I started getting them only after TM. I was diagnosed with TM in February 2010, and had my first seizure on 22 April.
Dg Dalton Garis Flushing, Queens New York, USA Mobile: 718-838-0437 From: Judy <[email protected]> Date: Tuesday, 22 January 2013 10:58 PM To: Dalton Garis <[email protected]> Cc: <[email protected]> Subject: Re: [TMIC] Re: Need your input Dalton, Sorry to hear about your seizures. Do you think there is a correlation between them and the Transverse Myelitis? Did you have them before you got TM or after? I don't believe I have ever read anything about the two coexisting. Thank you for writing. Hugs, Jude Here's to the nights that turned into mornings, with the friends that turned into family... In a message dated 1/22/2013 9:59:46 P.M. Eastern Standard Time, [email protected] writes: > > > > OK, now that you mention it; > > > > Stress affects me a little differently since getting TM. Now, it increases > the likelihood that I will get a nice mind-bending seizure, whereafter I must > spend a couple of days collecting my scattered brains. It really feels > wonderful just before getting one and during the first few minutes, but then, > it is sleep and then emptiness. > > > > I think something piggybacked on the original TM seizure activity I had since > 22 April 2010 (in the atrium of the main building of the girl's campus, no > less). Those were mostly physical and lasted for hours. But they morphed > over into more of a mental disorder, where I would become just empty-eyed and > unable to coordinate my limbs. I would just stand there, if I hadn't already > fallen, waiting for someone to help me walk to a safe place. > > > > Now, I have used this mustard cure for about two months and have felt good > enough that I have gotten a real estate licensemy wife is an agent here in > New Yorkto work with her in the business. > > > > But as soon as we started to work together the stress built up again, and so > now the seizures are back. I soon enough realized that I can't remember > things, names, places, times, dates, addresses, numbers,--and I am thinking > of real estate work? My way of dealing with this stress is to back-off, and > announce that I will be doing less, and that doesn't mean giving up, but just > pacing things out a little. > > > > Meanwhile, there is this manuscript on the economics of the Qur'an awaiting > my finishing touches before finding a publisher (my second book). The work > just flows, and I truly understand all these things that comprise its > ingredients. > > > > So here might be something for you all to chew on, if you like. > > > > Dg > > > > > Dalton Garis > > Flushing, Queens > > New York, USA > > Mobile: 718-838-0437 > > > > From: Judy <[email protected]> > Date: Tuesday, 22 January 2013 9:45 PM > To: <[email protected]> > Cc: <[email protected]> > Subject: Re: [TMIC] Re: Need your input > Resent-From: <[email protected]> > Resent-Date: Tue, 22 Jan 2013 18:45:55 -0800 > > > > > > We really do have a good group. I'm busting my butt to come up with topics > to discuss. Anything that you think of will be appreciated. > > > > Jude > > > > > In a message dated 1/22/2013 9:23:26 P.M. Eastern Standard Time, > [email protected] writes: > >> >> >> You know, it sounds like everyone wants to come back to our site here. >> Let¹s get back to sharing and responding again. Also, those questions that >> pop up over time too. I >> >> doubt that anyone can go for long without questions about something! >> >> What a great bunch we have! >> >> Janice >> >> >> >> >> >> >> >> >> From: [email protected] >> >> Sent: Monday, January 21, 2013 6:43 PM >> >> To: tmic <mailto:[email protected]> >> >> Subject: Fw: [TMIC] Re: Need your input >> >> >> >> >> >> I have had a flu shot every year for over 25 years. Also had a pneumonia >> shot. >> >> See my PCP every 3 months; he takes care of my meds. >> >> I am having a lot of bone pain from my metastatic breast cancer that I will >> speak with my oncologist about when I see her in February. Trouble is the >> treatment also causes bone pain. >> >> I hate facebook! >> >> Miss the old TMIC group. >> >> Cheryl >> >> >> >> >> >> ----- Forwarded Message ----- >> From: Robert Pall <[email protected]> >> To: [email protected]; [email protected] >> Cc: [email protected] >> Sent: Monday, January 21, 2013 6:52 PM >> Subject: Re: [TMIC] Re: Need your input >> >> >> >> I have taken the flu shot for the past 15+ years....never got the >> flu.....and I do not believe getting TM had anything to do with any kind of >> immunizations. I also see my regular MD twice a year minimum and he does >> prescribe most of my meds. However I see my neurologist at least once per >> year to insure that I am up to date with the best pain killers and meds >> available This year he is doing a baclofen injection into my spine to see if >> a baclofen pump will be beneficial and he also prescribed 2 oz per month of >> marijuana which I know is beneficial >> >> Finally I would love to see this list get busy again.....I hate going on >> facebook! >> >> Rob in New Jersey.. >> >> >> >> >> >> >> -----Original Message----- >> From: Heyjude48458 <[email protected]> >> To: snow121100 <[email protected]> >> Cc: tmic-list <[email protected]> >> Sent: Mon, Jan 21, 2013 3:03 pm >> Subject: [TMIC] Re: Need your input >> >> >> >> Hi Carol, >> >> >> >> Thank you for answering me...I'm trying to rev up the TMIC list again. >> Anything you want to know or questions you need answered please email me. >> It's important that you write in from time to time. >> >> >> >> Love you, >> >> Jude >> >> Michigan >> >> >> >> Learn from yesterday, Live for today, Hope for tomorrow. >> >> Albert Einstein >> >> >> >> >> In a message dated 1/21/2013 12:42:34 P.M. Eastern Standard Time, >> [email protected] writes: >> >>> >>> Hey Jude! >>> I have received a flu shot every year, except the first year, after the >>> onset of TM. I became sick in June 2005. I have not noticed any >>> complications. I think we all have to figure out the pros and cons. I >>> have Type 2 Diabetis, heart disease (I had 6 bypasses when I was 49 years >>> old). Yes, 6! I had 2 bypasses in 2 of the arteries. I don't know about >>> now, but then I was told it would be better to make 2 shorter graphs than 1 >>> longer one. Anyway, along with my doctors, my daughter an RN and my >>> son-in-law a doctor, I have made the decision to get flu shots annually and >>> pneumonia vaccine every 5-7 years as recommended. >>> >>> When I lived near Chicago, my neurologist was Dr. Joy Derwenskus at >>> Northwestern where she was also an associate professor. Now that I live >>> closer to Indianapolis, I see Dr. Margaret Frazer, in Carmel. She is with >>> JWM Neurology and also works in research. As much as you can enjoy a >>> doctor, I have enjoyed seeing both of them. I see no fault with them just >>> get exasperated with all the unknowns of TM. >>> >>> >>> >>> >>> >>> Carol >>> >>> Worrying does not empty >>> tomorrow of its troubles; >>> It empties today of its strengths. >>> >>> >>> >>> >>> >>> >>> >>> >>> From: [email protected] >>> Date: Mon, 21 Jan 2013 11:53:38 -0500 >>> Subject: Need your input >>> To: [email protected]; [email protected]; [email protected]; >>> [email protected]; [email protected]; [email protected]; >>> [email protected]; [email protected]; [email protected] >>> CC: [email protected]; [email protected] >>> >>> >>> Hi ladies and gentleman, >>> >>> >>> >>> This is Jude from TMIC. We are having two discussions and need your input. >>> First, we are talking about the need for a neurologist when someone has TM, >>> and the other topic is the need for flu shots, have you had them and what >>> does your Dr. say about them. >>> >>> >>> >>> There has been quite a bit of activity lately, but we need more. Will be >>> happy to answer any questions you have or talk about any topics you can >>> think of. >>> >>> >>> >>> I miss hearing from you and hope you write in soon. In case you have >>> forgotten the site it is: >>> >>> [email protected] . If you need to receive the emails the address is: >>> [email protected] >>> >>> >>> >>> I love you all, >>> >>> Jude >>> >>> Michigan, USA >>> = >> >>
