goat
ditto to janice
she seems to send my sentiments to a tee
can't write much - carpal tunnel surgery
i walk with a brace - very lucky
on neurontin,baclofen,zoloft,savella
seems to be a good cocktail
susan from phoenix, az - the US os A !
On Feb 15, 2012, at 6:29 PM, Janice Nichols wrote:
Welcome Goat!
Just read your blog – very informative for those not familiar with
TM. I have just “celebrated” my 5th year with TM. Also
take Neurontin, along with Baclofen for leg spasms. Works
pretty well. Was 60 and retired when TM struck. Doc’s knew
about the 2nd or 3rd day that I had TM after eliminating all other
possibilities and giving me an MRI and Spinal Tap. My onset
was sudden, within 15 minutes I couldn’t walk. We went to the ER
and stayed for 9 weeks. Can now walk, sometimes (at home)
without a cane. Any distances, I have to use a wheelchair.
Prefer my
cane. I don’t walk gracefully, but I get the job done without
too much stumbling around. Do have bladder and colon problems.
I have also accepted my life as it is, but I still keep trying to
better myself. I think that is why I have come so far - from
being paralyzed from shoulder blades to toes. Also had good
doctors and
a wonderful support group of family and friends. I hope you
keep in touch with us at this website. We are a wealth of
information for those with TM and will answer any questions to the
best
of our ability and with no embarrassment. Good luck to you and
keep in touch.
Janice from Missouri of USA
From: The Man
Sent: Tuesday, February 14, 2012 5:56 AM
To: [email protected]
Cc: [email protected] ; Bobby Jim ; Carol E ; Janice Nichols ;
Sally Wilkinson ; Susan Kleinz
Subject: [TMIC] Bloody Wishful Thinking -(living with Transverse-
Myelitis in Oz)- My blog!
G'day,
I'm from Australia, so please be patient with me folks... I would
like to introduce myself. My name is Glendon, though my close
friends (and Scouts) know me as 'Goat'. My beautiful family just
call me '...Dodders'. And I'm a recently diagnosed Transverse-
Myelitis [in April 2011] person. A survivor, I have been living
with the symptoms since March-2007, when I had an auto-immune-
reaction to a 'flu-vaccination'.
I have a story to tell and I've just started a blog. It's called -
'Bloody Wishful Thinking'. Ok, so it seemed to me absolutely the
right thing to name it - Bloody Wishful Thinking - because I've
chosen to accept my life for what it is, "warts'n'all"... and I
want to share my story with you, so please check it out at;
bloodywishfulthinking.blogspot.com
I would love to hear from anyone. If you have just been diagnosed
with TM [or you know someone] and you're frightened, read my story,
I've been there! I've 'Googled-it'; been to 'Wikipedia'; and
'YouTube' too.. it's a strange feeling when you're lying in the
hospital bed and the 'specialists' don't know what's going on?
p.s. I've just started my Twitter journey too, you can now follow
me at this link; https://twitter.com/#!/GoatDodders
respectfully,
Goat Dodders (a.k.a Glendon)
...Living with Transverse-Myelitis since 2007,
in Brisbane, Queensland, Australia...
