Hi all--I'm one who has tried all of the drugs and learned about Lyrica from Dalton. Now I can't live without it. My legs spasm so bad that without it that my wife would leave me if I didn't take it. Seriously, there was no sleep for either of us before the Pregabalin (generic Lyrica). I understand the heat Dalton talks about as I stretch the doses as far as I can it get worse. I take a huge dose about 11 pm, 300 mg. and by 8:00 am I am kicking the blankets off the bed. It or the TM puts me out by 2pm and I sleep until 6pm. Lately I have been rubbing my heels together at night without knowing it. I do have full body rigidity attacks, usually in the morning--my body tightens all around me and I lift up off the bed, only head and feet touching for 10 seconds or so. No, I can't feel much in my legs except the buzzing heat.
Anyway Janet, the spasms due stop with the Lyrica but maybe other things work for you too. One thing I think all of us can agree on it that we all seem to be different in so many ways with how the disease effects us but similar in some others. It is a tough road to hoe. Jim On Tue, Jun 26, 2012 at 10:13 AM, Dalton Garis <[email protected]> wrote: > Actually; > > The situation was much improved for a while. But now they are back again, > having Segwayed into a kind of mental fog, which comes on quickly then > leaves me with limited speech and locomotion capacities, and in need of > around 3-4 hours sleep almost immediately. I am really a shut-in now, > since I can't depend on more than around 6 hours of lucidity before the > next attack. > > How are you doing? > > Love to all, > > DG > Dalton H. Garis > Flushing, Queens > New York, USA > > From: Janice Nichols <[email protected]> > Date: Tuesday, 26 January 2012 10:23 AM > To: Dalton Garis <[email protected]>, Janet Dunn <[email protected]>, < > [email protected]> > > Subject: Re: [TMIC] Looking for input. > > Dalton, how are you doing with your seizures? Haven’t heard much about > it lately. Hope it means there is vast improvement. > Janice > > *From:* Dalton Garis <[email protected]> > *Sent:* Monday, June 25, 2012 9:59 PM > *To:* Janet Dunn <[email protected]> ; [email protected] > *Subject:* Re: [TMIC] Looking for input. > > We love you, and your struggle; > > It is all of our struggles, also. Our solidarity has done sooo much to > keep me going, to get up and try to make something useful of the lucid and > non-distracted time I can get. > > DG > > Dalton H. Garis > Flushing, Queens > New York, USA > > > From: Janet Dunn <[email protected]> > Date: Monday, 25 January 2012 10:43 PM > To: "[email protected]" <[email protected]> > Subject: Re: [TMIC] Looking for input. > Resent-From: <[email protected]> > Resent-Date: Mon, 25 Jun 2012 19:48:11 -0700 > > Thank you for all of the replies. I am going to try the baclofen as > needed. Yes, I am taking other meds - effexor, welbutrin, oxycontin fast > acting, and oxycontin time release, and either tylenol or advil. I also > have flexeril if I need it. > > I have come to the conclusion that it is a combination of the lack of > Lyrica and the heat. Hot for us where I live is 24 degrees celcius - > which is about 75 degrees. Cold is -35 or 40. > > I don't want to go back on the Lyrica, so I am going to try the baclofen. > I have never had spasms like this before. Wow - how some of you live with > bigger and badder (I know, I know) spasms is beyond me. I cannot tolerate > the pain and uncomfortableness of the darn things. > > Always something new to enjoy ahem, ahem. It will be eight years in > August for me, and this disease never ceases to frustrate me. > > Thanks again, so glad we are such a friendly helpful group. I will not > whine about the heat again after hearing how hot it is in Texas, and other > places. Where I live we may get one or two days of 30 Celcius which is > about 82ish. And then we get an awesome thunder show. > > Take care my friends, > > Love Janet >
