Dalton, I will be having my bone density test soon. I've had osteopenia since before TM and developed jaw bone problems after one of the early osteo drugs given to women years ago. I think that med was removed from the market and I have gently refused any of the new meds since. I'll have to make a decision again when my new PCP gets my report. However, I'll feel more comfortable discussing it this time, because I chose a female doctor who may also face the same decision as she ages. Keep us informed and if anything changes I'll post an update.
Patti - Michigan > On Jan 26, 2015, at 9:13 AM, Suerdlagpunga <[email protected]> wrote: > > Friends, > > I am doing alright, but have developed new problems related to osteopenia, > which is thinning of bones, and one step before osteoporosis. > > I have cracked a vertebrae—L2—and this causes discomfort. But the real > problem is my right hip, which just sings a deep pain all up and down my leg. > Also, at night I seemed to have developed restless leg syndrome or something > of the sort, because it is impossible to get comfortable, and now I don’t > sleep more than about 45 minutes at a time. > > My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, > that I try Prolia, an injection given in the Dr’s office every 6 months, for > bone health. It is very pricy and the copay is stiff. > > Has anyone had experience taking any kind of osteo medicine, and what were > the side effects? > > Thanks, > Dalton > Dalton Garis > Flushing, Queens > New York, USA > (718) 838-0437 > > > >> On Jan 26, 2015, at 2:34, Iris Whiddett <[email protected]> wrote: >> >> Betty, while in hospital after TM hit, I described this awful discomfort I >> was experiencing as feeling like having bands of steel under my skin. The >> neurologist said nothing, just looked at me as though I was deranged!! Of >> course, I later learned for myself that it was commonly referred to as >> banding. >> >> Iris UK >> >> Sent from my iPad >> >>> On 26 Jan 2015, at 00:25, Betty Shaffer <[email protected]> wrote: >>> >>> I, too, have banding. When I asked the neurologist about it, he asked, >>> "what's that?" >>> I tried to explain it to him. >>> >>> Sent from my iPad >>> >>>> On Jan 25, 2015, at 2:10 PM, Iris Whiddett <[email protected]> wrote: >>>> >>>> >>>> Hi Rob, sorry to hear that things have been so bad for you. Not many >>>> speak about banding. In six years I have had some very slight improvement >>>> in other areas but the banding is always with me, intensifying with >>>> changes in the weather. I have accepted that it is a permanent part of my >>>> life. Strangely, it never bothers me when I am in bed. >>>> Regards >>>> Iris UK >>>> >>>> Sent from my iPad >
