a bit harder to come by. Silk is not a goer for me because of the "swishing" if it moves on me I'm almost instantly a cripple. Same with the wrong shoes or wrong material. I used to live in jeans, took me quite a while to realise they were at least doubling my pain level. Love and light, Gilly ----- Original Message ----- From: Deb Monteleone To: 'Gillian Clark' ; 'TM list' Sent: Tuesday, January 03, 2012 10:37 AM Subject: RE: [TMIC] RE Pins and Needles Hi, I loved your sentence on shoes. I have done the same thing, able to return a lot, thank god. It’s even worse with socks, I think I tried every kind of sock, finally gave up, haven’t worn socks for 3 years. Just recently I tried a pair of good silk socks, depending on the day I can handle them for an hour or so. The shoes I found best for me are the Easy Spirit Travel time line. I must have 12-15 pairs in different colors and materials (on top outside of shoe), at least it gives some variety. They are also slip-ons (clogs) so I can take them off as soon as I sit. I can only wear one kind of pants, all cotton knit, so of course I have many colors of same pants. I feel kind of funny wearing the same pants to work all the time. The winters are hell as these pants are not thick or warm. At least I have free rein when it comes to tops. So not all is bad, got to keep this positive attitude otherwise don’t know what would happen. I started taking Ampyra and it really has improved the speed of my walking. At first it killed me because it seemed to increase my needles, burning, etc. Since its purpose is to increase nerve conductivity it kind of made sense. It hurt too much so I cut the dose in half as my neurologist said he would like me to stick it out if I could. After a month or so, I went back to full dosage because my walking seemed to be improving. The pain slightly more than normal but that has reversed and I believe the pain is slightly less. My New Year’s resolution is to reduce baclofen/Neurontin from 4x a day to 3x a day. I am also trying to eat healthy. I feel better when I do. This video from a doctor who got TM really inspired me. I had already seen a nutritionist and started to lose some weight and this video is similar to what I’ve already started. It is amazing how this woman healed with mostly diet changes that effect mitochondria. Minding Your Mitochondria is the link below to this Doctors amazing journey with MS. http://youtu.be/KLjgBLwH3Wc Make it a great day, Deb Long Island, NY
