Linda,
I have a good friend who has tremors in his hands too. You are
right, he says a good stiff drink makes a difference with his
tremors!
You are making the best of what TM has done to you and that is
saying a lot!! Keep it up and keep responding.
Janice
*From:* Linda Egli <mailto:[email protected]>
*Sent:* Saturday, January 26, 2013 11:10 AM
*To:* [email protected] <mailto:[email protected]>
*Subject:* Re: [TMIC] Tonight, Today, Tomorrow
I lost a wonderful job working in a local Public Health
Department. I had worked there for 12 years & loved every minute
of the job. I went to the doctor with severe numbness & loss of
motor function, I then saw a neurologist & after a 36 years as a
nurse, my career was over. I left work that day & was never able
to return - very hard to deal with & probably took 2-3 yeas to
finally accept.
I miss dancing; I was not the greatest but I enjoyed it.
The main thing I miss now is only having partial use of my
hands. About 2 years into TM I developed essential tremors in
both hands (especially the right hand & I am right handed). I
take Primidone but it really doesn't help a lot. The main thing
that helps the tremors is alcohol & I can't drink every 4-6
hours, (but some days I try). Between the severe numbness &
tremors, using my hands can be difficult. I had always enjoyed
sewing, needlework, crocheting, scrap booking, & just anything
involvingarts & crafts. I got rid of 95% of my craft & sewing
items because I could not stand not being able to use them (I had
a whole room for crafts). I have found I can do jigsaw puzzles -
the 3-D ones with larger foam pieces or a little crocheting if I
keep it at 15 -20 minutes.
I try to be positive as much as possible, knowing there are many
people with much worse difficulty than me. On a good note, I
have a wonderful supportive husband (helps with laundry & tries
to help cooking), good medical coverage, & am able to afford
someone in to help with the house 3 days weekly.
Life is what you make of it.
Linda E.
------------------------------------------------------------------------
*From:* john snodgrass <[email protected]>
*To:* transverse myelitis <[email protected]>
*Sent:* Saturday, January 26, 2013 5:44 AM
*Subject:* Re: [TMIC] Tonight, Today, Tomorrow
i was a work-a-holic
i sure miss that!
------------------------------------------------------------------------
*From:* "[email protected]" <[email protected]>
*To:* [email protected]
*Cc:* [email protected]
*Sent:* Friday, January 25, 2013 10:32 PM
*Subject:* [TMIC] Tonight, Today, Tomorrow
*Hi everybody,*
*Tonight, sitting here doing nothing, I'm wondering how
Transverse Myelitis has affected your life. What has it stolen
from you. Maybe everything, maybe nothing. I'm sure it is a
personal thing.*
*Some people choose to focus on life and believe that everything
in life happens for a reason. *
*I love life and refuse to let TM steal one minute. Life is made
up of many joyous moments and I choose to focus on those moments,
not TM. *
*Because of my love for life, I refuse to feel sorry for myself.
I've learned to be outspoken about my TM and I've become a
demanding person because of TM. *
*I hate that I've had to give up driving and remember how it used
to feel heading down the highway with my arm resting on the
window turned all the way down.*
*Always remember that t/oday could be potentially the best day of
your life. Never take today for granted. When you wake up each
morning remember to thank God for giving you another day./*
*/Always end the day with a positive thought. No matter how hard
thing were, Tomorrow is a fresh opportunity to make it better.
(unknown)/*