Hi Sam, That information in very useful, thanks.
Nikki, UK Sent from my iPad > On 26 Jan 2015, at 14:47, [email protected] wrote: > > Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some > of you may remember me- "Sam from Boston." > > Remember that MS and TM are cousins, and on the same demyelinization > spectrum. TM can be thought of as being "MS of the spinal cord." If you have > a symptom that you can't explain or understand, or that you need to know > about, look up the symptoms and occurrences of MS and you likely will find it > there. The banding, the fatigue, the depression, the heat and cold > sensitivities, are all common to MS and are discussed in articles about MS. > Medications that are used to treat MS are also frequently used to treat > Transfers Myelitis. > > You also will find resources and explanations here: Google and join the > Transverse Myelitis Association: > > http://m.myelitis.org/?url=http%3A%2F%2Fmyelitis.org%2F&dm_redirected=true#2923 > > Here you will find tremendous resources and support for you, and professional > information for your physician. > > Maintain your hope! If you look for them, you will find that there are always > positive things in your life, starting with the people on this mail string, > who are here 24hrs per day to support you. > > Sam from Boston > > > -----Original Message----- > > From: [email protected] > To: [email protected] > Cc: [email protected],[email protected] > Sent: 2015-01-26 09:17:03 GMT > Subject: Re: [TMIC] Unidentified subject! > > Friends, > > I am doing alright, but have developed new problems related to osteopenia, > which is thinning of bones, and one step before osteoporosis. > > I have cracked a vertebrae—L2—and this causes discomfort. But the real > problem is my right hip, which just sings a deep pain all up and down my leg. > Also, at night I seemed to have developed restless leg syndrome or something > of the sort, because it is impossible to get comfortable, and now I don’t > sleep more than about 45 minutes at a time. > > My PCP suggested, after looking at x-rays, an MRI, and a bone density scan, > that I try Prolia, an injection given in the Dr’s office every 6 months, for > bone health. It is very pricy and the copay is stiff. > > Has anyone had experience taking any kind of osteo medicine, and what were > the side effects? > > Thanks, > Dalton > Dalton Garis > Flushing, Queens > New York, USA > (718) 838-0437 > > > > On Jan 26, 2015, at 2:34, Iris Whiddett <[email protected]> wrote: > > Betty, while in hospital after TM hit, I described this awful discomfort I > was experiencing as feeling like having bands of steel under my skin. The > neurologist said nothing, just looked at me as though I was deranged!! Of > course, I later learned for myself that it was commonly referred to as > banding. > > Iris UK > > Sent from my iPad > > On 26 Jan 2015, at 00:25, Betty Shaffer <[email protected]> wrote: > > I, too, have banding. When I asked the neurologist about it, he asked, > "what's that?" > I tried to explain it to him. > > Sent from my iPad > > On Jan 25, 2015, at 2:10 PM, Iris Whiddett <[email protected]> wrote: > > > Hi Rob, sorry to hear that things have been so bad for you. Not many speak > about banding. In six years I have had some very slight improvement in other > areas but the banding is always with me, intensifying with changes in the > weather. I have accepted that it is a permanent part of my life. Strangely, > it never bothers me when I am in bed. > Regards > Iris UK > > Sent from my iPad > > > >
