My daughter was prescribed Aldara to treat the common warts she had on her hand a year before her diagnosis. Has anyone else with CML used Aldara?
Richard Troxel wrote on 1/9/2006, 1:10 PM:
Hi all,
Something to think about on the issue of CML and heredity. It is not impossible for multiple family members to contract the disease and have it still NOT be hereditary. If, as we suspect, CML is due to environmental factors it is reasonable to expect that family members are exposed to substantially the same environments. Even if the exposure comes from the workplace we often bring our workplace environment home on our clothes, skin and hair. Also, we take our sons and daughters to work so they can see what we do.
Personally, I think my CML came from my doctors. I was having problems that were ultimately traced to a benign pituitary tumor. When the doctors were trying to pin point my problem they injected a radioactive, nuclear substance into my blood to trace it through my heart. This was about two years before my CML showed up. Unfortunately, it is impossible to determine just what caused my disease.
Richard Troxel
On 1/9/06, cher111376 <[EMAIL PROTECTED]> wrote:Hello Roger,
I know how you feel, my daughter was 18 when I was dxed. Obviously
this is something we worry about and may even think about genetic
testing when she decides to have children. But from all that I have
been told, no, CML is not hereditary. That being said, like I
pointed out I know at least three other CMLers who had lost their
fathers to this disease (in the early 70's). In my case my father
does not have CML, but he has had several bouts with prostate cancer
and bladder cancer, he also has lupus. My mother passed away from
colon cancer. Other than that there has been other cancer in my
fathers side of the family as well as my mothers. So, who is to say.
There isn't much we can do other than eat well, exercise and try to
chose the right healthy lifestyles.
As far as I know there is no immunization yet for this disease. For
me, I find it easier to keep my sanity by controling that which I
can and for me the best thing is to try to stay away from
pesticides, try to make sure I eat as much organic foods as possible
and I certainly eat a lot more fresh vegetables and fruits. I've
also reduced the amount of sugar in my diet, and am learning to
control stress (which is hard to do at times with this disease, I
will admit to that)after several years of meditation and yoga.
In your case just helping your children to lead happy fulfilling
lives will keep you busy and focused on the important and enriching
things in life. I think spending too much time thinking about what
might never happen is a terrible way to waste a life. Enjoy your
children and enjoy your life, we have lots to look forward to and
there are many new drugs being developed.
You are young Roger, but with all that is going on in research, I
feel quite positively that you and your children will all have long
healthy lives.
Cheers,
Cheryl-Anne
--- In CML@yahoogroups.com, Roger Shepherd <[EMAIL PROTECTED] ...> wrote:
>
> Hello,
>
>
> i was guranteed by my onc that cml is not
> hereditary, i know that there is a lot about the
> disease and its origins that we are not sure of, but
> for him to make that bold of a statement, i feel like
> i should listen.
>
> i am the first on both sides of my family to have
> cml, there a have been 1 or 2 very distant relatives
> who have had other forms of cancer.
>
> Heredity has wieghed heavily on my heart as far as
> having children goes. I have an 8 month old and am
> expecteing twins in june. Should i be worried? I
> mean i am the only one in my family, should i be
> petrified that one of my 3 children is going to have
> to go through this as well>? Who can answer that for
> me?
>
> What of the immunization shot does anyone know
> about this and it's credintials? i would like to know
> if that is a route i should take for my children..i
> would appreciat anyfeedback on this.. thanks
>
>
> roger
>
>
> dx. may 2004, 27yrs.
>
> --- nissi6255 <[EMAIL PROTECTED]> wrote:
>
> > --- In CML@yahoogroups.com, "Cheryl-Anne Simoneau"
> > < [EMAIL PROTECTED]> wrote:
> > >
> > > Hello All,
> > >
> > > Just thought I would chime in on this. While I
> > thoroughly agree
> > with what
> > > has been written on the subject - CML is not in
> > and of itself a
> > hereditary
> > > disease, >
> >
> >
> > Hi everyone,
> >
> > After reading Cheryl-Annes' and a few other posts re
> > the ER
> > controversy and hereditary of CML. I pausd for
> > reflection on some of
> > my daughters (Nina age 24 dx w/CML) family history.
> > My side of the
> > family is not disease free; but, it doesn't compare
> > to my husbands,
> > especially his mothers family. I will try to be
> > brief in listing
> > their fatalities and diseases I think you will be
> > as shocked as I
> > was when I began writing down all their afflictions.
> >
> > My Husbands mother was one of 6 children.
> >
> > Mothers Sister #1 Deceased - Brain Cancer
> > Her son #1 Deceased - Brain Cancer
> > Her son #2 Alive and a Child leukemia Survivor
> >
> > Mothers Sister #2 Deceased - Heart Attack
> > Her daughter #1 Deceased Stomach Cancer
> > Her daughter #3 Deceased age 5 Leukemia
> >
> > My Husbands mother - deceased Brain Annurism
> > (survived Cancer twice)
> > My husbands brother #1 - Deceased age 49 Lung Cancer
> > My husbands brother #2 - Deceased age 36 Massive
> > Heart Attack
> >
> > Mothers Brother #1 Alive and Healthy
> >
> > Mothers Brother #2 Deceased - Heart Attack
> >
> > Mothers Brother #3 Alive, Surviving with Multiple
> > Schlerosis (sp) MS
> >
> > I know that love is blind, especially at 18. But
> > when I look at all
> > this pain and suffering I can't help but feel like I
> > chose the wrong
> > gene pool for my childrens heritage.
> >
> > Denise
> >
> >
> >
> >
> >
> >
>
>
>
>
>
>
> __________________________________________
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>
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