Dalton, Sorry to hear about your seizures. Do you think there is a correlation between them and the Transverse Myelitis? Did you have them before you got TM or after? I don't believe I have ever read anything about the two coexisting. Thank you for writing. Hugs, Jude Here's to the nights that turned into mornings, with the friends that turned into family... In a message dated 1/22/2013 9:59:46 P.M. Eastern Standard Time, [email protected] writes:
OK, now that you mention it; Stress affects me a little differently since getting TM. Now, it increases the likelihood that I will get a nice mind-bending seizure, whereafter I must spend a couple of days collecting my scattered brains. It really feels wonderful just before getting one and during the first few minutes, but then, it is sleep and then emptiness. I think something piggybacked on the original TM seizure activity I had since 22 April 2010 (in the atrium of the main building of the girl's campus, no less). Those were mostly physical and lasted for hours. But they morphed over into more of a mental disorder, where I would become just empty-eyed and unable to coordinate my limbs. I would just stand there, if I hadn't already fallen, waiting for someone to help me walk to a safe place. Now, I have used this mustard cure for about two months and have felt good enough that I have gotten a real estate license—my wife is an agent here in New York—to work with her in the business. But as soon as we started to work together the stress built up again, and so now the seizures are back. I soon enough realized that I can't remember things, names, places, times, dates, addresses, numbers,--and I am thinking of real estate work? My way of dealing with this stress is to back-off, and announce that I will be doing less, and that doesn't mean giving up, but just pacing things out a little. Meanwhile, there is this manuscript on the economics of the Qur'an awaiting my finishing touches before finding a publisher (my second book). The work just flows, and I truly understand all these things that comprise its ingredients. So here might be something for you all to chew on, if you like. Dg Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Judy <[email protected]_ (mailto:[email protected]) > Date: Tuesday, 22 January 2013 9:45 PM To: <[email protected]_ (mailto:[email protected]) > Cc: <[email protected]_ (mailto:[email protected]) > Subject: Re: [TMIC] Re: Need your input Resent-From: <[email protected]_ (mailto:[email protected]) > Resent-Date: Tue, 22 Jan 2013 18:45:55 -0800 We really do have a good group. I'm busting my butt to come up with topics to discuss. Anything that you think of will be appreciated. Jude In a message dated 1/22/2013 9:23:26 P.M. Eastern Standard Time, [email protected]_ (mailto:[email protected]) writes: You know, it sounds like everyone wants to come back to our site here. Let’s get back to sharing and responding again. Also, those questions that pop up over time too. I doubt that anyone can go for long without questions about something! What a great bunch we have! Janice From: [email protected]_ (mailto:[email protected]) Sent: Monday, January 21, 2013 6:43 PM To: _tmic_ (mailto:[email protected]) Subject: Fw: [TMIC] Re: Need your input I have had a flu shot every year for over 25 years. Also had a pneumonia shot. See my PCP every 3 months; he takes care of my meds. I am having a lot of bone pain from my metastatic breast cancer that I will speak with my oncologist about when I see her in February. Trouble is the treatment also causes bone pain. I hate facebook! Miss the old TMIC group. Cheryl ----- Forwarded Message ----- From: Robert Pall <[email protected]_ (mailto:[email protected]) > To: [email protected]_ (mailto:[email protected]) ; [email protected]_ (mailto:[email protected]) Cc: [email protected]_ (mailto:[email protected]) Sent: Monday, January 21, 2013 6:52 PM Subject: Re: [TMIC] Re: Need your input I have taken the flu shot for the past 15+ years....never got the flu.....and I do not believe getting TM had anything to do with any kind of immunizations. I also see my regular MD twice a year minimum and he does prescribe most of my meds. However I see my neurologist at least once per year to insure that I am up to date with the best pain killers and meds available This year he is doing a baclofen injection into my spine to see if a baclofen pump will be beneficial and he also prescribed 2 oz per month of marijuana which I know is beneficial Finally I would love to see this list get busy again.....I hate going on facebook! Rob in New Jersey.. -----Original Message----- From: Heyjude48458 <[email protected]_ (mailto:[email protected]) > To: snow121100 <[email protected]_ (mailto:[email protected]) > Cc: tmic-list <[email protected]_ (mailto:[email protected]) > Sent: Mon, Jan 21, 2013 3:03 pm Subject: [TMIC] Re: Need your input Hi Carol, Thank you for answering me...I'm trying to rev up the TMIC list again. Anything you want to know or questions you need answered please email me. It's important that you write in from time to time. Love you, Jude Michigan Learn from yesterday, Live for today, Hope for tomorrow. Albert Einstein In a message dated 1/21/2013 12:42:34 P.M. Eastern Standard Time, [email protected]_ (mailto:[email protected]) writes: Hey Jude! I have received a flu shot every year, except the first year, after the onset of TM. I became sick in June 2005. I have not noticed any complications. I think we all have to figure out the pros and cons. I have Type 2 Diabetis, heart disease (I had 6 bypasses when I was 49 years old). Yes, 6! I had 2 bypasses in 2 of the arteries. I don't know about now, but then I was told it would be better to make 2 shorter graphs than 1 longer one. Anyway, along with my doctors, my daughter an RN and my son-in-law a doctor, I have made the decision to get flu shots annually and pneumonia vaccine every 5-7 years as recommended. When I lived near Chicago, my neurologist was Dr. Joy Derwenskus at Northwestern where she was also an associate professor. Now that I live closer to Indianapolis, I see Dr. Margaret Frazer, in Carmel. She is with JWM Neurology and also works in research. As much as you can enjoy a doctor, I have enjoyed seeing both of them. I see no fault with them just get exasperated with all the unknowns of TM. Carol Worrying does not empty tomorrow of its troubles; It empties today of its strengths. ____________________________________ From: [email protected]_ (mailto:[email protected]) Date: Mon, 21 Jan 2013 11:53:38 -0500 Subject: Need your input To: [email protected]_ (mailto:[email protected]) ; [email protected]_ (mailto:[email protected]) ; [email protected]_ (mailto:[email protected]) ; [email protected]_ (mailto:[email protected]) ; [email protected]_ (mailto:[email protected]) ; [email protected]_ (mailto:[email protected]) ; [email protected]_ (mailto:[email protected]) ; [email protected]_ (mailto:[email protected]) ; [email protected]_ (mailto:[email protected]) CC: [email protected]_ (mailto:[email protected]) ; [email protected]_ (mailto:[email protected]) Hi ladies and gentleman, This is Jude from TMIC. We are having two discussions and need your input. First, we are talking about the need for a neurologist when someone has TM, and the other topic is the need for flu shots, have you had them and what does your Dr. say about them. There has been quite a bit of activity lately, but we need more. Will be happy to answer any questions you have or talk about any topics you can think of. I miss hearing from you and hope you write in soon. In case you have forgotten the site it is: [email protected]_ (mailto:[email protected]) . If you need to receive the emails the address is: [email protected]_ (mailto:[email protected]) I love you all, Jude Michigan, USA =
