Everybody,
I had the baclofen Pump inserted in June 2013. Before the pump could be
inserted I first had to do a trial at the hospital to determine if the pump was
right for me. My neuro felt that the banding in my legs is caused by spasticity
and not weakness. The reason I went with the pump is because I could not
tolerate taking baclofen orally. To cut to the chase .....I am considering
removing the pump because the dosage required to help the banding also has
caused me to have heart palpitations,nausau and a feeling of bloatedness. In
addition it has made me lose my appetite causing me to lose 30 lbs. This is
after my doing all possible due diligence.
Therefore even though the pump has somewhat improved my banding the side
effects eliminate the positives.
God I hate TM!!!!
Rob in NJ
-----Original Message-----
From: Sandra Melville <[email protected]>
To: Pat <[email protected]>
Cc: robthecfo <[email protected]>; tmic <[email protected]>; Iris Whiddett
<[email protected]>
Sent: Wed, Jan 28, 2015 1:10 pm
Subject: Re: [TMIC] Unidentified subject!
Everybody,
Pat just reminded pointed out that I miss-spoke in my last post.
Please excuse me, Baclophen is a muscle relaxant and anti-spasm med.
It is NOT an anti-seizure med.
One should never substitute one for the other without talking to one's doc!
Dangerous effects could occur!
Everybody, please don't take meds on the information of somebody on-line for
just this reason-someone may mis-speak!
Pat, I thank you!
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-------- Original message --------
From: Sam Melville <[email protected]>
Date:01/28/2015 9:20 AM (GMT-05:00)
To: Pat <[email protected]>
Cc: [email protected], tmic <[email protected]>, Iris Whiddett
<[email protected]>
Subject: Re: [TMIC] Unidentified subject!
Some of the neuroleptics (anti-seizure meds), which is what Baclofen is, will
help as well. Good luck!
Sam from BostonOn Jan 28, 2015 8:55 AM, Pat <[email protected]> wrote:
>
> Baclofen reduces banding greatly for me. I remember Rob's posts when he made
> the decision to try the Baclofen pump, the operation, and the dosage changes.
> Rob, I wish it had continued to work for you without having other
> complications. Continue your group leadership. I know your group has been
> successful.
>
> Patti - Michigan
>
>
>
> > On Jan 25, 2015, at 5:10 PM, Iris Whiddett <[email protected]> wrote:
> >
> >
> > Hi Rob, sorry to hear that things have been so bad for you. Not many speak
> > about banding. In six years I have had some very slight improvement in
> > other areas but the banding is always with me, intensifying with changes in
> > the weather. I have accepted that it is a permanent part of my life.
> > Strangely, it never bothers me when I am in bed.
> > Regards
> > Iris UK
> >
> > Sent from my iPad
>
