Welcome Goat! Just read your blog – very informative for those not familiar with TM. I have just “celebrated” my 5th year with TM. Also take Neurontin, along with Baclofen for leg spasms. Works pretty well. Was 60 and retired when TM struck. Doc’s knew about the 2nd or 3rd day that I had TM after eliminating all other possibilities and giving me an MRI and Spinal Tap. My onset was sudden, within 15 minutes I couldn’t walk. We went to the ER and stayed for 9 weeks. Can now walk, sometimes (at home) without a cane. Any distances, I have to use a wheelchair. Prefer my cane. I don’t walk gracefully, but I get the job done without too much stumbling around. Do have bladder and colon problems.
I have also accepted my life as it is, but I still keep trying to better myself. I think that is why I have come so far - from being paralyzed from shoulder blades to toes. Also had good doctors and a wonderful support group of family and friends. I hope you keep in touch with us at this website. We are a wealth of information for those with TM and will answer any questions to the best of our ability and with no embarrassment. Good luck to you and keep in touch. Janice from Missouri of USA From: The Man Sent: Tuesday, February 14, 2012 5:56 AM To: [email protected] Cc: [email protected] ; Bobby Jim ; Carol E ; Janice Nichols ; Sally Wilkinson ; Susan Kleinz Subject: [TMIC] Bloody Wishful Thinking -(living with Transverse-Myelitis in Oz)- My blog! G'day, I'm from Australia, so please be patient with me folks... I would like to introduce myself. My name is Glendon, though my close friends (and Scouts) know me as 'Goat'. My beautiful family just call me '...Dodders'. And I'm a recently diagnosed Transverse-Myelitis [in April 2011] person. A survivor, I have been living with the symptoms since March-2007, when I had an auto-immune-reaction to a 'flu-vaccination'. I have a story to tell and I've just started a blog. It's called - 'Bloody Wishful Thinking'. Ok, so it seemed to me absolutely the right thing to name it - Bloody Wishful Thinking - because I've chosen to accept my life for what it is, "warts'n'all"... and I want to share my story with you, so please check it out at; bloodywishfulthinking.blogspot.com I would love to hear from anyone. If you have just been diagnosed with TM [or you know someone] and you're frightened, read my story, I've been there! I've 'Googled-it'; been to 'Wikipedia'; and 'YouTube' too.. it's a strange feeling when you're lying in the hospital bed and the 'specialists' don't know what's going on? p.s. I've just started my Twitter journey too, you can now follow me at this link; https://twitter.com/#!/GoatDodders respectfully, Goat Dodders (a.k.a Glendon) ...Living with Transverse-Myelitis since 2007, in Brisbane, Queensland, Australia...
