Janice:
Ashlee hit her 7 year mark in February. There are still mornings that she will
wake up wet, but normally if she sleeps longer than normal. She normally limits
her liquid intake in the evenings and then pees when she is getting ready for
bed and then goes again right before she gets in bed. She is on 15mg of
Oxybutnin a day, which she takes in the morning. At one point she had been on a
10mg in the morning and a 5mg at night and that worked but just got to be a
pain b/c she takes all of her other pills in the morning.
I just want to let you all know that on June 5 she will be graduating from High
School. She is a member of the National Honor Society and is 41 in her class of
about 200 students. She has about a 4.0 gpa. She is scheduled to take a summer
math course at HACC starting in mid July for 4 weeks 4 days a week and then
starts her 4 fall classes at the end of August. She is going for her Associates
Degree in Business Administration/Management.
Tracey L. Black
Certified Insurance Service Representative
Hockley & O'Donnell Insurance Agency
PO Box 3039, 132 Buford Avenue
Gettysburg, PA 17325
Phone: 717-334-6741, x 29
Fax: 717-334-3414
Office hours: 8:00 a.m. - 5:00 p.m.
My hours: 9:00 a.m. - 5:00 p.m.
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-----Original Message-----
From: Pat Cooley [mailto:[email protected]]
Sent: Wednesday, May 23, 2012 10:02 AM
To: Jan ice Nichols
Cc: [email protected]
Subject: Re: [TMIC]
Janice I experience bladder problems similar to yours. I am not bothered much
with spasms. I do exerience them at times in my legs.
It has been 4 yrs for me, at least in June it will be 4 yrs. I have noticed
that when I don't get ti the bathroom regularly, I experience pains just above
my pelvic bone. Much like prementrual cramps. That tells me it is time to go
potty.
My nights are like yours. Some mornings I find that I am almost dry; others I
am completely soaked even though I may get up to go potty 2-3 times during the
night. I have a large pad that goes completely over my bed as I experience
leaking on those heavy nights. It doesn't matter how much I drink at night. I
was told to restrict liquids after 6:00 pm which I do. Only drinking enough
to be able to take my pills. I don 't think doctors really know what is going
on when you have TM. It is s frustrating.
On Wed, May 23, 2012 at 2:45 AM, Janice Nichols <[email protected]> wrote:
Patti in Wisconsin
> Hi TM'ers,
>
> This question probably pertains mostly to female TM'ers, but maybe not.
>
> Is it my imagination or have you all noticed that spasms increase from
> the waist down, legs included, when the bladder is saying it is time
> to go to the bathroom? I have changed the wording several times to
> make it say what I am trying to ask. Hope you get my meaning.
>
> Also, have any of you gotten consistent improvement in bladder control
> or have you pretty much leveled out as far as improvement is
> concerned. If you keep improving, please give me the length of time
> you have had TM. I have had TM for
> 5 years and seem to go back and forth, sometimes 2-3 weeks at a time,
> waking up with wet pads and then, for a while, fairly dry (but never
> completely). It doesn't seem to matter how much I drink during
> the day or in the evening. When I was in the hospital, the doc's
> kept talking about my bladder needing time to "wake up" after being
> paralyzed. Well, mine seems to wake up a little and then snoozes
> again. Frustrating.
>
> Janice
