I gree, I tied some shots, they did help but would have to keep doing and they have side effects. My primary said the same. plus no weight bearing.
> On 12/27/2023 3:00 PM EST Eric Olson <whee...@wi.rr.com> wrote: > > > This is just my opinion, but I think you hit the nail on the head. Without > weight bearing, do these drugs do anything? They were not developed to be > used for people that are not weight bearing, Just my 2 cents. > > On Wed, Dec 27, 2023 at 2:35 AM Dana <wraydan...@gmail.com > mailto:wraydan...@gmail.com> wrote: > > > I wonder why they took me off Fosamax, maybe my bone density had not > > improved. I don’t know if our bone density can ever improve since we aren’t > > able to bear weight. What do you think? Dana > > > > On Thu, Dec 14, 2023 at 8:35 AM Noel <swl...@gmail.com > > mailto:swl...@gmail.com> wrote: > > > > > I was diagnosed with osteoporosis about 10 years ago, high risk of > > > fracture. I've been taking Fosamax ever since. I had another bone density > > > test a couple of months ago, to see if the Fosamax was working. She > > > didn't give me the results of the latest bone density test, just tell me > > > to keep taking the Fosamax. > > > > > > When I was first diagnosed, I started using an RT300 FES bike after > > > reading that it had strengthened bones on many people that have used one > > > (notably Christopher Reeve). Used it for a couple of years, puts a lot of > > > pressure on the bones. But, after a couple of years, I developed severe > > > pain in my knees and had to stop. I've tried everything for the pain in > > > my knees, prescription and nonprescription, nothing seems to help. > > > > > > On Wed, Dec 13, 2023 at 1:54 AM Dana <wraydan...@gmail.com > > > mailto:wraydan...@gmail.com> wrote: > > > > > > > Yes I have taken for several years. I need to get a DEXA scan before I > > > > can get another injection. This is my third type of treatment for > > > > osteoporosis. I was injured at 20 and the state would not pay for a > > > > standing frame like they suggested at rehab, this caused me to get > > > > osteoporosis. > > > > > > > > I go to a specialist at KU, I have pain in my shoulders and neck and > > > > she suggested I use Biofreeze. It was a prescription and now the more > > > > effective Brand over the counter. I order from Amazon. > > > > Because of the Osteoporosis I have not been able to get surgery on my > > > > broken hip broken foot or arm. I did have Foote drop surgery and that’s > > > > the one that gave me gangrene, a wound vac 2 months and then A skin > > > > graft. I have no meat on the back of my heel and part of the bone is > > > > gone, because the doctor left the external fixator on seven days > > > > without checking. leaving it on too long broke my foot. After I get my > > > > next DEXA, I will tell you my status. I don’t know how well it improves > > > > but if you read about it online it says that you need to take it. It > > > > gives pretty grim prognosis to Osteoporosis. I want to hear from > > > > everybody on the list who has been diagnosed with osteoporosis and what > > > > treatment you have been getting and the results of the treatment > > > > Gratefully yours, Dana C 4-5, complete,ileo-conduit,trach, 49 years > > > > post. I so enjoy the Quad-List. Thank you Jim for Starting this > > > > productive group of survivors.I am grateful for this Quad-List. We are > > > > a few That contribute but United. > > > > > > > > On Sun, Dec 10, 2023 at 3:00 PM Paul Jacobson <pjacob...@san.rr.com > > > > mailto:pjacob...@san.rr.com> wrote: > > > > > > > > > > > > > > Has anyone taken PROLIA for better bone density? Can you > > > > > > > > > > share your results and thoughts? Thank you! > > > > > > > > > > > > > > > > > > > > Paul c5/6 > > > > > > > > > > San Diego, CA > > > > > > > > > > > > > > >
