Lisa Martinez
Avatel Technologies
National Account Manager
1-866-835-2062 x 1015
At least this TV show and its episode (which we all know isn't real) brought
up a good topic for discussion for those of us who may have been concerned
whether this is or isn't hereditary.
Message: 4
Lisa Martinez
Avatel Technologies
National Account Manager
Hi Lisa, my name is Lisa too.
Just wanted to let you know that I reached PCRU in about 60 days after being
on Gleevec 400 mgs.
I was diagnosed in 2000 and was on Interferon, ARC and hydrea for a year
while waiting for the FDA
. Feeling Looking great!
I wish the same for all of you too
Lisa Martinez
Dx 5-2000
Int, Arc Hydrea
6-2001 Gleevec 400
8-2001 PCRU
Message: 3
Date: Thu, 8 Dec 2005 08:52:04 -0800 (PST)
From: S. Folle [EMAIL PROTECTED]
Subject: Re: Re: Pat's Update/Livia
Pat
coverages such as life, Cancer , short term and long term have been
difficult but eventually I was able to get them by either waiting the one
year exclusion period or they just made a mistake and gave it to me?
Likethe Cancer insurance for expamle... I actullay have that:)
Lisa
ever exist.
Congratulations on your 5 year mark and May God continue to bless you for
many years to come!
Lisa Martinez
Dx 5-2000
Hydrea/interferon/arc
6-2001 400 mgs gleevec
8-2001 pcru
Message: 2
Date: Thu, 24 Nov 2005 10:11:19 -0500
From: Cheryl-Anne Simoneau [EMAIL
Lisa Martinez
Dx 5-2000
Arc/hydrea/interferon
6-2001 Gleevec 400
8-2001 PCRU
Zavies club # 111
I have been a quite member of this board since I was diagnosed
October 2003. I have always looked to the board to help with questions
I may have. Here
.
Lisa Martinez
DX 5-2000
HYDREA/ARC/INYERFERON
6-2001 Gleevec 400
8-2001 PCR
Yahoo! Groups Sponsor ~--
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Lisa Martinez
Dx 5-2000
Arc/hydrea/interferon
6-2001 Gleevec 400
8-2001 PCRU
Zavies club # 111
I have been a quite member of this board since I was diagnosed
October 2003. I have always looked to the board to help with questions
I may have. Here is my story
I
Message: 4
Date: Sun, 20 Nov 2005 10:21:53 EST
From: [EMAIL PROTECTED]
Hi Jeannie,
I too have had no issues for a few months? Kind of weird that it just went
away.
Another member and I had come to a conclusion that this was hormone related
and I do believe that her doctor
Hey Chris,
You said you get mail order option now and a lot of people have done that
for convenience purposes.
Do you have the option of pharmacy pick up and if so what would your co-pay
be then? Is it still 20% for each prescription?
Lisa
Message: 6
Date: Thu, 10 Nov 2005
Carl, this is wonderful news!
I am curious and I am sorry if I ask a question that you've already answered
previously.
Did you start the trial for any other reason than your results being .002%
PH+, by quantitative PCR testing?
Lisa Martinez
Tampa Fl
Dx 5-2000
Hydrea, ARC Interferon
6
yet! :)
Lisa Martinez
Message: 5
Date: Mon, 31 Oct 2005 16:26:57 -0800 (PST)
From: IAintFinishedYet [EMAIL PROTECTED]
Subject: Re: Digest Number 4148
Hey Susan Everyone:
After spending 8 days in the hospital when I wasn't ill and leaving not
knowing my diagnosis; the post
Char, I think of you often and I am so happy you finally got yourself into
one of the trials. You had me worried for minute there girl... Thank God!
Lisa
Tampa Fl
Dx 5-2000
essage: 6
Date: Tue, 4 Oct 2005 19:02:06 -0700 (PDT)
From: char fisher [EMAIL PROTECTED]
Subject: i
Does anyone know what color ribbon may be used to represent the leukemia
lymphoma society - or if just leukemia.
The reason I ask is that over the past 2 months I have supported a friend
Who is doing the 60 mile walk for Breast Cancer. She now is helping me with
the local Light the night walk.
Date: Mon, 22 Aug 2005 18:22:01 -
From: tkabushaban [EMAIL PROTECTED]
Subject: Re: Leukemia in Family?
I won't even get into the cancer in our family. When I filled out initial
forms at my first appointment with my oncologist, he was blown away at the
amount of cancer primarily in my
Awesome! Keep us updated please...
Message: 8
Date: Tue, 23 Aug 2005 10:51:03 -
From: Irene [EMAIL PROTECTED]
Subject: Started PR1 peptide trial
I had my first shots of the PR1 peptide leukemia vaccine at
MDAnderson. No reaction what so ever. Yipee!!! I can go anywhere,
of heart conditions
so please consult with your doctors before doing any of the above.
By the way, if anyone has any suggestions on any good starter yoga CD's, I
would appreciate the recommendations.
Peace love to all,
Lisa Martinez (Tampa Fl)
Dx 5-2000
Interferon, ARC , hydrea
6-2001 Gleevec
Dane As always I am glad to hear from you...
I am also glad to know you're doing well. What a blessing with the social
security!
Thank you for sharing the information- One of the biggest things we worry
about when considering a BMT is how are we going to provide for our
families?
Some may say it
Message: 3
Date: Tue, 12 Jul 2005 22:48:41 +0200
From: Giora [EMAIL PROTECTED]
Hi Giora,
First... I am so glad you and the children were not harmed.
Second, I am sorry you had to even experience such an incident. Although, I
am sure that once again it just puts life into
Dear Michael,
I am glad to hear that you are feeling better but I am sorry you have to go
through all of this. I hope that the PCR is not a very high percentage and
please update us as soon as you find out.
My prayers are with you.
Keep up the fight!
Lisa M
Message: 3
Date:
Mary,
My sincere condolences for the loss of your friend.
It just doesn't seem fair does it??
My heart hurts for his family...
Lisa M
Message: 8
Date: Tue, 14 Jun 2005 20:03:13 -0700 (PDT)
From: Mary Toole [EMAIL PROTECTED]
Subject: A fallen warrior
I am sorry to tell you
Hi Becky,
Welcome and thank you sharing your information with us.
I have had to use diflucan myself due to side affects of my asthma
medication. Diflucan is definitely a quick acting drug for yeast infection
in the mouth which is also referred to as Thrush.
I recall another medicine that my
Hi Doris! I have not seen any post from you in along time and I am very glad
to hear from you!
Sorry I don't remember but are you taking Gleevec or did you opt for the
BMT?
I too am sad for the ones we lost and their families.
I am also a Christian But with the added bonus of having many of my
To all who have replied to my 5 year anniversary post.
Thank you!
And I look forward to seeing all of yours!
Lisa
Yahoo! Groups Sponsor ~--
In low income neighborhoods, 84% do not own computers.
At Network for Good, help bridge the
Hi Stavros,
First I want to say hello and wow what an inspiration to hear from someone
who was diagnosed in 1996. It sounds like you are doing very well.
Zavie is part of another support group now which is [EMAIL PROTECTED]
I will copy your message to him and maybe you can register on that site
Halff,
I want to tell you personally that in the past few years you have made many
of my down moments better for me with your usual silly comments and jokes.
Thank you for that. I really mean it...I bet many on the list would agree:0)
A sense of humor really does help.
Lisa
Message: 5
Hello Group,
Yesterday, 5-24-05 was my 5 year anniversary with CML.
There have definitely been some challenges in my last 5 years. Some I have
managed to greet and defeat and some I could not.
I remember the painful confusion emotions the day my doctor predicted
about 2 to 3 years for me to
Hi Michael,
I am not really sure that anyone was confused by what you meant when
you mentioned your emotional state. Because each of us have had to go through
many phases of adjustments in our life.
The first one being the initial diagnosis. You seem to have passed that
initial stage
Dane,
I am so impressed with all you have done for yourself. And so grateful for
all you have shared with us and done for us.
You really are a hero in a way...Because of you; I have lost so much fear
that I use to feel when thinking of a BMT.
I know and understand that realistically everyone
Hi Teresa,
First a Big CONGRATULATIONS on your molecular remission
Second the eye bleeds have been common for some of us. Why? I really don't
know
I can tell you that mine go away on their own. It takes about a day or so...
Today I woke up with one on my eye lid. This is also very
Gosh, You learn something new everyday for sure!
I had no idea these meds had Tylenol.
I occasionally take a Darvocet for pain, but had I needed to take them often
I would have never known that.
Thanks for sharing that Bob.
Lisa
Subject: Darvoset
Dear MJ,
I read a note from you
Hi Debra,
I would hope that you would be able to go back on it after the enzymes are
in control?
Unless of course you are going to start one of the new drugs they have in
trial?
Lisa
Message: 9
Date: Sun, 10 Apr 2005 22:15:29 -0700 (PDT)
From: debra moretz [EMAIL
Message: 10
Date: Thu, 24 Mar 2005 13:13:12 -0800 (PST)
From: IAintFinishedYet [EMAIL PROTECTED]
Hi K
First, I want to apologize for not knowing if you area female or a male.
The reason being is that I too have had to deal with th night sweats for
almost 2 years now.
I am a
This is absolutely awesome! I am coming up
on my 5 year anniversary since dx and have been PCRU since 8-2001
NUMBER 111 IN ZAVIES CLUB! This
news would make Ellen number 1 of your club
I love that number!
Thank you for sharing this information
Zavie! You just gave me the
given a gift.
Lisa Martinez
Tampa Fl
Message: 17
Date: Mon, 31 Jan 2005 20:44:01 -0800 (PST)
From: Yoli [EMAIL PROTECTED]
Subject: Re: Re: Impossible PCRU?
My boyfriend wants to know what is the longest someone in the zero club has
remained at zero, thank you
!
Lisa Martinez
Tampa Florida
Message: 7
Date: Thu, 27 Jan 2005 21:45:22 +
From: [EMAIL PROTECTED]
Subject: New BMP test results
I have received good news from Moffit Center today on my last QPCR and BMP.
I am now at 0.00208 which show a reduction of 1 log from my
Hypothetically speaking though, if you were a young woman with young
kids to raise and no one to help you and no money to pay anyone to
help, do you think you would have done so well? Could you have
driven young children to school every day, helped with homework,
cleaned up after they got
I didn't get to see the movie Swimming Upstream and watch Lifetime all the
time! I even went on line LMN to see when it might be playing again.
However, how many of you remember the old movie Love Story Starring Ryan
O'Neil Ali McGraw? (One of my all time favorites)
Did you also know that
And many more!
Lisa Martinez
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essage: 13
Date: Tue, 18 Jan 2005 08:13:23 -0500
From: rrockef1 [EMAIL PROTECTED]
Subject: RE :IM COLD
Hi Lisa,
Date: Mon, 17 Jan 2005 13:45:25 -0500
From: Lisa Martinez [EMAIL PROTECTED]
Subject: RE :IM COLD
In my office they regulate the air/ heat by me.
It goes
One reason that you have not spoken with those who didn't do well on the
transplant is because they are 'dead'. Get the statistics on those who
relapse after transplant. You need to look at both sides. Once you decide,
don't look back.
I hope this helps.
Zavie
Wow Zavie! You took the words
Hi Teresa,
I am so glad that you had a good experience thats really important.
I am also glad that Dr List had you scheduled for your BMB that day instead
of making you come back. Please let me know what your results are.
Dr List is a very wonderful person. Very kind, passionate and
Hi Jeanie,
If I read the story correctly (hopefully I did)
I think that it was referring to the treatment of interferon.
The choice of that treatment back then was also a hard one to make. The side
affects were horrible to say the least. Unlike chemo thatÂ’s given over
periods of time it was
Hi Diane,
Just thought I would let you know that The numbness and tingling as well as
the cramps you have in your hands ARE side affects from Gleevec.
Jeez it makes you wonder when you hear a Dr say it's not, how much they
really know? (Sorry)
I have been on 4000 mgs of Gleevec since 6-2001 and
!
I hope that somehow we are able to keep up with your progress. Like the
caringbridge site.
I am sure when the time comes you'll get all that information.
God Bless you!
Lisa Martinez
Tampa Florida
Dx 5-2000 hyd/int/arc
6-2001 Gleevec 400 mgs
8-2001 PCRU
Message: 25
Hi Dane,
I understand how you feel about all the losses that has occurred these past
few weeks. In a word, it's scary. I can't stop thinking what's going on
here?
After reading your post I knew that you were obviously feeling what I am
feeling x 100 with your current cyto results.
Although I
Wishing everyone a Happy safe Holiday
To all of us who are at 0% may we continue to maintain the blessing we have
been given.
To all of you who are looking forward to achieving 0% May you be blessed
with the big fat O this new coming year!
To all our new CML warriors who have joined the
consider drinking
are the Propel and the Fruit 20 waters which have a few safe vitamins in
them.
Happy Holidays everyone!
Lisa Martinez 400 MGS Gleevec
Dx 5-2000
PCRU 8-2001
STILL HOLDING GRATEFUL
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this information will be of some help.
I am so glad your doing well and look forward to your continued reports
Of success!
Lisa Martinez
Tampa Florida
Message: 14
Date: Fri, 03 Dec 2004 08:03:47 -
From: Gloria [EMAIL PROTECTED]
Subject: eating difficulties
wondering if anyone can
gastric bypass surgery.
Good luck
Lisa Martinez
From: debra moretz [EMAIL PROTECTED]
Subject: Diarrhea !!! Need advice!
Hello, I am sooo miserable and need advice. I am suffering greatly with
diarrhea. And i do mean suffering. As in 22 times since midnight Friday
night. I must
that you moved from Arizona to NY and what a
drastic change that must have been for you.
He said hello and send his regards.
Sorry I forgot to tell you sooner
Lisa Martinez
Tampa Fl,
Dx 5-2000
Int/arc/hydrea
6-2001 Gleevec 400 mgs
8-2001 PCRU HOLDING
---
Outgoing mail is certified
Gloria,
I won't be able to join the chat this evening so if you are able to read
these posts, I want you to know I am thinking about you so much and praying
for a speedy recovery.
Lisa
Tampa Fl
Dx 5-2000
Arc/int/hyd
6-2001 400 mgs gleevec
8-2001 pcru and holding
---
Outgoing mail is
Can someone please provide me with the address for Gloria's web page so I
can send her a message? I misplaced it.
Thank you in advance!
Lisa M
Tampa Fl
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