I wonder why they took me off Fosamax, maybe my bone density had not improved. I don’t know if our bone density can ever improve since we aren’t able to bear weight. What do you think? Dana
On Thu, Dec 14, 2023 at 8:35 AM Noel <swl...@gmail.com> wrote: > I was diagnosed with osteoporosis about 10 years ago, high risk of > fracture. I've been taking Fosamax ever since. I had another bone density > test a couple of months ago, to see if the Fosamax was working. She didn't > give me the results of the latest bone density test, just tell me to keep > taking the Fosamax. > > When I was first diagnosed, I started using an RT300 FES bike after > reading that it had strengthened bones on many people that have used one > (notably Christopher Reeve). Used it for a couple of years, puts a lot of > pressure on the bones. But, after a couple of years, I developed severe > pain in my knees and had to stop. I've tried everything for the pain in my > knees, prescription and nonprescription, nothing seems to help. > > On Wed, Dec 13, 2023 at 1:54 AM Dana <wraydan...@gmail.com> wrote: > >> Yes I have taken for several years. I need to get a DEXA scan before I >> can get another injection. This is my third type of treatment for >> osteoporosis. I was injured at 20 and the state would not pay for a >> standing frame like they suggested at rehab, this caused me to get >> osteoporosis. >> >> I go to a specialist at KU, I have pain in my shoulders and neck and she >> suggested I use Biofreeze. It was a prescription and now the more effective >> Brand over the counter. I order from Amazon. >> Because of the Osteoporosis I have not been able to get surgery on my >> broken hip broken foot or arm. I did have Foote drop surgery and that’s the >> one that gave me gangrene, a wound vac 2 months and then A skin graft. I >> have no meat on the back of my heel and part of the bone is gone, because >> the doctor left the external fixator on seven days without checking. >> leaving it on too long broke my foot. After I get my next DEXA, I will tell >> you my status. I don’t know how well it improves but if you read about it >> online it says that you need to take it. It gives pretty grim prognosis to >> Osteoporosis. I want to hear from everybody on the list who has been >> diagnosed with osteoporosis and what treatment you have been getting and >> the results of the treatment >> Gratefully yours, Dana C 4-5, complete,ileo-conduit,trach, 49 years >> post. I so enjoy the Quad-List. Thank you Jim for Starting this productive >> group of survivors.I am grateful for this Quad-List. We are a few That >> contribute but United. >> >> On Sun, Dec 10, 2023 at 3:00 PM Paul Jacobson <pjacob...@san.rr.com> >> wrote: >> >>> Has anyone taken PROLIA for better bone density? Can you >>> >>> share your results and thoughts? Thank you! >>> >>> >>> >>> Paul c5/6 >>> >>> San Diego, CA >>> >>
